It’s my birthday coming up and I’m giving something back as the stroke association have really supported me. Hopefully all of my Facebook friends will dig deep but let’s see!
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@SimonInEdinburgh Id say all of the above with folk on here and 2 of the direct employees as well as a volunteer who runs the back to work group (their name escapes me now)
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Hi @garethc970 happy birthday for when it arrives. Really pleased to hear of the great support you’ve had & that you are doing something to give a little back.
I too have had great support from different areas of the Stroke Association especially in the early days when I hadn’t a clue what was going on.
Best wishes
Ann
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I have had the benefit of a few different services. I have used the helpline for advice, i attend their online activities when i’m able to now but used a lot more frequently in the past. I’ve been involved in some of their promotional stuff (featured my story in their magazine, on the forum blogs etc). I also had a number of visits from a Stroke Association Support Coordinator who was fantastic & helped me with questions I had, provided information leaflets but more importantly for me liaised with my GP & Stroke consultant to unblock some things for me. And of course I use the forum & do a bit of moderating on it.
They were there when I needed them most & I will remain forever grateful to them for that.
I know the support coordinators aren’t available everywhere but where they are I’d suggest using them. I was referred to them by the hospital when i was discharged.
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Initially they came out and advised I should apply for pip and said if there was anything else to get in touch, then they ran a communication group and while I was the only one with dysarthria it let me see how others with communication issues were living and making it all work and was a safe environment for me. My 2 main sources of assistance were my local co-ordinators in Sunderland.
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