I’m on here now and then expressing worry, stress and anger - mainly ‘thanks’ to the NHS who’ve let my mum down repeatedly. But I wanted to share some positive news…
My mum is now moving her ‘stroke leg’ 10 months after her massive stroke. It happened during a visit by her NHS OT and physio on Tuesday. They were flabbergasted as they were on their last visit to her, thinking she wasn’t improving. A local rehab unit also removed her from their register on the same basis.
She’s also stable in regards to infections - we’re paying for private respiratory physio (former clinical lead at the stroke units in the local NHS Trust) who has given us a new perspective on, and support for, her lung health. Something that the stroke unit failed to help with.
A friend who’s a senior radiology nurse suggested it when we had a chat about aspiration pneumonia. Also, people who haven’t had a stroke but suffer with the same issues have resp physiotherapy. I’ve now joined forums for other disabilities such as cerebral palsy to see what other people are doing.
You must be so happy. I had been told I would not walk again. I remember the first time I moved my leg. At the time I would continually send messages to my leg to move. One day it did - one inch off the bed. It was a fantastic feeling - one that most people will not experience and will not want to have to experience. What made it better is that my mother was visiting at the time so I said to her “look what I can do” - one inch up, one inch down. She then got just as excited.
Hopefully the physios will now follow up and get your mother on her feet.
Janet
@EMG72 thats great to hear. You must all be thrilled to see this progress. I really hope she now gets the physio & treatment she needs to help her continue progressing.