New boy

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I attended a zoom meeting on Monday this week where Alex and Anna introduced me to the ‘online community’. 2 questions: how does it link to ‘hubshare’ and can ‘primary/secondary stroke prevention’ be included
And Q3! Volunteers do not appear to be included in the definition. How does it link to the stroke group network

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Hi and Welcome @adrian_bodimeade

I say welcome even though you’ve had an ID for 7 years because you haven’t used it according to the stats on your profile - the software used for the forum has changed at least twice in that time

The major answer is nothing is integrated or even connected.

This platform stands as a isolated component of stroke association services. The community unrepresented. We have tried for some time to highlight the benefits of integration but so far we have not had being able to have any conversation

I don’t recognise hubshare so are you referring to the Online Stroke Activities Hub | Stroke Association ? If so I used to cross post information and was thanked for it but thenthose posts started being deleted without explanation. So the isolation is a imposed choice.

What do you mean by

?
Included in what?

The answer from my perspective as a member of the currently forming Stroke Improvement Group[1] would definitely be yes - just need to understand what your advocating & im sure something can be done even if not in this software.

Again I ask you included in what? And what do you mean by volunteers?

The people who donate their time here to supporting the community aren’t thanked at all as contributing anything. There’s no interface other than the feedback form between community and administration. I’d have to conclude there is no inclusion in anything - But maybe that isn’t what you meant?

If you want to Meet a bunch of woblers to just talk about life post stroke we meet every Thursday afternoon from 1:00 on Thus. from 1pm uk time on https://bit.ly/StrokeCafe - I suspect this afternoon’s conversation will have a lot of shared disbelief at American politics but they’ll be a moderate amount of affects of fatigue anxiety, cholesterol conspiracies, medication changes…

Caio
Simon sig

  1. I’m going to try and put the draft charter somewhere later today ↩︎

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