Keep on keepin on - the group formerly the Zoom Open Group

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keep on keepin on (koko)

2025/06/16
This is the most recent information about this group.

Something about me and this Group.

I am Bobbi a member of this Forum (online community) and am in my fourth year post stroke.
Three years ago I created an online group and have maintained it since that time.
It is now called keep on keepin on and used to be called the Zoom Open Group (ZOG)

Since my stroke, I have found reading and writing on this Forum to be useful and stimulating.
I have learned that I’m not the only stroke survivor in the world.
The problems I have encountered are not mine alone.

In addition, the folk who contribute on this forum are kind, they listen and often have something useful to say.
Hearing what others have to say has helped me to cope with what is, in truth, a traumatic isolating experience.
Contact in this way has helped me see where I am in the world and even shown me what choices I can make.
Plus it is nice to feel there is someone out there who listens and understands.

I found that a face to face online meeting, once in a while can provide this sort of interaction.
It can give an opportunity for contact with someone in the same sort of predicament as oneself.
It does work out in reality and is worth a try.

I open an online meeting once a week and will continue to do so as long as there is interest.
I am not a professional, I have no backing and I provide this service free, in my own time and available on any device via web browser.
I have been doing this for around three years.

Does the idea of taking part in something like this interest you?
Have you any thoughts on the matter?
Will you apply to join such a meeting?
Feel free to ask questions, add opinions and/or suggestions here on this thread.

The link below will tell more and allow you to join us.
You can join if you are a member of this forum.
https://www.stroke.org.uk/finding-support/clubs-and-groups/keep-keepin

The only requirement is to follow the online community rules.

I have some yogurt to bottle, so must break off here.
Sorry I haven’t had a chance to spell or grammar check.
Will look later along with answering any questions or noting any suggestions.

Thanks for taking a look.

keep on keepin on
:writing_hand: :smile: :+1:

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Well this thread has had 11 views but no response.

keep on keepin on

will quietly

keep on keepin on
:writing_hand: :grinning: :+1:

16 views now !!

ssshh
:shushing_face:

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Are you back to using zoom instead of Jitzi Bobbi

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I’m thinking about it @Bobbi. For me, the main issue is that I’m inconsistent around socialising. I always have been so it’s not a new thing. There are added issues now which are a bit pathetic but nonetheless bother me a bit. Things like not always feeling like getting dressed, (I do usually, but might have a run of days where I don’t ), and having to wear my false teeth unless I’m on my own. I forgot to put them in when I went shopping the other week and realised just as I entered the shop😂 I was so mortified, I even considered driving back home to get them. Then I thought how crazy that would be when all I had to do was keep my mouth shut🤣 But I soon forgot all about it when I saw a gentleman walking with a leg brace and a ‘handbag’ arm and started chatting with him because it was so nice to talk with someone else who’d had a stroke. And being toothless made absolutely no difference at all😂 So all these are just my personal hang ups and I need to get over them because I don’t think anyone on here could care less. So I guess what I’m really saying is, I think it’s a great idea. I’ll join but whether I actually ‘get there’ will very much depend on how I’m feeling and functioning on the day.

Today, I’m feeling sociable. And I’m dressed😊
Trace

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Nope @EmeraldEyes someone dug up one of my first threads about the group from three years ago and assumed what was written there still applied now. Although of course some of it does.

We have moved on and use Jitsi which provides a number of improvements over the free version of Zoom.

This has caused a certain amount of confusion and suspicion even.

I don’t think insisting I am not up to some sort of evil is going to get me anywhere.

So from now on you better call me pirate Bob.
I have been wronged unfairly before.
Watch this thread get blocked and me be wrong once again.

I insist my meetings are organised on my time, I am unpaid, I do it out of regard for those also affected by stroke, with no outside influence whatsoever and no hidden agenda.

Staff and moderators are welcome to any of my sessions at any time.

I don’t think I need to keep repeating this.

Oh in addition I have the members of the group’s data, but share it with none, not even Stroke Association, other members or my wife. It is treated as for my eyes only. It is only used to contact them with group information and that is shared with all members of the group.

Sorry if I sound a little heated.

I really need to get that off my chest.

This post might get hidden but I am hiding nothing, apart from the data my members have shared with me.

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@Trace57

This is from my YouTube channel, it has had about 1700 views. I used to be shy, does this make me brazen? I am a it of a mess. My wife loves me. I’m still a part of the world whatever state I’m in. Some of my videos have had 15 thousand views.

I’m just learning, only started the channel a few weeks ago . . .

Please do join.
https://www.stroke.org.uk/finding-support/clubs-and-groups/keep-keepin

You don’t have to do what I’m doing but you owe it to yourself to be yourself in your world.

Come and see me in my scruff, look at my toothless mouth, actually I have about three very broken ones.

It’s not about appearance, I have that ‘hand-bag arm’ and a funny foot.

It is all about facing up to the rottenness of it all, facing up to how frightening it can be, facing up to not being ever able to win. It’s about feeling alone.

It is all about being brave and winning by just carrying on and finding out you are not alone by meeting others, writing to others.

Chatting on this forum is a good start but meeting face to face is a great booster.
Forget yourself and start enjoying what is out there.

Those affected by stroke are generally very understanding as is the rest of humanity in actual fact.

This thread has had 22 views- WOW

keep on keepin on
:writing_hand: :smiling_face_with_sunglasses: :pirate_flag:

(I’m enjoying a pot of the yogurt I made for Hilary yesterday)

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You, yes you.

it didn’t kill you, you just got stronger.

Be brave. Be you.
:sunflower: :grinning: :+1:

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23 views I guess everyone is having a siesta.

keep on keepin on
:musical_notes: :laughing: :guitar:

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