my name ie Tracy I had a stroke o the 30th october2024,it affected the right side of my brain and M left eye I did not have any other symptoms.i am finding it hard not being able to do the things that use to be easy .i thought it might help to be able to communicate with people that have been through the same thing[quote=“Tracy58, post:1, topic:41470, full:true”]
Hello
my name ie Tracy I had a stroke o the 30th october2024,it affected the right side of my brain and M left eye I did not have any other symptoms.i am finding it hard not being able to do the things that use to be easy .i thought it might help to be able to communicate with people that have been through the same thing
[/quote] any advice on recovery would be greatly appreciated, do any of you notice if you are making any progress with your recovery thanka
Hello @Tracy58 and welcome to the forum, we have all been through what you are going through You are one of a several newbies who have just recently joined us, a few I’ve just replied to today similar to your own.
And I’ll say the same to you as I did them, its brain fatigue! Just key the word “fatigue” into the search box above and you’ll find many posts on the subject. Your brain is currently repairing all the damage done that it can, from your stroke, so don’t even bother trying to multitask, in self preservation your brain will shut you down with fatigue.
@Tracy58 Hi and welcome to the community. Sorry you’ve had a stroke but hopefully you’ll find it a useful place to be.
As @EmeraldEyes has already said it is likely fatigue that you’re struggling with which will make things difficult for you. It’s really important to rest up when you need to as this allows your brain to do some repair work. Prioritise, plan & pace is the way to go with fatigue.
I kept a diary do I could track my progress. I svored my fatigue and listed the activities I’d done. I could then look back & see my progress on those days when I thought i’d made no progress. Progress shoikd be measured over weeks/months rather than in days though.
Hi Tracy - i had my stroke on 7 october, my right side is completely numb but can move and my left eye is squint so have double vision. I like you am trying to stay positive and keep the rehab and trying to lift myself up on the down days - the fatigue has really hit now and i find that is making everything worse - be kind to yourself and rest - i have finally realised that recov
nice to meet you. It’s early days. May I ask what is troubling your eye? Did you lose any peripheral vision? Eyes interface with the brain in 30 different independent areas, and are very delicate organs. They are often disrupted by stroke. Mine certainly was affected by my stroke ; MGD, blepharitis, dry eye, eyelid dystonia, to name a few anomalies. Despite that list the irony is that I have 20/20 vision (for the first time in my life).
I’m 2 years post stroke and making good progress ; wishing the same to you,
Welcome to the community, I’m sorry to hear about your stroke.
This is a great place to ask questions and chat to people who have been through similar, I hope you’ll find the support here helpful for your recovery.
If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.
Hello @Tracy58 . I had my stroke at the end of November. I have been so fortunate that everything seems to work in my body although getting used to my brain being fuzzy and processing taking longer is tough but it is improving slowly.
So much excellent advice from those further on the road than us. For me the fact I look well is a bit difficult as I feel a bit of a fraud ( I’ve handed over a lot of my voluntary duties as advised, but that’s hard too) I’m a doer but am learning to accept offers of help and be a grateful receiver instead of a giver.
We all get that! It not like a broken leg or a surgical wound, there no are bandages or casts or dressings to change to show for it. Because your skull does all that. It’s disconcerting for us, more so for everyone else because we seem so normal. But we’re like a broken watch, we look fine but our spring is gone inside.
So like the watch, we fake it until we make the repairs, because it still looks good and is an expensive watch We go through the motions of what we did before, albeit in a reduced capacity, because that’s the best way to retrain our brain or jog its memory to bring it out its coma. And a year from now you may be taking back some of those voluntary duties you’ve had to give up
Never give up!
I don’t get this quite as much as I have an obvious physical disability when I walk. But it is definitely the invisible disabilities that are the hardest for people to understand.
You can get a sunflower lanyard which is axwell known symbol for invisible disabilities if you find it becomes a problem in shops etc. I have one which I use in busy environments & people do tend to be more patient etc.
You are one of a several newbies who have just recently joined us, a few I’ve just replied to today similar to your own.
and you’ll find many posts on the subject. Your brain is currently repairing all the damage done that it can, from your stroke, so don’t even bother trying to multitask, in self preservation your brain will shut you down with fatigue.
We go through the motions of what we did before, albeit in a reduced capacity, because that’s the best way to retrain our brain or jog its memory to bring it out its coma. And a year from now you may be taking back some of those voluntary duties you’ve had to give up 