It seems to me that whilst one can survive a stroke and emerge out the other side one will more than likely carry a disability to a greater or lesser degree.
All that can be done is to carry on life as normally as possible and wait patiently until the brain re wires itself. This being unique to everyone and why medical professionals are clueless. Any support is around adaptation and support in life In general.
Some recovery quickly but others it takes the rest of their life to come good or to an extent wher life is satisfactory in their own way.
I’m not a quick recovery and my patience is low
Today is my wife’s birthday and wedding anniversary and I’m in a good place 6 years from the stroke roughly, so finally hopefully in a better place with all adaptations needed to exist as close to my life as I can make it. True walking is stilll down the road but I can hobble with a stick , pain is my biggest thing as it impedes my movement and my walking All lined to my destroyed sensory cortex. When I can feel my muscles and movement can be performed as before a year of physio will de me back to a mobile state.
Remember the key to recovering is persistence and determination. Without these things you will not have a chance.
Good luck lovely survivors
God be with you, keep pushing forward and never stop pushing for the right conclusions
Sometimes the moving forward is around making those adaptations but hopefully they mean we can live a fulfilling life still.
Recovery may be how long is a piece of string but where there is life there is hope. I definitely never expected that I still wouldn’t be able to walk places 3 1/2 years on but that’s my reality. I am not letting it stop me though & my scooter is part of that process.
Happy birthday to your wife & happy anniversary too. It seems we have an anniversary in common as it is mine today too
Hi Ann. I never expected to be hobbling around with my stick 3 1/2 years on either. I have to accept that normal walking will never happen again and that life to a certain extent will be controlled by questions. The questions are usually are there handrails to get up the steps, is the path uneven or does it consist of thick gravel? Is there somewhere near to park the car etc etc! But at least I am driving on my own - only locally - and can manage to get in and out of the car by myself. Keep on keeping on Everyone!
Thank you for writing what you find. As I’m always saying, you, we, they are not alone.
I think seeing things as they are is part of the healing process.
We can look back but we cannot travel there and it is folly to try.
Stroke or no stroke we are made to move forward. The future is before us and that is where we must go.
Sometimes this is a thrilling prospect, at others all we can do is be terrified.
There is no certainty other than that there is a tomorrow.
We will be there dealing with whatever it presents to us.
You don’t have to agree with me. Half of this adventure is about each of us plotting our own path, making our own maps and finding a way.
As I tell my wife I need a knife to eat a custard doughnut. I must first cut it in half in order to avoid smearing it all over my face and beard. Perhaps I should write a method with diagrams and careful measurements but this is probably my problem alone.
Yes Apple keep on moving forward you are driving and getting out of a car so all power to you a great achievement. A slice of the bold you still in place. Keep that resolute energy and persistence it will see you to the top of your recovery journey without any doubt.
Thanks for the best wishes on our day lim determined that next year as with all the years since it happened I will have improved not by much but by siomethin or in some way.
Keep going everyone. Love to all from us both. Xx
On a follow up today I have woken up to a fabulously low pain left foot, I know it’s not permanent but it gives me a sense of what could be in the future.
Any weight on the foot radiating pain from the foot nerves to the hip shoulder and ey socket.
@Apple oh I recognise those questions well. I ask the same ones regularly. Going out is no longer just a case of hopping in the car & just going. Even simple things like going to a restaurant becomes difficult when there is a step to get in the door & norhing to hold on to. My stick is very handy in those instances.
It’s great that you can now drive yourself even just in local journeys.
Keep going & hopefully small improvements will lead to better times for you.
Thanks for this.
I’m also 6 years (in August this year).
Agreed hard work and perseverance are required.
I never used to have much patience prior to my Stroke but am now. Not yet able to walk, eat/drink (peg fed through stomach) and great difficulty speaking (dysarthria) along with other ailments. Even though there are good days and bad days, I’m determined to improve.
Though I don’t notice any improvement friends/family do.
Adjusting to my new life as there are things I never noticed before. Luckily I have hobbies (live music and collecting records). Expensive hobbies . Playing my records is interesting
Hi hayeam
Thanks for your reply glad you are gaining a recovered state and able to pursue your hobbies. Hemiplegic myself am unable to continue with the hobbies I loved before my stroke. If I’m granted an improved arm but fluid walking is my biggest challenge with it I’m free to. Go most places and if driving again may stand a chance of working again.
. Playing my records is interesting