New member advice needed

[Mrs5K]

Hi Kirsty, I too have FND. I hope that they can explain it properly to you. In the meantime you could look up FND Hope /FND Action on internet.

It has been discussed previously on forum too. Have a look at some of these links.

Functional Neurological Disorder (FND)

I had my stroke on 30th November 2021 & made some good early progress with physio. Then one day my affected leg suddenly felt very heavy like a lead weight had been attached to it & I was no longer able to lift it. I spoke to my physio who felt it was an unusual stroke symptom. I felt like they didn’t believe me but when they tried lifting my leg they could feel the heaviness. A few weeks later they mentioned that it might be FND. It was explained to mean in terms that a stroke causes problem…

Stroke yet not stroke?

Hello Ann. I’m in hospital for tests and had MRI which confirms NOT a stroke but they think it could be FND - so your heads up helped me know a bit about it. Thanks. More things ahead…

Anyone else feel abandoned?

@Shorn I too have been diagnosed with FND bought on by my stroke apparently. Are they referring you to neurology? I have had no help with FND at all but it’s like everything it is a postcode lottery. I know they don’t have resources for everyone & everything but I often think if they helped more in the early stages some of us wouldn’t need the help in the latter stages. Interesting how they diagnosed you over a video consultation.

There are many others too. If you put FND into the search tool they will all come up for you to have a look through if you wish.