Hello, I’m not sure if this group is for me? I’d a TIA eye stroke five weeks ago & trying to find others for support. Thank you, Liz.
6 Likes
Well you’re definitely in the right place for support, so hi @Liz1 and welcome to the forum 
How can we help? There are many on here, and we are all qualified in the experience of our strokes or carers of those who have had strokes. I myself had a stroke/TIA 4½ years ago but there are others on here with similar experience to yours who may be able to help with your specific issue. Look forward to seeing around the forum 
Lorraine
1 Like
Hello Liz1, pleased to meet you. I’m sure that you will find that this is a group for you. As for finding others for support, may I say that we are all prepared to give you nothing but support, suggestions, and ideas, but most of all, a listening ear to help you navigate this new situation. Please stay with us, there is a myriad of voices with you to support your recovery. Just ask. Best wishes Norma
1 Like
Hi Norma, thank you for the warm welcome, as I’ve felt lost since it happened. As well as very scared, but normal to feel this way apparently. Liz.
2 Likes
Hello Emerald, i am struggling on my own, so im looking for support really. Feeling a bit lost + very scared. Thank you for replying, it’s good to find like minded people. Liz.
2 Likes
Liz, I would also suggest giving the Stroke Ass. a ring too: Stroke Support Helpline:0303 3033 100 Being on your own they will be able to offer help and advice for your situation and can also sign you up for their one on one weekly phone calls where you are matched with a fellow stroke survivor just for general chats.
Do give them a call in the morning. You certainly don’t need to be alone And you start by telling your own story right here, what you’re feeling or any other symptoms you might be experiencing and not sure if they are related, even the dread fatigue, the bane of all our lives 
Lorraine
2 Likes
Hi Lorraine, i did speak to a lovely lady on the phone from the stroke association last week. I dont recall mention of a one to one, that sounds good. She sent me a lot of information, including diet sheets. I’m struggling with it all, as all new. I guess the feeling overwhelmed is normal?
2 Likes
Yes there is Liz, ‘For eight weeks , a volunteer will chat to you for around 30 minutes’ and this is the link to it: Weekly Volunteer Calls | Stroke Association.
Here’s the link to the post I got from, there’s also online activities.
Hopeless - #23 by Anna_Moderator
I too received lot of information leaflets too when I had my stroke, unfortunately I couldn’t do anything with them at the time, a little tricky when you can’t read, write nor speak anyway For you it’s your eyes that are affected, can you read at all with them?
The first 6 months is all about healing and repair in the brain. During that time, yes, you do feel lost and so very scared. This was a life threatening event after all and you can’t help but fear another one, we have all been through it here. Fortunately we live on to tell the tale.
The brain is under a lot of pressure to both perform and repair, so you may get fatigued very frequently. Slow and steady wins the race, good diet and exercise and keeping up with your medications are very important. There are going to be some up and downs over the coming months, this is a good place to off load any worries or burdens, it can be enough to keep you calm, to worry less.
You’ve done well joining the forum, now take your time and tackle everything one step at a time, one leaflet at a time, don’t try the mental juggling act needed to tackle everything at once. Stroke recovery is a marathon not a race, and TIA’s are also strokes!
This feeling of being overwhelmed is normal! And it will ease up in time, it’s just a matter of how quickly you come to terms with the fact you’ve had a stroke, and it will happen
Lorraine
1 Like
Hello, I too had a TIA in my eye almost seven weeks ago. You are in the right place here for support.
Losing my eyesight overnight was a shock, though fortunately just in one eye. I have permanent damage to my sight but my brain is compensating so well that I am allowed to drive again. Just discovered I possibly have. Glaucoma in the other eye so hoping they can save my sight there.
I also live in my own and felt very isolated before I could drive.
3 Likes
Hello Liz,
I had the same as you, TIA (mini stroke is what they called it) in the eye, a couple of years before my main stroke. I lost 50% vision in one eye ; I’ve probably recovered 50% of that, since then / for a total loss of vision of 12½ %
Good luck with your progress,
Roland
2 Likes
@Liz1 hi & welcome to the community. I would echo that you are in the right place for support. We’re a friendly bunch here who are happy to help as much as we can.
So give the here for you servicec a try too. @EmeraldEyes has shared the link with you (weekly volunteer calls).
Fire away with any questions you might have.
Best wishes
Ann
3 Likes
Hello @Liz1 and welcome. each of us has a different story but still we get so much love and support. For example I think I’m the only one in a care home. So terribly lonely having grown up in a family of 7 and having 3daughters. My daughters are now fiercely independent and I’m just a burden to them!
1 Like
Hi @Liz1 ,
Welcome to the forum. I too felt alone after my recent stroke and have struggled to come to terms with the after affects.
The support and kindness of others on the forum has really helped and their advice and information has been invaluable.
Take time to get to know the services available from the Stroke Association and don’t be embarressed to ask as many questions as you need to on the forum.
3 Likes
Hi @Liz1
Welcome to the community, I’m sorry to hear about your TIA.
As others have said you’re definitely in the right place for getting some support from people who have been through similar experiences and I hope you’ll find this community helpful for your recovery.
Along with our weekly volunteer calls that have been suggested we also run Online Activities. We offer a wide range of virtual sessions you can choose from. You can learn about the effects of stroke, share experiences, take part in exercise groups and social quizzes to name a few things. People tell us that our sessions help with their confidence and also makes them feel less alone.
If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.
Anna
1 Like
Hello @Liz1 - Welcome to the community.
Hopefully you are feeling less lonely now and feel you are in the right place.
Here you will find support a plenty and if you so choose, you will never feel lonely again.
It’s entirely up to you how you choose to use this forum (within the rules of engagement of course 
)
Ha’Way the Lads!
Here’s something that might cheer you up, or not?
Namaste|
1 Like
I used to like whatever happened to the likely lads. They are showing them again at the mo on 56 I think. Have dipped into a few episodes.
1 Like
Coming from Newcastle we were brought up on that series. Great to watch.
1 Like
Ah, thank you for your loveky reply, so kind!! Also, for the video, they really were a hoot. Howay the lads indeed. Everyone in this group is so thoughtful, i really appreciate it. Kind regards, Liz.
Hello Liz1, I’m just back from a few days away, so I’d like to say welcome. I’m sure our esteemed friends on the site have offered all sorts of support for you, so I hope you are feeling a bit more comfortable and not lonely anymore in your new world.
It’s nice to see you are from Newcastle as we were up in your neck of the woods for our little break. We stayed in Tynemouth, what a lovely place! I do envy you having that wonderful area right on your doorstep. We had a really relaxing break and of course the weather was great. I wish I could have logged on to the site to see your post. We could have called in on you for a cuppa and chat before we battled round to avoid the Tyne Tunnel, ha-ha. Look forward to hearing more from you as you begin your recovery. Best wishes Norma
Hello Norma,
Thank you for such a lovely message, i really appreciate it!! Everyone in here have been incredibly nice + supportive. Knowing you are all there does help. Including the lovely lady who initially rang me. I hope she had a fab holiday.
Oh, Tynemouth is my favourite part of our coast, im glad the weather was kind to you, the North sea can be very unforgiving. Did you visit the markets on the metro station? And the Italian restaurant in there?
Hopefully you will return to visit more of our area, a cup of char would’ve been lovely!!
I’ve calmed down a little, still have my moments. Learning to do breathing exercises does help.
Kind regards, Liz.