My recovery after 3 years

Have you thought about keeping a diary/journal to document your daily activities, food and medication? Maybe something might show up by doing this?

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Hi, yes done that before, it doesn’t seem to be related to what I do. I have a fairly loose routine, I could be doing the same things every day at the same times and the symptoms would vary so much in intensity so much. Like my left leg will feel really stiff and painful some days, I feel like I’m dragging it. Yet some days it won’t feel as bad and it’s a lot easier to walk. Just don’t understand it, not sure anyone does. My left hand some days feels like a burning pain, which is cpsp, yet some days its not too bad. I feel like when I’m tired it all makes it worse too, but I struggle to manage the post stroke fatigue, like the other symptoms, it varies a lot from day to day, even if I take it really easy and relax, it will be heavy one day and not as bad the next.

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Maybe one day!
That damn stroke :frowning:

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Welcome @tonelee and thanks for sharing. Its tough but try to stay positive and be kind to your self. Like alot of the comments I am experiencing similar effects. Speech up and down. I work in a telephone based customer service job and have no idea if i can do my current role so may (probably will) need to change jobs. I am still here though so still lots to look forward too. I have lots of fatigue and sleep lots. Used to do loads of exercise, Crossfit, running and dont do any of that anymore but I have started walking football which I love. Stay strong and look for positives where you can. We will never be who we were so need to love who we have become.

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@tonelee hi well done for posting, fatigue is my biggest problem too I am a year behind you my stroke was May 23.
Unfortunately there seems to be no cure or set path to recovery does there?
I have a list of other problems similar to you, but you are the first I have heard mention dry eyes, which I also have.
I have progressed but it is so slow as to hardly notice but I’m convinced I have. So slow.
Just have to keep going even when it’s so very very hard to keep your chin up and be positive.
Sending very best wishes
Julie

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@HamPorkson
Absolutely!

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@tonelee, thank you for sharing how you have been affected by your stroke.
I too suffer extreme fatigue. I strggle with it as I was such a happy active person and stuggle to accept the person I have become. We were at a wedding on Sunday and gfor a brief moment I got a glimpse of the person I used to be and it felt so good. I was never made aware of any of the syptoms I have ended up with and I have felt that professionals treat you like they feel sorry for you and that just makes me so cross. I dont want sympathy. I just want someone to listen. I have has to tell off so many people since last November. To put their sympathy where the sun dont shine :face_with_monocle: .
I hate negativity. I am a positive person. :hugs:

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@manny38 I too am teaching myself Italian :pinched_fingers:, to distract me from all the stroke issues as they despress you.

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I’d love to hear how you’re gettin on Irene. I’m doing Duolinguo. Do most of the lessons with very few mistakes, but don’t feel capable of puttong my own sentences together. Can sometimes do a lesson a day then health problems arise and I miss a week!. I’m determined to keep my brain active even if my body fails me at times.

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I was also doing the same, then I had massive setback with fatigue so have not been on there for a while. Also it tires my eyes out. My best friend is Italian which also helps and has been amazing support to me regarding my stroke. Never had a bestie like him, he is amazing :heart_eyes:

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I am doing Spanish on Duolingo. It is slow going for me but every word I learn is a bonus.

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So wonderful to know that there are other duolingo freaks on here. I’m brushing up my poor swahili. I’ve always considered myself to be fluent but the app uses verb conjugation I’ve never come across!!

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You’re lucky to have a friend to practice speaking with - maybe? I speak fluent French so I thought it woul be easy, but tolearn it properly I neet an Italian setting where I am forced to listen and make up my own answers. That’s not knocking Duolingo, it’s a good base for learningto read.

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@Manny38
I have paused my learning for a bit to concentrate on making a stronger me regarding my knees. But will pick it back up. I am fortunate that my bestie is Italian :smiling_face_with_three_hearts: . I am blessed as he is the most amazing person. Italians are a culture on a different level :heart_eyes: Good luck with your learning :four_leaf_clover:

Yes they are differen’t aren’t they. I have French friends now but when I worked for NATO in Belgium a long time ago I knew many Italians. Lovely people. I was looking forward to going to Italy on a teaching week but unfortunately had my stroke the year before I was going. Couldn’t travel that far now so I’ll have to makedo with Duolingo.

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