Saw my physio today and he has suggested either pregabalin or gabapentin to help with high tone and nerve painand stiffness in my affected side.
Anuone have any experience of these and whether there are any pitebtisl side effects to look out for.
Thanks in advance for any responses.
Cheers and a Happy and Healthy 2023 to you all and your loved ones
Thanks @Loshy im not sure of dose yet seeing my consultant on 18th so will learn more then. Im also waiting for a heart monitor (loop wire?) To be fitted as they havent ruled out AF as a potential of causing my stroke.
Thanks and hope to see you on one of bobbis zoom meets soon xx
Hi @TRFCANDY53 
I take pregabalin three times a day. Haven’t had any side effects 2 years in so hope you find a result!
Thanks @Loshy and @LeannePB
Reassuring words…
Uve had a 5 day monitor and the bubble test which showed nothing - im grateful they are carrying on investigating …
The care and attentionn here is really brilliant. Im lucky in the sense of where i live and the stroke support and expertise.
Another thing im very grateful for
Thanks a million @Loshy - how has 2023 started for you? Xx
You are amazing the way you keep bouncing back Lorraine - a real inspiration which i mean sincerely xx.
You are auch a caring selfless giving person that sonetimes you need to make sure you let others help you as much as you need.
We are all in this journey at different places but all wanting the same result…
Hopefully see you on Mondays zog call
Much love from me; Julie, Matthew and Harry xxx
Look forwardcto seeing you on Monday xx.
Andy
I was prescribed pregabalin years ago and still take one every night. The doctor said they are a general medicine that helps with anxiety and pains but I have been on them for a long time and I think they are a bit addictive. They help to relax me so I will continue to take them. Norma Jean.
Many thanks Norma Jean, thsts really helpful and much appreciated . X
Take good care
You are very welcome sorry I couldnt be more help. Norma Jean
Thamks Nigel. Very insightful and informative. Will discuss further with my medics when i see them.
Cheers
Andy
Thats a great help thanks
Thanks Nigel…
Really great to read about your walking and jogging too!!!
Very impressed.
Im thinking the medics need to explain this clearly to me…
@TRFCANDY53 I have nerve pain on the left side of my face, I was first given gabapentin but it didn’t work at all for me, I then went onto pregabalin, it worked although it did take quite a while to find the correct dose and times to take it, over time I have had to get the dose increased as the nerve pain came back. I’m now on 200mg three times a day which takes me to the maximum dose so I hope it continues to work, as a bonus I found it helps with my anxiety. When I first started it I slept a lot, now the only side affect I get is a bit of a dry mouth. Hope you find one of them helps you.
Hiya
Im on Pregablin. 200mg a day. I take it 50mg x 4 times a day. I get a little confused about what is classed as Neurological pain. I dont have pain but just a stiff foot and leg. Toes feel they have an elastic band around them and leg the same total tightness in muscle but its not painful although i do get pins and needles a little bit in arm and hand again not painful. Im not sure the pregablin helps that much to be honest. Total numbness down legnand foot. Wondering would gabapentin work better.
Hope everyone is ok. X
Many thanks for your reply Colin…taken 3 weeks for my gp practice to authorise me starting 75mg of pregabalin and they atill havent sorted the prescription atcthe pharmacy.
My physio and consultant are telling me it will help with myscle tightness wtc so i m hopeful they are right on this.
Appreciate you taking the time to reply…
Keep smiling
Andy
Fungers crossed for you Andy. Keep us posted on your progression.
Cheers Colin - i will buddy
Hope you are doing ok.
You ever join the zoom calls?
Day 1 of 75mg Pregabalin today in addition to usual meds…