Lots of stroke survivors will relate to this

from age 16 and iam now 64 1/"2 ie 6 month away from retirement i have a stroke , no problem i think just get sorted then crack on with life , not quite that simple however to be fair i have never had a stroke before so how would i know ? i find the worst bit is all the people who know and say are you alright , are you alright , are you alright , ? human nature i guess and the strange thing is i say yes !! again human nature , one thing i learn after my stroke is that a form of life is out there other that working for example birds in trees , my cat we is no doubt older than me !! sun that shines , rain that falls , and walking many miles in the rain just for a coffee then walking home again to see the cat who dont give a dam about anything at all - iam starting to love it !!

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I thought I’d just be able to crack on with life again after my stroke too. Little did I realise how long recovery would take. However, I’ve adapted and am trying to make the best of my lot.

I don’t get upset by people saying I’m doing great or looking well as I try not to dwell on all the issues I have daily. After all unless they’ve been there they couldn’t know what it feels like anymore than we understand an illness we haven’t ha.

Glad you’re starting to love it.

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At times like these, I like to think the best thing one can do is ā€œEmbrace everything that life throws at youā€. You can’t go wrong with that :slight_smile: Looks like you’re on your way to doing just that :slight_smile:

I love that you walk in the rain - I find that very therapeutic :slight_smile:

Take care.
:pray:

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i walk in the rain and the snow and the wind and the sun and the cold and just feel so high that iam able to do so , , :grinning_face:

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Kind people ask me how I am and I find it difficult to answer….. I usually say ā€˜fine’ but I’m not. I’d love to be able to walk.

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@andrew90 fair dos. Embrace life and what you can do with it. Have a few laughs.

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@andrew90 so well put, this thing comes out of nowhere turns your whole life on it’s head. You think it’ll be the same as before but it becomes this new normal that was not yours before , one you certainly didn’t want or ask for but was given.

I think you have captured so many of our thoughts in one fell swoop. Read this and thought yep it was a kick that hurt but when others highlight their issues brings me back to, could’ve been worse so get on with it and make the best of every day in life.

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When i came out of hospital after only about 48 hours i thought how lucky i was so i had 8 weeks off work and went back thinking my feet would get better but they got worse now iam off work again , i hate this saying so much but it is what it is ! doctor says get on with it so i do and thats that

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Completely understand. :sad_but_relieved_face:.

My husband would love to be able to walk again but at the moment he is desperate for his right (dominant) hand to work. He was such a hands on person, doing DIY, driving, motorbiking, shooting, his whole working life he used his hands. He gets terribly frustrated trying to send a short text with his left hand, using his phone, using a cash machine and 101 other things. If I go out I have to make sure I leave his cup, spoon, filled kettle, coffee where he can reach them, just so he can make a drink. I have to remember to unlock the front door in case he has a visitor as he cannot unlock it with his left hand. I have to leave the remote tv control where he can reach it.

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My husband has to do that for me. I’m sure yours is every bit as appreciative as I am.

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Yes, he thanks me every night when he goes to bed.
I had a friend visit us tonight. Her husband has Parkinsons so needs as much help as my husband. She is much younger than me and is exhausted like myself. Social Services told her she must have a month of every year! Some hopes here!

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I know it isn’t easy but what social services have told your friend is good advice. If at all possible you should try and get at least a little bit of time away so that you can rest and recharge your batteries and maybe even look at some sort of respite care for a week so you can have some time off. If you burn yourself out then ultimately you won’t be able to help your husband. as I said I know it isn’t as easy as it sounds but you should at least try and get away for coffee with friends or something as a minimum.

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Hi Trisha

sending you a hug, not easy is it? I find meeting up with other people who are coping with a loved one following stroke quite helpful, nobody quite understands what us carers are going through like another carer.

For your husband, get him assessed for this trial, looks extremely promising, my husband isn’t eligible cos in rehab.

https://www.bbc.co.uk/news/articles/cn87gj9k301oO

Thank you Dee but the link doesn’t work.

I don’t know why it doesn’t work, maybe need to

Log in? Google BBC and NHS Triceps trial

NHS doing a clinical trial called ā€œTricepsā€ to help rehabilitate upper limb after stroke. Wearable devices in ear (vagus nerve) and medial Nerve (wrist). Good results so far.

Dee - I think there is an extra character in the URL link you posted.

This one should work.
New ā€˜at home’ tech trialled to help stroke survivors regain movement - BBC News

@Trisha2 - try the above link to read the article.
Also, the below article is on the stroke association website and has details about volunteering for the trial.

Research Participants Needed: Investigating whether Transcutaneous Vagus Nerve Stimulation (TVNS) with rehabilitation therapy can improve arm function in patients with arm weakness after a stroke | Stroke Association

Finally we discussed this in another thread which you may find of interest.

Good luck and hope you get enrolled :slight_smile:

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Thank you. I have asked for my husband to be considered for the trial a few days ago. Will keep you posted.

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My wife is the 5m stroke survivor. She recovered very fast but has a few relatively minor issues, but still they stop or inhibit her from doing some things. Life has changed.

After the initial euphoria of coming through a very serious stroke and operation comes the realisation that full recovery is unlikely and a slow process. So getting on with life doing as much as you can and a bit more is the way.

The ā€˜are you alright’ question no longer gets a positive response! That response led some to assume it wasn’t that serious, even ā€˜I thought it was just a TIA’. You wonder what they were expecting! So they get the full answer now!

We have so much to be thankful for and get on with all we can. I hope your recover goes well, there will be hiccups, in our case adapting to a plethora of new and existing meds, but crack on regardless!

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That was a waste of time! Heard today my husband is not eligible for the TRICEPS trial as it is not for people who had haemorrhagic strokes.

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Oh dear!

I’m sorry about that.
I’ve just checked the qualifying criteria and it does say it is for adult ischaemic stroke survivors.
I should have checked!