Hi @Baldrick, you comment ‘Personally found the NHS excellent but afterwards when you get home the questions start! (For me anyway) and there seems to be little thought given to this other than - well you’ve got yr Clopidogrel and yr statins get on with it! Is absolutely how I felt and on top of the initial shock is a massive life experience!
I will take a look at the ‘Eating Healthy’ resource and see what I can glean from that. I cook most everything from scratch anyway and we do eat lots of fruit and veg, it’s ideas and easy prepped meals that would help.
I found a local Stroke Association group close to where I live so will give that a go too!
Do you mind me asking how soon after the first stroke it happened again? Did they adjust your meds afterwards?
Thank you for reaching out. I will post once I get my MRI and heart scan results. I do realise that sometimes they can’t pinpoint why it happened so I have that in mind too!
A similar thing happened to my Mum - she was put on blood pressure medication and it should have been temporary or not at all, but because nobody was monitoring it, one day it fell very low and we ended up in A&E - the consultant took her off the BP meds immediately. She hasn’t looked back since. Also, in Mum’s case the BP meds caused her sodium level to drop and she had a few seizures due to mineral imbalance. The dietician fixed this by asking her to add a half teaspoon of salt to her drinking water / fluids.
Hi @ManjiB, thank you for the advice. I have cut out all additional salt in my diet so I do need to be careful. I think I will speak to my surgery tomorrow just to clarify my own position.
That is a good idea - Mum is now checked regularly every 3 months or 6 months (if events take over) and the sodium is usually just in the low end. Recently her potassium spiked up but that was managed during a hospital visit but everything seems to be in order (medically) though there are things going on, the root cause of which is yet to be ascertained.
@annieamh - Mum will be fine. She is what they call a survivor and a fighter and many more things which most of can only dream of. She has survived for more than six years post-stroke, one which she was not expected to survive. Today she is stronger than ever.
Roland - @pando. You know Mum has always been connected to nature. She padded around the garden bare foot, bathed her scorching feet in rain water, ate only natural foods and ate minimal - small meals which she then worked off pretty much as soon as she had finished her meals. The stroke has tried to rein her in, but she’s not having any of it.
We cannot get her to pad about in the garden but she has an earthing band (they, the manufacturers call it earthing, but I think you call it grounding).
I had my stroke (subarachnoid haemorrhage) 21/10 so still pretty new here. I can mirror a lot of what you are saying!
I have downplayed my stroke since it happened 5 weeks ago as I have no obvious symptoms to look at me, you kind of feel like it’s a minor stroke but as others have said, a stroke is a stroke and it is very serious.
I absolutely feel like I have a ‘ticking time bomb’ in my head and really struggle with the thought of it happening again and leaving my nearly 9 year old and husband. I have looked into life insurance and all sorts. This feeling kind of comes in waves for me though and some days I feel this ‘bomb’ and other days I think like others have said, that if it happens I will deal with it. Every tingle in my head, my body is a worry but I know it will get better. If you are worried about anything no matter how minor do not be afraid to contact your GP. Mine is probably sick of the sight of my name popping up now but if it helps your peace of mind and minimises your stress that cannot be a bad thing. It is hard to be positive but it really is worth trying for yourself and your family.
I am also trying to eat healthy, zero alcohol since my stroke, I do have coffee a couple of times a day which helps ease the brain fog for me and so far I don’t think triggers any headaches (I was being offered coffee in hospital and just ran with we’ll they wouldn’t be doing that if it was that bad for me.)
It is still very early days and I am hoping this community of survivors we have unfortunately found ourselves in will give you some comfort (and answers) as it has already done for myself so far.
@MrsG16 we were days apart when we had our event! I did exactly the same and immediately started researching Power of Attorney and a life insurance trust Deeds etc. I haven’t followed through yet but I will do.
I’m still awaiting results of an MRI and heart scan so hopefully that will give me more info as to why it happened you’re right about every tingle, sneeze or any kind of head pressure. The doctor is on speed dial
Thanks @MrsG16, yes various people have told me they may not be able to give a conclusive answer as to why it happened. That will be frustrating but if that’s the case then you just have to move on don’t you
Your kids know what they are talking about. You are further down the line than you might think. It is hard to see your own progress and sometimes we underestimate how far down the line we are.
You really will get there. Please don’t ever doubt it and do keep updating us.
We love all the success stories. Your success is our success - it truly is
Still no results from MRI and heart scan (despite chasing) and still coughing after what I thought was Flu but have been told today it was probably Covid . Being a patient patient I am !
Hi everyone, It’s been a while waiting for my results and on Friday afternoon I checked my NHS app (which I have been doing daily!) and there was a letter on there to my doctor giving the results of my echocardiogram which I had on the 17.11.25. Still no results from MRI which I had on the 11.11.25!!
Anyway, the result of the echo is that I’ve been referred to cardiology as they have found an aortic root dilatation. No explanation as to whether this caused my TIA or how mild or otherwise it is.
I have previously said that I felt like a ticking time bomb immediately after having the TIA but I got my head round that, take the meds, adjusted our diet and lost over a stone … but now this diagnosis feels an even bigger time bomb. I am worried obviously but know that I once again need to be patient and wait to see the cardiologist for further information.
Has anyone else’s stroke been caused by this condition and if so what happened next for you.
Thank you for reading my update and I hope you are all doing well .
Sometimes a little knowledge can be a bad thing and I wonder if that is the case here. Maybe my mind is fogged with information overload but I am now thinking or seeing as each case being unique and further we simply cannot predict what will happen next. The best we can do is the risk reduction steps and then accept that there is nothing more we or anyone else can do and what will happen will happen.
@Baldrick, you comment ‘Personally found the NHS excellent but afterwards when you get home the questions start! (For me anyway) and there seems to be little thought given to this other than - well you’ve got yr Clopidogrel and yr statins get on with it! Is absolutely how I felt and on top of the initial shock is a massive life experience!
. Being a patient patient I am 
!