I had a stroke last november and my life has completely changed

I struggle to do what I used to do. Life is so hard atm.I am fortunate to be a stroke survivor.

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Hi Irene.
I am new to the forum and have already gained comfort just from kind people responding to me. I have only recently had a stroke (I found out today that it was actually a stroke and not a tia as was first thought) and am awaiting a consultation to discuss what my options are. I may not be of any direct help to you but this forum has helped me acknowledge that I am not alone so I thought that I would message you so that you can share the sentiment. I wish you well and it would seem that sharing your experiences with others can benefit both you and them. Regards Rich

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Hello @IreneFC - Welcome to the community.

I am sorry you are experiencing difficulties following your stroke, but hopefully having found this forum, things will improve.

It is unfortunate you had to be sent to be cared for in a different area where you did not know anyone. Sometimes this happens, for example, when the NHS local hospital does not have the specialist care facilities required for your condition. On the whole, I find the NHS does a wonderful job and usually under extremely difficult circumstances. You may not agree and that is fine, but perhaps it might be time to draw a line under that and think what you can do moving forward.

You are here and it is likely you will make new friends and will be able to share experiences and stories with people who have been there, done that, lived to tell the tale.

This forum is a rich treasure trove and you can use it as you wish (as long as you remain within the Ts and Cs) :slight_smile:

Here’s to a new beginning for you.

Namaste|
:pray:

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Hi @IreneFC & welcome to the community. sorry to hear that you’re struggling after your stroke.

A stroke is a life changing event & takes some coming to terms with. The good news is things can and often do improve over time. You have to be determined to make those improvements and work hard at them but if you do then you can start to get your life back on track. Sometimes things you also have to accept that things are going to be different now. Once I reached that acceptance I found it much easier to move forward.

You haven’t said what deficits you have but I am guessing some mobility issues which are stopping you exercising as much as you’d perhaps like. Chair exercises can help there as well as sit to stands and squats.

The Stroke Association run a here for yiu service where you can talk to someone in a similar position to yourself. You’ll find details Here

They also have some online activities which you can find out more about Here

And they also have a helpline 0303 3033 100 if you just want to seek some advice.

I know November probably seems a lobg time ago now but stroke recovery is a marathon and is usually measured over many months / years. Be patient and kind to yourself.

Best wishes

Ann

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Hi. What help are you looking for? I find Zoom is a positive from the pandemic. There’s still quite a bit on it even now. I have physio on Zoom and do several exercise classes and Zoom chats for stroke survivors to talk to others.

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Hello Irene, just catching up on the forum. I’m sorry to hear that you feel let down by the NHS and that your life seems so low. My esteemed colleagues have already replied to you, so I hope that you do have a little comfort, but know that we will all support you. As for the weight, that comes as a natural process on your diminished movement. I am two years post stroke, and I still have not shed the increased pounds. I am being a little more active these days, so with bit of luck I will shed more of it. All I can add to the good conversations you have already had is to try and be patient. Our bodies and brain are fantastic resources, but they do need a little encouragement now and again; between you will find a way through. Best wishes Norma

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Hi @IreneFC

Welcome to the community, I’m sorry to hear about your stroke and the difficulties it has brought to your life.

You’ve mentioned about your weight going up, this can happen after a stroke if you’ve been left with limited mobility but as @Mrs5K has mentioned there are exercises that Stroke Association offer which may help, we have videos for all mobility levels. I’m sure they’ll also be more people along shortly to also offer their recommendations - there’s a wealth of knowledge here!

If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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Thank you for your kind words.

Thank you for your kind words. This forum has given me more help than anyone since my stroke.

Thank you, I long for the day when I can feel something like the old me atm that seems to be a long upward climb.

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Thank you for your positive and encouraging words.

Thank you for taking the time to send me encouraging words and ways to go forward.

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Thank you and this forum is a fabulous ideas as only stroke survivors know what it is like to survive a stroke, no test book can prepare you for what really happens :slight_smile:

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Happy to help! Are you interested in a Zoom seated exercise class? It’s free and on every day, except Thursday, at 12 noon. Let me know and i’ll let you have details so you can join (no need to book you just log on when you want to.

@pamelai1
I work full time, so would struggle to fit it in as after work I attend chiropractor. or I am catching up with what I cant do while at work.

But thank you :slightly_smiling_face:

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Hello Irene - You’re most welcome. We are here anytime and for anything :slight_smile:

Look after yourself, try to make sure you are getting good nutrition to feed the hungry brain and body as they recover from the stroke. They are working harder than they used to pre-stroke and so require some tlc :slight_smile:

Also, very important to take rests to allow recharge and recovery. During the day, if possible take catnaps or a few minutes of mindfulness and/or breathing. Being at work full-time and being a stroke survivor can be tricky and I would suggest, if push comes to shove, your health comes first no matter how much you love your job :slight_smile:

Something like the seated exercise class that @pamelai1 suggests or just anything that will give you are breather are the order of the day.

Take care.

Thank you for all your advice. You are more helpful than my GP.

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