Hi Janet, you could be right. It is scary though. If it is not stroke related, what is it? Could be a million dollars question after all.
Hi Jane, thanks for your advice. My main problem at the moment is I find it hard to get out of bed in the morning. Feeling light headed, nausea and at the edge of fainting are so horrible. I will try to drink plenty of water. Cutting down cafferine isn't a bad idea. Thanks.
Dear Chris
i think you said you suffered a mini stroke, or T.i.A.
If that is correct then you really should not be experiencing the things that a full stroke brings. You really do need to see your doctor. Perhaps you are the very rare case when a TIA brings long lasting issues. In which case you should be advised by the medics .
The things you read on here (plenty of them from me!) should not apply to you. TIA is a tansient stroke, the great news being it is transient and should go away soon.
best wishes
Colin
Hi Chris
I'm Rita and had lacunar stroke in March 2020 and yes the post stroke fatigue is awful. One never knows what each day brings but be positive. It does get better (I thought it never would) have swopped medications round and spaced them out rather than taking all at once and this seems to help. The thing is each day is different and you need to accept it and rest and then another day you feel beter. I have more good days than bad now 8 months on and can use my left arm and leg now. Walking still hard and have to resort to stick eventually'do exercises for balance everyday and strength, this helps. You need to build up strenth and rest when you can. I hope you continue to improve; the fatigue will improve. Your body is recovering slowly. Best wishes
Hello Chris.
Thanks for your reply. Much appreciated. My experience of fatigue is mostly tiredness and lack of energy.
Brian
Thanks Bernadette!
Brian
Dear Colin,
I am not quite sure about my stroke situation. When I was in the Stroke Hospital, the consultant told me I have a mini stroke, and I thought he did say it was a TIA. Then, when I had a second consultation with the Stroke Hospital, the consultant then told me I didn't have a TIA but a stroke - Left basal ganglia infarct - the MRI showed a small fcous of restricted diffusion 11 x 4mm in size.
I must be the most unlucky one suffering from all these side effects, either from the stroke or medication. As you suggested, I will go back to my GP to discuss my situation further.
Thanks for getting back to me. Much appreciated.
Hi Rita, how nice to hear from you. Great to know you are getting better. Yeah, as you said, every day is different and it is so unpredictable. I do need to be patience and rest when my body tells me. Best wishes.
Hi Brian, hopefully the fatigue will pass eventually. Best wishes.
Dear Chris
have you read the letter from the hospital to your GP. That should clarify the doctors opinions.
if you have not got that letter then the staff at your GP surgery should be able to give you a copy. No need to involve the GP for the copy.
I do hope it is a TIA because that will normally be a much quicker recovery. However, it sounds more likely to be a full stroke, especially with your symptoms. At least you will know where you stand.
Colin
Hi Chris, I do not recognise the symtoms you have with the stroke fatigue that I have, but others might. I too think you should speak to your doctor, as it could be something else, or just the need to change one pill for another, unfortunately there are so many different things but it is allways best to check. As others have said the fatigue is nothing like being tired, there are days when you just can not do anything and others when you feel tired all day, it effects us all differently. Its early days and things do improve, you have to give it time. Good luck Wendy
Hi Jim, I think anxiety and tolerance is something most of us stroke survivors will recognise. I say the wrong things to my husband, and get very cross when I can't do things that I used to do easily, opening packets, using laptop picking things up etc etc. I had the luxury of being able to have a visit by a local stroke coordinator, who spoke not only to me but to my husband and explain that this is a normal side effect. Its a case of adjusting to the new you, I am 3 years post stroke and we still have words, especially when the fatigue comes in and whatever I do goes wrong. Maybe you have a local stroke group who could come and visit, mine gave me lots of help with forms etc. and giving much needed assurance. Good luck. Wendy
Dear Colin,
Yes, I have read the letter from the hospital. I did recover very quickly after the stroke, then discharged within 36hours. No matter how small it is, I believe it is a stroke, in a small scale. Not TIA, as TIA means no damage to the brain. I am so annoyed by the symptoms I have suffered from. Change the medication on blood thinner and statin twice already. I think I am more or less run out of options. Very kind of you to communicate with me, which means a lot to me. Many thanks.
Dear Chris
A stroke is a stroke. Your brain has been damaged and you need to recover.
A thought.....most strokes have a permanently damaged area plus a zone around the permanent damage. The brain seems able to mend some of the surrounding zone. Is it possible that you have no permanent damage , just the zone and wouldnt that be wonderful?
By all means let the annoyance vent. But if you get a good recovery then things will look very different.
So please smile a lot and be positive.
keep on keeping on, you can do it
colin
Hello Chris. Hopefully that will be the case for both of us!
Brian
Hello everyone, my name is Bruce and I had a major stroke in the end of June,2020. It's been a rough year for nearly everyone. I have virtually no physical defects except a sturdy lack of motivation with fatigue. Not good since we were on the west eyewall of hurricane Sally. So sad to see all the very old live oak trees come down or break up. A mess needs to be cleaned up.
the real issue I want to put out here is a total reprogramming of my senses of smell and taste. This is baffling as it started maybe six weeks ago. First I noticed certain smells would over react in my nose , baking bread became almost unbearable, any sweet smelling things smelled awful. Most foods tastes almost the opposite of what you would expect. sweeet things always end up bitter, salty things were normalish, fatty and Starchy things make the back half of my mouth feel like it swells up a little at first contac I don't think it really does as I have no problem swallowing. All things considered I don't want to eat very much or often and have lost over 20 lbs. someone else in this forum must have had something like this. I'd like to know what Helped and how long it lasted.
Dear Bruce
my sense of taste changed instantly.
the first thing was how much i enjoyed hospital food.
i was a faddy eater before stroke.
next, certain foods tasted foul.
i kept thinking on the fact that stroke doesnt damage our functions, its just the messaging system.
a good diet is recommended, so i have concentrated on eating a good diet, having only a little booze and monitoring weight. In the early days i ensured i drank extra water.
the change of taste just eased. A few things i stopped eating, mainly spices especially curry. After about two years i stopped thinking about it.
Just a general caution......it is too easy to assume every medical matter is stroke related. So stand back and reconsider.
Colin
Dear Colin,
Yes, it would be wonderful if the damage can be mended. I just fear my recovery could be a long way even though my stroke wasn't a massive one. I will be keep positive and wish for the best. Thanks for your good wishes and encouragement, which mean a lot to me.
Chris
Hi Brian,
Sure thing.
Chris
Alan. I had a stroke in late April in my cerrebellum. I still have balance and fatigue problems. You are so lucky to be back at work. 6 Months later I amn still off and dont know when I will get back or even if I will get back. Are you driving. Anyone else with a cerrebellum stroke.