Mobility aid for one side paralysed after a stroke

Hi All,

My very close near and dear one suffered a major stroke a year ago and has had right side paralysed since then. Physio did help to some extent in the start but after 6 months of so my dear one has given up and they are completely on bed and on wheel chair for mobility. They need 24 * 7 care as a result and are always in a depressed mode as they were very active before the stroke episode.

I am wondering if someone knows about a mobility aid / apparatus or a mobility aid website that sells such an aid which can possibly allow some level of movement independently. This could perhaps help gain them some confidence and they again get some interest in getting physio / alternative treatment done to get some strength in the right hand and leg.

Any help / guidance will be highly appreciated. Thanks in advance.

Kind regards,

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I can’t give an immediate and fast answer but I am right side disabled.
I have in the last four years been learning to deal with this.

For a start if you have access to a physio ask for instruction in how to do something called a ā€˜transfer’. They will understand.

That will get them able to move unaided from chair to bed, from bed to commode and so on.

There is much more but progress in small increments can be very effective.

I still have a long way to go but have managed to regain a little independence.

best wishes

keep on keepin on
:writing_hand: :grinning_face_with_smiling_eyes: :+1:

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Hello @anuptosh and welcome.

A quick question.
If physio helped and was done for 6 months, why did your dear one give up?

Stroke recovery is or can be a slow process to start with but once you get going improvements can be quicker. Perhaps your dear one is looking for a quick return which is not always possible with stroke recovery.

Also, returns might depend on input a desire. If your dear one is not able to or willing to put effort in, the return will not be there. On the other hand, work, accept progress, reward yourself and recognise your achievements and you will make progress.

I wonder if desire and self belief rather than equipment might be the answer - a pep talk from yourself or a psychologist or the physio.

Many people on this forum continue to recover years after they have had a stroke.

I wish you and your dear one all the best.

Namaste|
:pray:

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Hi @anuptosh and welcome to the forum

This suggestion may be too far out there for your partner to consider. But have you thought about trying a gym? The reason I suggest it is that they have many seated machines for upper and lower body strength training. There are personal trainers to assist and advise. But its the machines themselves which may be a boon to your partner. Building up and keeping the good side strong and toned. Which will be better able to support, assist and control the stroke side. It will also give that side a chance learn from the good sides actions through mirroring. It’s worth a shot if you can get them to a gym.

Alternatively there are recumbent exercise bikes which are good for disabled and elderly, which you could consider for at home. Some work the arms as well as legs.

This is just one quick example:

The trouble is the good side is going to waste because of the stroke side paralyses, weakening the body further, thus wasting all the good work that had been done. It will be a long slow slog but with determination, drive and motivation they could get to a much more mobile state than they are right now.

And as @ManjiB has already mentioned, your loved could benefit from talking to their doctor before they drop any deeper into depression. Much of which is the lack of physical stimulation due to their immobility.

Lorraine

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I was discharged from hospital in October, wheelchair bound, left arm and leg useless, progressed to ā€œwalkingā€ with a wheeled zimmer and now can ā€œwalkā€ with a single stick. I do exercises to strengthen my left leg, see a private physio every 10 days and hospital physio visits every 2 weeks. It is my intention to progress as far as my illness will allow. We don’t see much progress at first, but it comes if we give it a chance..

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Hi @anuptosh and welcome to the community.

Maybe try websites for companies like careco & ableworld they do mobility aids and they will be able to advise on the best thing for your circumstances.

As @Bobbi has said he is right side paralysed but if I recall he bought a rollator early on and this has helped him regain some mobility.

As @ManjiB says stroke recovery is a long road & you have to be prepared to stick with it. I think the starting point may be to get some help with the depression as that might then open them up to the possibility of retrying physio.

Best wishes

Ann

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Hi @anuptosh

Welcome to the community, I’m sorry to hear that someone close to you has had a stroke.

We have some information on our website about mobility aids at home which might be helpful for you to have a read over.

I hope you’ll find this community helpful, there is a wealth of knowledge here from our members. If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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Many thanks @Bobbi , @ManjiB , Emeraldeyes , Dexter, Mrs5K, Anna_moderator for your time and extremely valuable suggestions and guidance. Really appreciate it.

Just to add on to what I had mentioned earlier, my dear one had a stroke on the left side resulting in speech impairment, forgetfulness and extreme stubbornness after 6 months or so. Their situation now is that they don’t allow anyone to touch their right hand and leg for any exercise whatsoever. If touched, they start screaming and yelling and are not ready to listen to us.

Basically, as pointed out by @ManjiB , my dear one has kind of lost the desire and self belief to work towards a recovery process. And we tend not to force them as they get depressed very quickly. Also, in doing so we don’t want their neuro condition to worsen.

Hence I have been looking for an advanced walking aid / machine using which they could get some confidence and perhaps agree to restart the physio sessions. Such an aid should really only need them to use the left side of the body, looks like more of an aspiration than a reality as I haven’t been to identify one such advanced walking aid.

Any further guidance and suggestion will be highly appreciated.

Kind regards,

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For me there are many unknowns to try to give specific help as many different factors come into this.

For us as carers, despite Mum having had a severe stroke and corresponding impact: right side paralysis, aphasia, cognitive issues and vascular dementia, she had the desire, will and zest for life. This was evident to us as her family even as she lay in bed in hospital with the doctors telling us she was not going to make it and this (her lying in bed) was the best we can expect.

Based on the pre-stroke Mum (healthy, active, independent and people-person in her late 80s) we felt this is what she still wanted. So we spoke with her or talked to her as she couldn’t really do anything as she was unable to speak and had limited mobility. We tried the blink once for yes and twice for no etc. etc. but none of that worked. But we knew she wanted to carry on and so we determined to do the best we could for her. In the early days all we did was sit her out in a riser recliner chair, or wheelchair (in the spring/summer) and take her out to feel the sun, smell the flowers and feel the air on her face in the hospital garden. She was in hospital for about three and a half months because they tried to discharge her but failed as she picked up infections and so had to stay in.

We talked to her all the time and said to her it is up to her what she wants to do. We will help as much we we can, but she has to decide what she wants to do. That’s all we did. We made sure she knew we were there for her and we will support her as best as we can.

When she was discharged from hospital she was taken home, but the home was not ready or prepared for someone in her condition i.e. home adaptations had not been done because they (the system did not believe it was warranted as Mum was unlikely to ā€œneedā€ them). This meant Mum was essentially a ā€œprisonerā€ locked inside her room. Once inside she could not be taken out easily as the door was not wide enough and she had been taken in with difficulty. So again, all we could do was sit her out in the chair and transfer to bed. This went on for a while and we tried to get home adapted so she can be released from her ā€œcellā€. As you can imagine, this dragged on but Mum insisted she was going to stick around and so eventually, we managed to get the door widened and a ramp put in so she can be taken in and out of the house. This was a huge improvement but it happened in the winter time and so she was still housebound.

So whilst in the riser recliner chair, we massaged her limbs, tilted the chair and tried to improve her posture. So this kept Mum strong and she never showed any sign of depression, or refused to cooperate. The only thing she refused was oral hygiene because a nurse in the hospital had ā€œhurtā€ her whilst aggressively trying to clean her mouth. Just for the record, despite refusal to do oral hygiene she didn’t have problems with her mouth as the body started to self-clean the mouth. Much, much later we managed to get her to accept oral hygiene and today we brush her teeth and she drinks water but is nil-by-mouth for food and other stuff.

So the activities in the chair as well as sitting on the edge of the bed kept her strong and ā€œlooseā€. Mum is petite and so all the gadgets on the market that are for adults are too big for her - even her chair is too big for her and we have to pad it with pillows and so we have to improvise. We used the riser recliner to help Mum to bear her own weight by raising the chair to max tilt and then supporting her by hugging her as she stood. In so doing she was able to support her weight but only on her good (non-paralysed leg) because the paralysed leg still needed work before it would reach the floor. But just this act of her standing on her one leg was enough to boost her endorphins or whatever it is that happens when we exercise. So we kept doing this and she kept getting stronger and eventually her paralysed leg started to loosen and today that leg can also be straightened and she has control of it i.e. the brain and nervous system etc are working so that if you ask her to straighten that leg she does. Sadly, and it’s a bit of a long story, but her left leg (non-paralysed) has now gone ā€œfrozenā€ and so we are currently working on that.

The point of this rather long winded note is that it is up to the individual whether or not they succeed and how much they succeed. Mum never gave up, never will despite the many knock backs and she started from zero having led a very active life.

There have been no aids that have helped her as they don’t exist for someone of her size or at least if they do no one has shown them to us. Her sheer will power and desire has got her where she is. She is in her mid 90s and never once gave up. She will go on until she drops and I guess that is what makes her different and a pleasure to care for. It is so easy to help someone who wants to be helped and who will allow you to help them. Yes, she gets frustrated at times and throws tantrums, but we just talk about it and remind her that it is her choice - what does she want?

Probably of not much use to you, but perhaps if you can share this with your dear one i.e. there is a person here on this forum who probably started from a worse position (age, severity, lack of help etc. etc.) who is enjoying life and will likely continue to do so and may well recover to their former self - that is no exaggeration. It’s no brag, just fact :slight_smile:

:pray:

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Thanks a lot @ManjiB to hear how your Mum’s condition has gradually improved over the period starting from her stroke till date. Really descriptive and inspiring to read and definitely motivates me to keep trying and try to persuade my dear one with your Mum’s story.

Absolutely agreed that the desire to bounce back stronger is one of the biggest motivation that helps any stroke patient to get better gradually. This is what is missing in my dear one’s situation and we will keep trying harder to boost my dear one’s spirits.

Thanks a lot again. :folded_hands:

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Hello, I’m a bit late to the discussion…but maybe better late than never. I had a stroke getting on for four years ago. In the morning I walked through the hilly country around Ravello, by the evening I was in hospital unable to move the right side of my body at all. I ( and my poor husband) went through months and years of me being depressed and angry. I found two things most difficult. The overwhelming fatigue, some weeks I spent more than half the time in bed. And also the boredom. My body was trapped and immobile, but my mind was still active. It seemed so cruel to lose the use of both my arm and my leg. I couldn’t walk…but I couldn’t pass the time with knitting or sewing….or writing or ANYTHING, it felt like.

Here’s what helped…I could still read. That was a huge bonus. I used a kindle, as it’s easier to manage one handed, and I have a big bean bag cushion to support it. My iPad is on the cushion right now. I could watch tv. We are lucky to live in a village with a really supportive community. Our house became a meeting point…and to this day the door is open and friends walk in, I don’t have to struggle to answer the door!

I was a musician and singer. I lost my voice, and you cannot play an instrument one handed. I found the one handed musician society (!) through a Google search, hired an instrument to start with and then had mine converted. I can still play with my ensemble. I joined a choir. At first I couldn’t sing at all and fell asleep in my wheelchair.

I’ve got more movement through having regular massages to try to free up spastic muscles. I have just managed to be able to straighten my right arm completely .

I’m almost of a mind not to send this…I can imagine how it sounds…but the thing is…it takes so much time, and it takes acceptance. We only have one life. I didn’t want to spend the rest of mine trapped by my body. I guess the bottom line is to be patient. It all takes forever and the small changes are so small they can feel imperceptible. But they come.

For the carer I would say, keep a bit of life going for yourself. My husband played with his band weekly and a friend came to sit with me. For the stroke survivor, be kind to yourself. Wallow in the anger for a while, and don’t beat yourself up for it…but equally spend some time thinking about what you can do. Very old fashioned, but maybe it comes down to counting your blessings!

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@Amethyst59 Hi & welcome. You’re never too late to join a discussion. Thank you for sharing your story. I have found it truly inspirational and it will certainly help me count my blessings on those days when I am struggling.

It’s good to hear that, despite the severity of your stroke, you have been able to return to some of the things you love albeit in an adapted way.

Best wishes

Ann

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Hello and welcome to the forum.

Thank you for sharing your experience and I am so glad you chose to send and believe me it’s not how you think it might sound.

On this forum we love to hear from everyone and when people share their experiences it helps others. I am sure no one on this forum is going to judge and think badly of your post.

Much appreciated and please do share anything else you feel might inspire others!

Clearly this is not the case as you have discovered :slight_smile:
Def Leppard (an English Rock band from Sheffield) famously had a one armed drummer. He came back after losing his left arm in a car crash. True, not quite the same as being a stroke survivor, but one handed nevertheless :slight_smile:

Namaste|
:pray:

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Maybe I should take up the drums!!

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Hi @Amethyst59

Welcome to the community, I’m sorry to hear about your stroke and all the difficulties that has brought for you. It sounds like you’ve done amazing though and I’m sure your story will help inspire other members.

I hope you’ll find this space helpful, if you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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Thank you! I feel royally welcomed, it was lovely to get responses so quickly.

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