Life after a TIA

Hi,

I had a TIA a couple of weeks ago eventually diagnosed via an MRI at a local ‘Brain Health’ clinic. I am 57. All a bit of a shock. Knew I had hight BP but not really the cholesterol.

I have found it difficult to talk to any health professionals really - my GP only seems to do telephone appts now and not until a couple of weeks. I am taking my blood pressure few times a day which I have to pass along.

I have been work (at home, fairly sedentary) but I have given in today and will probably take this week off. Am tired and and a bit emotional.

Can I ask anyone else who has had a TIA if they continued working or took some time? Is there guidance about time off or just case by case?

In terms of activity - again, is it just about listening to your own body? I’ve been walking and gardening but would like to maybe go swimming or take a gentle exercise class - is this too soon.

Would be lovely to hear other experiences.
Paula

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Sorry you’ve had cause to join us. Fatigue and emotional lability are common after stroke and TIA. You are right to listen to your body. if you push too hard you may suffer later.
Hopefully you are now on the right meds to minimise the risk of a full stroke and will get the information you need as to the cause.
I would say don’t worry too much as that can ruin your life as much as a stroke would do.

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Hi @PaulaFitz and welcome to the community, the club no one ever wants to join :people_hugging: Do I take it that you don’t have any deficits such as brain fog, fatigue, cognitive impairment, weakness down one side, visual issues, balance issues, headache/pressure or anything else? These are some of the issues you can experience with TIA as with stroke. The two are essentially the same and a TIA is like a warning or threat as there is still the risk of a full on stroke. But now that you are, presumably, medicated with BP tablets and blood thinners, this should reduce that risk. Though it never can be completely eliminated.

Rest in very important for recovery after a stroke. Yes, exercise is important too but maybe nothing more for a few weeks yet. It’s because the brain needs time to rest and heal, it can’t do that successfully if you are still trying to go flat out at your pre stroke pace. It’s just your brain is not firing on all cylinders yet, it’s running a reduce service, so to speak, so you need to give it time to heal and recover. The first 6 months are the most crucial for recovery, so don’t risk abusing that. Take some time off, gentle exercise is good so walking is fine, swimming too, just not on the same days.

Yes you are tired, that’s the fatigue and is one of the most common side effects of TIA’s/strokes. And the more you try to pack into your day the greater that fatigue can be. At times, it may not hit you for a day or so, and it can also wipe you out for a couple of days, depending on on how much you’ve been doing. You need to learn to pace yourself and that can only really be done through and error as we all as individual as our strokes and rates of recovery.

And you are in shock, that’s why you are a bit emotional, and you’re entitled :people_hugging: This is, after all, a life threatening experience you’ve just been through, so its bound to affect you emotionally. And it will take to come to terms with! That’s why its good to come on here and talk it through, read other’s experiences, talk with your family and friends about it, don’t bottle any of it up. The more you talk about it the easier it gets to come to terms with and cope. And greatly reduces any risk of letting those emotions drag you down into any kind of deep depression.

I’m retired so don’t know the rules and regulations for taking sick leave, how many weeks on full pay and how many on half pay and that sort of thing. But I would be taking it all if you can. I’m surprised the hospital didn’t advise you, for me it was at least 4 to 6 wks of taking it easy, light exercise, no driving and see how you feel after that. It took me about 18mths just to get back into driving. But even though mine was diagnosed as a TIA, I believe I was misdiagnosed and I still have deficits 4½ years on. And I’m assuming you have been told not to drive for X number of weeks as you are still at risk of further incidents?

Stroke recovery is marathon not a race, you’re going to have good days and bad ones. Recovery can be a bit of a roller coaster ride, one day you feel like you’re progressing nicely, another day you may feel you are going back the way, and suddenly you move forward again. That’s just the nature of all recovery be it a broken leg, heart attack or stroke.

So stay calm, relax as best you can, it’s going to take your medications about 6 weeks to take full effect in your system anyway. So give them a fighting chance for you by keeping your stress levels down in the meantime :wink: You have survived, now keep it that way :people_hugging:

Lorraine

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Hi @PaulaFitz, welcome to this strange club. I only took one day off after my TIA in February, and wish I had taken more. My employer has been great and would have given me all the time I needed, but I was too busy being big and brave. @EmeraldEyes has written about what you can expect far better than I ever could, and being big and brave will only get you so far with all that. You need to give yourself time and space to recover, both physically and emotionally. Taking the week off will be a good start.

As far as activity goes, yes, listen to your body. Once again, I tried to be big and brave and pushed myself further than I should have, which hit my mental health hard when I realised that I wasn’t up to that amount of effort. Be active, but recognise that you have lower limits than you did before the TIA. With time you’ll probably be back to where you used to be, possibly with a slightly different perspective on life, but don’t try to hurry. Patience and self care should your priorities.

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Hi Paula , as the gang have said, welcome to our friendly group, they have offered great advice and I cannot think of anything that they might have missed, just do what you feel up to doing and your body will tell you when it’s time to rest, pop by frequently and even if you don’t want to say anything on here, just read the messages and take the positives from them that will help you get through the challenges.
Take care, Bert

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Hi Paula,

Welcome to the group sorry you have had a TIA. It can be a very scary experience suffering a TIA or stroke and its normal to feel very emotional afterwards. I found talking to both the stroke association helpline and the people on this forum really helped, I also asked for support through my companys employee assistance programme and they put me in touch with a counsellor who I could talk through some of the emotions I was going through. Have you checked whether your employer has something similar.

I am 10 weeks post stroke and still off work. I was advised by my strke nurse that its normal for it to take 4 to 6 months for the body to recover enough to be able to think about working again, depending on the severity of your stroke. The brain needs this time to repair and develop new neural pathways and the more energy you use working, exercising etc the less energy there is for the brain to recover.

My experiences over the last few weeks have shown me that I have to take things slower and not do anything to physically strenuous. Gentle swimming, walking for shorter periods, a bit of easy gardening or household chores are fine, but if I push past that or spend too long on the computer then my body crashes and I end up feeling exhausted for 2 days :frowning:
I am learning to enjoy the quieter moments to listen to podcasts or audio books, to practice mindful meditation and to just enjoy sitting in the garden. You are recovering, its OK to take it easy, in fact its a must.

All the best
Lizzie

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Hi @PaulaFitz & welcome to the community. Sorry to hear of your TIA.

Everyone has already said what i would have but definitely listen to your body. It’ll tell you when you need to rest.

In relation to work this is individual for everyone but some time off to rest properly would probably be a good idea. I had a stroke 3 1/2 years ago and had 18 months off. Then I had a TIA after returning to work. I tried to carry on working but in the end had to take a couple of weeks off to rest up completely.

Exercise is good but rest is equally as important at this stage.

Best wishes

Ann

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Hello Paula and welcome to the community.

I note in a very short period of time you have received a fantastic response to your post, from some of the wonderful members of this community, which I am sure you will find helpful and supportive. There is much help available and there is no need for you to struggle or reinvent the wheel.

Feel free to ask away and you will be offered some help.

Namaste|
:pray:

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Wow! Thank you to everyone who took the time to reply. I am very grateful.

I have taken this week off work via self-certification and see how I feel after the bank holiday. I think, perhaps, I have been trying to do too much.

I may try and get to talk to my GP again and take things from there.

Again, very grateful folks.

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Paula - Don’t forget, you can also talk to NHS 111.
They have access to your medical records and you can talk to a doctor once you get past the initial call.
It might be an option if your doctor has limited availability.
Take care.

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Hi PaulaFitz

Welcome to the Online Community.

I can see these guys have already rallied round with their kind words and support. I hope being part of this community offers some reassurance that you are not alone.

If you need anything whilst you’re using the Online Community, please feel free to tag the Community Coordinator @Anna_moderator into your post or you can contact us directly through the service desk.

Best wishes
Nicola

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@PaulaFitz
Nothing is too soon, go with the flow of your body.
Your body tells you when its ready.
I came back to work far too soon, but I was bored beyond belief, so I needed to come back. But looking back it was way too soon.I only has 4 months off and then back full time. Would not recommend to anyone. I had a stroke not a TIA. Goof luck :four_leaf_clover:

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Hi Paula, I had aTIA post heart bypass, i asked for help and was put in contact with my local stroke team, who were very supportive, a nurse did a house visit and talked through what you are experiencing and made suggestions on moving forwards. I had regular phone calls to update which helped me feel supported. Perhaps enquire if you have a local team?

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Hi Paula , welcome aboard, I had a TIA over 12 months ago and took 6 months off, due to fatigue then a really short temper! my employer was absolutely brilliant about it, I went back in January and was part time for a short while, I have had no other issues except for with my vision, so as others have said, listen to your body, you will know what is right for you.

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