My determination is shrinking

Sometimes its okay not yo feel okay.

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Thanks Ann,
Lawn all cut with new electric battery mower next time il get out inn the lawn and do some pushing it around my wife is well satisfied with my choice of battery operated mower.
The neighbours passing was a blessing had a chat with his widow he was nearly 90 and in poor health.
The pain is rapidly becoming the norm and must be dealt with until the pain free episodes become the exception.

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Fantastic. Glad the mower is working out well & a happy wife is always good :grinning_face:

Yes, sadly we do have to get on with our pain. I really hope you have more pain free days than painful ones.

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mrfrederickson-- Thought of one other thing. You may think it’s hairbrained and impractical. But Dr. Laura on the radio talks a lot about the use of hypnosis to deal with chronic pain. She used to do it for her patients when she was in practice. Just an idea. :heart: Jeanne

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Thanks Ann today is a better one left foot not without pain but not on the scale of the last month, I was up and dressed ready to make breakfast before my wife got back with walking the dog. Onwards an upward.
Sleep was good, weird dreams of times when I travelled by train into work something I may do again only as an outing once independence has returned.

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I’m with you on the Gabapentin. All it succeeded in doing was turning me into a Zombie. Has your GP suggested anything else for you. I’m taking Pregabalin at the moment (the jury’s still out on that). Some people find Amitriptyline useful. Another possible might be acupuncture. Could a physiotherapist help? Everything is worth a try, but it does get difficult to stay focused as time goes on. I’m 11 years down the line and never imagined I’d still be struggling to do a simple thing like walking!

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Hi minnnieB
I’m sorry you are not walking again after such a long time, is that fluid walking or any walking?

I’ve had pregabalin, vile stuff hard to come off
Also used amiltryptoline and norotryptaline, no use at all
Finally tried deloxotine not use too.
Gabapentine was the last try and more trouble than worth

I’m waiting on the sensory cortex to come goo but who knows how much time is needed there.
Eleven years by looking at fellow survivors should have been sufficient with the proper rehab to get some quality of life

I’m nearly five years in recovery and can walk of sorts and lift my left arm only at the shoulder plus vision is good enough to be put forward for a driving assessment.
Good luck on your recovery, how severe was your stroke?

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I lost the use of my right arm and leg for quite a while. I can walk with a stick when out of the house, but not for long distances (spasticity takes over and the muscles stop working). Without a natural arm-swing walking any distance is hard to do. I haven’t let it stop me leading a normal(ish) life though. I do go to the gym, aquarobics, choir practice, amateur dramatics and holidays, but I know my limitations. The spasticity and CPSP hinder me from progressing much more than I have come so far.

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They are your feelings, and you ae allowed to have them, I’m sure we can all empathise, I’m nearly a year in, and still not on an even keel mentally very up and down, But I do know it really is ‘use it or lose it’ so all the exercises are boring but worth it, And I celebrate any wins no matter how small, I’ve had to learn the value of setting achievable goals, they aren’t cheating, they are stepping stones to bigger goals

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Your disability is the other side to me , mine is the left leg and arm, after nearly four years I have a disability that means a stick is needed to walk and the arm hangs floppy at my side limiting how long I can drag it with me if out walking fatigue is a big problem most days and I nap after lunch or any big exercise sessions, I can get in and out of most cars, have been on holidays in the uk and next week will be going to a Squeeze concert in the evening with my wife.
Seein how I was in the month following my stroke life is very much better not back to my previous life but a reasonable state of being with the possibility of better to come in the next few years

For now here is stand defiantly challenging the stroke that brought me down.

Next week outing to a squeeze concert

Next year twin ride to Manchester

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Good to hear things are a bit better today. Hope your wife enjoyed her breakfast. I often have weurd dreams these days but at least it meand I am sleeping :slightly_smiling_face:

I look forward to hearing about your next train journey, whenever it may be.

Best wishes

Ann

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Looking good @mrfrederickson, stay defiant. I’m a big fan of Squeeze, I hope you will post a review :slight_smile:

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Mark - I am not sure why it did not occur to me before, but now I am reminded again with you standing on a patch of grass.

Can you guess what I am going to suggest?

I really do believe it is something we all should do, though not all of us have access to a patch of turf - walk bare foot on the grass whenever you can.

You will know about this from posts on this very forum about Earthing.
Let Mother Earth heal you!!

Earthing benefits enz

Give it a go and let us know what you think.

I have “Take me I’m yours” by Squeeze on 7" and also “Cool for Cats” as well as their Greatest Hits on CD.
.
I like squeeze but lost touch after a while. I later learned that the brilliant Paul Carrack sang lead having relaced the equally brilliant Yools Holland. Nice memories :slight_smile:

Enjoy the concert :slight_smile:

Should not forget Difford and Tilbrook who are equally billiant.

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Earthing puts out the fire (inflammation). Fires start because our ponies (mitochondria) are failing. Our energy (ATP) is limited. Gaia (negatively charged) gives us free electrons (any day of the week) that will start to put out the fire. I Earth every day. Then comes healing from the Sun. (our mitochondria are powered by light). The great disconnect is mankind’s biggest blunder. Don’t deny your origin. Next, if we could only get all the minerals our body needs!

Roland

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So true!

I don’t have many regrets in life, but one possible regret is not taking an outdoors job :frowning:

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Funny you should say that as my mother’s parents were farmers and in my late teens to early thirties I spent every free day on their small dairy farm helping working with th cows and planting crops and harvesting hay , the best time of my life but alas the farm wasn’t big enough to support them and me so I went into electronics and computers ultimately resulting in a very stressful cyber security role. Even being a part time gamekeeper wasn’t enough to reduce my risk of stress and stroke.
When my son said he wanted to do horticulture and gardening instead of university I said great plan. He has being doing his apprenticeship and never regretted the debt and the stress, followed his great grandfathers who was a London park keeper. So proud

I’m equally proud of my morning efforts in cleaning th car alloy wheels

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I’m undergoing some new jab that reduces chloresterol and links to glucose as a result of high cholesterol in the blood, I’ve had two courses of this injection and next is in august so giving it a go

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Thanks for the support Ann, I celebrated life by cleaning my alloys on our Kia , nothing like dragging oneself eight times round a car in a wheelchair on the driveway all achievable in under an hour and one of my favourite pastimes

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Good luck with that and keep me posted, I’d love to hear if it works for you🙂 Do I take it you don’t need to take statins while on these injections?

Lorraine

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These injections are on top of my current medications

It is understood that this new drug reduces cholesterol which has a direct affect on glucose level so until my next blood test after the current course of treatment

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