Mixed emotions - A Carers view

Today (actually yesterday as I write this) started off like most days do in my life as a full-time carer for someone who requires full assistance 24/7.

Then as the day progressed I noticed I had an unusually large number of messages on my phone. Very odd I thought to myself, I wonder what they might be. But I was in no rush to check as I had carer duties to perform and personal chores to do which take priority over any phone messages. Once the tasks had been done, I decided to check the messages and I was very surprised to see the large volume of messages were from a number that used to belong to a cousin who had sadly passed away a couple of years ago. I assumed it must be a family member who had decided to contact me using the old number.

I opened the messages and was delighted to see my cousins wife and daughter at a function to mark the opening of a communal garden that my cousin had helped to create. The committee had decided to honour my cousins memory and put up a plaque at the entry gate of the garden dedicating the garden to my cousins memory. There were many photographs and videos and it was all so wonderful and cheered me up immensely. He was one of if not the favourite cousin and it was wonderful to see all these people loved him just as much as I (and my family) did.

Seeing his wife and daughters, I decided to reply and see if they would respond - I had previously tried to contact them on this number but had not received a reply. With over two years lapsed and not having seen them since I am “self-isolating” in my role as carer I have lost touch with many friends and relatives. This seems to happen when one becomes ill or looks after someone who has become ill I find it a bit strange, but perhaps, I myself may be guilty of the same?

Well after a few hours the phone rang and lo and behold it was my sister-in-law (my cousins wife) ringing using my cousins phone. How wonderful to finally get to chat to her. We had a chat and tried to engage Mum but Mum was too drowsy and so we agreed to try again. Having had a nice catch-up we agreed to keep in touch. Right now I was on an emotional high and felt Mum would be too when I explained to her what had happened. My cousin was also one of her favourite nephews :slight_smile:

Whilst all this was going on, on the landline (yes, we still have a landline and we still use it) there was a missed call. Having checked the number, it was unknown to us and so we left it. Then a few hours later the landline phone rang again and this time it was someone we knew. This call was from another of my relatives who we had lost contact with for the same reason as mentioned above. But immediately we knew it was going to be bad news because the caller was one of my brother-in-laws (in this case, I mean husband of my cousin sister). Sure enough, he informed us my cousin sister had sadly passed away this morning after some complications. This was very bad news as this was another one of my favourite cousins who had such a lovely smile and she would cheer us up every time we saw her. Alas, the realisation dawned that we would never see that lovely smile again as she was no longer with us. So from an emotional high, we are down to an emotional low.

The sad thing about the second call is that my cousin was a stroke survivor and we never got to see her after she had the stroke because we were self-isolating (effectively six years and counting). Her stroke was similar to my Mum’s stroke but possibly less severe and obviously she was a lot younger. Perhaps like us, they also chose to “self-isolate” and when we enquired if we could visit, we were asked not to. All very sad.

All this in one day.

I started writing this saying it’s about mixed emotions and it is. Right now I am all over the place. There is sadness, anger, frustration and even happiness. Happiness coming from my Mum who defies all odds and continues to make progress, slow and steady. At this rate, she will outlive everyone !! So many family members have been lost in the six years since Mum was struck down with her stroke and many of them we did not get to see. How strange life is.

I don’t know what use if any this post will be to anyone reading it, but I felt I had to get these thoughts out of my system and if they resonate with anyone, all well and good, if not, no matter. I guess it helps to keep me going. Sometimes, as a carer I have to try and keep my emotions in check and though I try, it isn’t always easy and I do worry that one day, I might regret an action that may arise due to my inability to keep my emotions in check, challenging as the environment might be.

In conclusion, the day that started off like most days do in my life as a full-time carer for someone who requires full assistance 24/7 turned out to be like no other!

I wonder what tomorrow has in store …

I guess I should resume my care duties.

Until the next time.

Namaste|
:pray:

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You and I have communicated many times. It is the middle of the night here and I intend to get back to bed soon so I will be brief.

I feel, right or wrong, that this forum is a tool which can be used as a means to deal with stroke and its effects. It has worked well for me though on occasions it has thrown up challenges of its own.

At times everyone affected by stroke and its after effects needs to find something to grab hold of while trying to navigate the events thrown up by the experience.

@ManjiB I feel you are making good use of what is available here.

Answers do not always come. Sometimes there is a need to explore the territory. When one starts to discover where one is then the answers are revealed.

How cryptic? I cannot say.

May your search be rewarding.

Light is dawning but I must get back to bed.

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Good night, Night Owl :slight_smile:

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@ManjiB what an emotional roller coaster of a day you had. So sorry to hear of the loss of your loved one. I hope that you take the time you need to grieve for your loss.

I love that your cousin helped create a communal garden & that their memory will live on through this. I bet you are all very proud.

Life as a carer often means you neglect yourself & others around you. It is so easy to lose touch and people so tend to drift away if it becomes difficult to find time to see / speak to them. I know my mum became very isolated as my dad’s carer & I worried that once he had passed she would be very lonely. I needn’t have worried as she found a new lease of life & acquired a very good friend in the process.

I think you are amazing. You have made some sacrifices but I feel you are happy to have done so as your mum means so mu h to you.

You are an inspiration to many.

Thank you

Ann x

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Thanks for the kind words Ann - they mean a lot :slight_smile:

There are things that keep us going and one of them is the desire to help others through our experiences.

I really wish there was a way I could “bottle” what Mum has achieved and continues to achieve - I repeat here a message I am trying to get through to others - she has not plateaued and she will NEVER plateau.

Everyday we see the desire to get stronger, to get the help she needs and to not give up UNTIL she has got her wish. I am amazed (though I should not be, knowing her as I do) how she has the stamina to keep going. Her lung capacity and will power are something else. She can continue calling, almost as if on auto-pilot until someone comes to her aid.

At times during the night when we are half asleep, we hear this calling and our bodies are unwilling and so we don’t respond, but the calling continues and continues until she is seen to.

As we all know the experts gave her no chance and we were even told to grieve for her because the “shell” we were looking at was not our Mum. Just as well we didn’t listen and just as well “Mum knows best” - and she does.

On the subject of not plateauing, and I will do a separate post on this as I feel it may help others, tomorrow we take delivery of a Vibration board!!! Yes, for Mum there are NO BARRIERS and she will keep going, rather like a certain well known battery manufacturers bunny rabbit :slight_smile:

Thanks to you and everyone who continues to support and encourage us :slight_smile:
:pray:

Going for the 110%.

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I think your whole family are amazing & your mum is clearly a very very determined lady & whilst she can’t communicate easily she knows how to get her point / needs across.

Here’s to that 110%

Ann x

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I’m so sorry to here of your lose Manjib, and I’m at a loss for words :people_hugging:
I think we have reached that age in life where such phone calls become more common. My husband had one such call a few nights from a cousin to say her husband had died, we were only at their wedding 3 years ago, it’s so hard to believe.

We push through the pain of loss, taking it one day at a time. You have good memories of them both to keep alive in your heart and take comfort from. And your mum will carry you all through your grief in her sing song voice :slightly_smiling_face:

Namaste Manjib :folded_hands: :people_hugging:

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Thanks Lorraine. It is true that these phone calls may become more common - it is a part of the circle of life :slight_smile:

It was not so long ago that we we getting invitations from these same people to attend weddings of their children (our nephews and nieces/ grandchildren) and these have dried up until the next generation kicks in :slight_smile:

For me, the words in the song “Memories don’t leave like people do, they always stay with you” is always something I think of. I have many memories and always will.

:pray:

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@ManjiB

So sorry for you and your families loss, heartfelt prayers and thoughts are with you all. I feel that your mother is a beacon of strength and continues to be with you at her side. Together you will shine of each other. It has been a very hard few days for yourself and want to remind you of your inner strength as a career and to never feel hard on yourself!, I am meaning that this platform allows us all to vent frustrations release anger or just let feelings out. Please remember to take time for yourself recharge easier said than done I know,
Take solace in the communal garden and memories from that. I often go in the garden just relieve my frustrations listen to the birds nature. Wishing yourself and your mum peace and time to process your loss thinking off you both virtual hugs

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Thanks Marnie - I appreciate your kind words and thoughts.
This forum is indeed a good place to come to take time out and catch some breath.

Take care, and virtual hugs back :people_hugging:

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@ManjiB,

Sorry for your loss. Wishing you and your family much strength.

Keep chasing that 110%! We all should be doing just that. We must not accept that today is how we will be tomorrow.

Take care.

Justin

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Thank you Justin - I appreciate your sentiments.

I am glad you agree we can all achieve, or at least try to achieve more than we give ourselves credit for. If you don’t try, you don’t get and that pretty much says it in a nutshell :slight_smile:

We in this household simply do not accept how we are today we will be tomorrow :slight_smile:

:pray:

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