I have friends who are kind and ‘pretend’ to understand but it is always difficult when the damage is inside your head and in your brain that is not visable like a severed limb or something like that yet we can be equally as broken.
I am 10 months in and I still struggle - I have lost some friends and made some new ones - especially on here.
I now accept that my brain just doesn’t work like it used to or like other people’s but I know people here understand and are supportive.
I find it difficult when people say oh well you’re doing well you look ok well done. Not realising that it’s just the start of a long journey.
What does a blind / disabled / stroke victim / partially sighted person look like. I have to walk away quickly or I will lose it everytime some one says to me ‘you don’t look blind’ or ‘if youre blind how can you use a laptop or watch tv?’ or ‘well come on just close your right eye then’ oh my god!!!
By the way I have hemianopia so I can see straight on and to the left but not to the right at all. It is very weird and still getting used to it but it is in both eyes!!!
I often feel that aside from very close friends or my OT or GP or consultant or psycologist!
Have a look at this thread if you can be bothered to maybe get a few bits to start you on this horrible unexpected journey.
take care mate.
Kieran
