Hi Folks
I was told by GP after suffering a massive headache during the night and next few weeks where i coudlnt swallow food or water without choking along with being exhausted all the time. Blurred vision and numbness on my left side that my probs were anxiety.
I paid for a private MRI where the results were lacunar infarction in right cerebellum.
Previous hostory of cardiac arrest followed last year by bladder cancer.
The Heart attack was brought on by grief and stress at the loss of my wife from cancer.
I have had no help at all regarding the stroke. Nuero reccomended i see stroke back up services. GP refused stating i didnt need help as im on asprin for what ever time i have left on this little planet.
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Hi, I also had a similar experience more than eight years ag when I woke up with terrible tinnitus and confusion. I also paid privately to see an ear nose and throat physician who referred me for an MRI where it was found that I had had a lacuna infarct. I saw a stroke consultant once but there have been no further appointments since.
I would recommend that you join your local stroke association group if there is one close to you, these are sociable groups often run by someone who has themselves had a stroke and they will support you as much as they can.
If you’re still troubled by anxiety I would try and see your GP again and tell them you need help. Not everyone who has had a stroke displays physical symptoms and you can get forgotten about.
Hope this may help you
Best wishes
Ann
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Thank you Ann
You can prob tell my main emotion is anger at present 
. bad day yesterday.
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Hello Gravel - Nice to meet you and am pleased to know you have two lovely Carers who are doing a Sterling job looking after you.
Having just met you and not knowing very much about you, I’d like to ask if I may, how you feel about what your GP has advised.
Without knowing you or your history, the above comment might sound harsh, unsympathetic and uncaring and not the sort of thing you would want someone to say to you. I am not judging anything or anyone at this stage, but I am trying to understand the situation we are at.
For example, if you have been told that you don’t have much time on this little planet and you have accepted that and understood the reasons why then perhaps your GP is right. What I mean by that, is if you are in palliative care and some of the tests that you would have to undergo henceforth might be considered too stressful, the doctors would tend to try to steer clear of them.
I say this from first hand experience - my Mum has been refused tests/treatment which they (doctors) consider would not be in her best interests because they believe at her age and the condition she’s at she would not likely benefit from undergoing further tests and treatments and so an asprin a day is the best thing for her.
I am only saying this because it may be a reasonable thing the GP is saying, but as I don’t know your particular circumstances, if you feel that is an absurd thing for him/her to say, you are well within your rights to ask for a follow up or a second opinion e.g. of the neuro suggests you would benefit from stroke back up services than you should seek these.
I know it is hard for us to accept some of the things doctors say to us and this is [again speaking from experience] because they are not necessarily trained in good bedside manners and some of them can be rather blunt. We’ve had heated discussions with some consultants because they have said things which with hindsight may not necessarily have been as bad as we first thought but they certainly could have been worded differently.
Also, sometimes, emotions can get the better of us.
Nice to meet you (and your Carers) and wishing you all the best.
Namaste|
thank you for your reply. nope im not on palliative care or DNR etc.
The same GP who told me this works for the practise that Lost all records of me even having a stroke. I had to submit in writing and send MRI report to them again .A month later same happened and the stroke was again removed from my medical records.
Medical record even now states im allergic to Asprin even though i have to take asprin every day due to heart problems.
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I am so sorry this is happening. I guess you are one of those people who live in an area where you can’t switch GPs? It seems to me from what you are saying you have cause to lodge a formal compliant as poor record keeping and incorrect information on your medical records could have a serious impact on future care.
Is this GP not on electronic records? How are they managing to lose all this information?
If this GP is a bad egg, is it possible for you to see another GP within the same practice?
ive recently changed surgery and slowly getting things sorted thanks
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There often is very little followup after a stroke & it can become a postcode lottery. As you have now moved surgeries try askingthem for a referral to the stroke team. You might not be given any additional meds but they might be able to help with other things.
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@Gravel suffered the same after returning to work, this is outwith my local area and the hospital were magnificent chased my local health authority and the hospital who treated me which neighbours my local health authority. Asked them both why so many gaps and why there was so little follow up. Got there in the end but still struggle to understand the NHS banner which means National Health Service allows health authorities to not even be able to email each other as they seemingly can’t/ won’t communicate with each other.
Glad your doing better and seen you have been out and about.
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Like us all who have been through the same we come across medics who are fantastic and ones who really should find other work lets say.
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This is enough to make anyone sick - I’m talking on behalf of all stroke survivors as we are ultimately on our own. I hope things ease up… somehow ! Good luck, Roland
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so sorry to hear that Roland, i was kind of hoping it was a one off and had only happened to me.I can clearly see we are the forgotten people in a lot of cases.Best of wishes my friend.
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There are plenty of people who would like to help me (and I mean all those who have had a significant stroke) - but simply can’t : ‘We’ only understand 2% of the human brain.
I’ve heard this so many times, not sure when it is going to sink in that anxiety is the result not the cause. It’s lazy diagnostics and also diminishes people who suffer anxiety disorder or panic attacks.
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I’m sorry to read you lost your wife and that you were so ill afterwards, I’m horrified that your GO treated you so badly. I think the NHS is broken and the record keeping and sharing is a bit rubbish but it works for most of us For emergency care. I’m glad you’ve changed surgery, the original one sounds rubbish. I wonder if you fell through the cracks because you had to go privately for the stroke diagnosis? I’d ask your new GP for a referral to the local NHS stroke team, if you need extra help (rehab, house adaptions, physio) they should be able to advise.
Than you
I recently wrote a letter and took it to ENT regarding my ongoing problems.Enclosed results from private MRI and detailed how im struggling.Got a phone call from ENT yesterday. They said see your GP.
I saw GP last week and he Said see optition, Reason being im getting blind spots in my right eye and my hearing and balance have got much worse over the last few months. Optition said -see your GP.
Im on a roundabout with people passing the buck constantly.
Only option for me now is to try and save up and go private once again.
When I had some blind spots in my vision when I had a field test at the opticians the optician referred me to ophthalmology to get it checked. I used specsavers. Maybe they are worth a try?
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