I don’t think I sleep anymore I’m in a continuous state of fatigue. If I do sleep it’s only for a few hours.
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try some magnesium glycinate supplement before bed?
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Hello Michelle - You say you don’t think you sleep anymore and you are in a continuous state of fatigue and if you do sleep it’s only for a few hours.
I note also you moved to the UK from Kenya about a year ago.
Is it possible that your body has not quite got used to your new environment?
Could it be due to an imbalanced circadian rhythm, daytime napping, anxiety etc.?
I imagine it might be quite a shock to the system when moving from the climate of Kenya to the climate here.
Also, if it is recent as in in the last few days, we have had some extremely hot days and they might be part of the problem.
Trying to sleep on hot humid days/nights is not something I find easy.
How long have you been experiencing this difficulty with sleeping?
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I slept very well before the stroke, I don’t think the move in country has affected my sleep because I slept well between moving to the uk and having the stroke. My inability to sleep is definitely as a result of the stroke. My father always says our body gets the rest it needs so perhaps the coma and the subsequent listlessness caught up on more sleep than I needed. But thank you so much for taking the time to respond.
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Well, in that case Michelle, I can only suggest a good old cuppa before bedtime.
I have chamomile tea or horlicks, though it’s only the chamomile tea that might help with the sleeping. The horlicks is just something I enjoy 
Take care and I hope you get some good quality sleep.
Zzzzzzzz!
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Avoiding tea or coffee after 9.00 pm can make a difference.
I’m up at night fairly regularly. I’m retired and don’t have an important daily routine. I usually jump on my laptop, do a little browsing a little writing until I settle, though sometimes I’ll stay active all night maybe getting something made in the kitchen, or putting some washing on. Next day I might be in bed catching up for as many hours as it takes.
I am in complete agreement with your father. When I was younger I would literally work around the clock then crash for a couple of days. I could make it work but we all have our limits and need to watch that any extremes get adequately compensated.
A gentle diversion can help with the sleep issue.
Injury of any sort needs to be given a chance to rest and recover. Rest doesn’t necessarily mean sleep. Recovery cannot be hurried but can be gently encouraged.
The after effects of stroke from what I have seen vary considerably from one individual to another. I feel that there is much to be yet discovered.
The medics try to ensure stroke doesn’t kill us. Once we are stable that is the end of the story, as far as they are concerned.
You and I want a bit more. Defining this is still in the early stages. Lots of claims are made but there is no fast easy or miracle cure. Well none that I have seen. Even those with considerable wealth seem to be unable to pay for a ticket out of stroke and how it leaves us.
Life is possible after stroke. Improvement as an ongoing process is undeniable. I believe the future can be brighter. If I could see ahead and knew what the future held then what? We are condemned to move forward, no going back, never sure of what we will meet next.
Condemned is the wrong word. You can find your own, but the past whatever we do with it is behind us and for good or ill the unknown stretches before us to deal with as best we may.
This philosophical clap trap is the result of sitting around in the midnight hour wondering if I should just get back to bed and go wait for another day.
Please forgive my rambling. It isn’t answers just more questions.
keep on keepin on
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My GP was reviewing my medications only yesterday over the phone. When I mentioned I also take Magnesium Glycinate, he assumed it was for sleep; it’s actually for my permanent head pain. But when I quizzed him on it for sleep, he actually said Magnesium Glycinate and Magnesium Threonate combined was the best for sleep, taken at night about an hour before bed.
Combining the two:
If you choose to go down this routine, do consult with your GP or pharmacist to be sure it doesn’t interfere with any of your other medications.
My sleep was non-existent after my stroke. 4 years on and I can now get between 6-8 hours. But, I still can’t actually get off to sleep much before 4am, no matter how much I do in the day or how fatigued I am. Which is a waste of daylight hours but hey-hoe, at least I’m getting sleep now and that’s been for at least two and half years now. Stroke recovery is definitely on the slow boat to China that’s for sure 
Lorraine
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Many people have reported not sleeping well after a stroke. It seems to be quite common. If you aren’t sleeping at night then maybe try & nap in the day but not toouch otherwise your body clock will never right itself. Try not to worry about it too much as that will make it worse.
I am one of the fortunate ones as after my stroke I slept better than I have done for many years. I think that was because my head was empty. I literally had no noise or thoughts in there so they weren’t keeping me awake. I was also massively suffering with fatigue ao I’d sleep 12 hrs at night then sleep for hrs in the day too.
Now I am back working and my head noise has returned i sleep less well but still better than I did pre stroke.
I hope you can reach that point too.
Ann
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Thank you @ManjiB.I think I may sleep more than I realise!
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I have a regular time and routin before bed. I try to not nap in the day if I can ….sometimes difficult…no caffeine drinks I try to stop drinking at 9 pm just sips this hot weather can’t get dehydrated. I wake up a couple of times per night maybe lay there and can’t nod off but for me it’s the heat at the moment. I try to move around so I get a different kind of tired, if one is able too, get some fresh air sit in garden maybe if you can
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I agree I too try to avoid sleeping in the day.
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I’m 10 months post stroke, and it really screwed up my sleep pattern, I wasn’t a big sleeper before, initially post stroke, anything fatigued me, so staying awake was a problem, I was in hospital for four months, and when I came out, I slept in two hour blocks but never more, not helped by having to get up and pee every two hours, about six weeks ago I have started to sleep a little better in the last few weeks, and now find, if I tire myself mentally with TV or computer use, I have poor quality sleep, But I do seem to need physical exercise to tire me out, then I sleep better, Inthink I need to do 4-5000 steps a day to sleep better, I also find reading helps, it doesn’t over stimulate me, I think, around the same time, I started to sleep better, I started hyperbaric oxygen treatment at our local MS centre, Hard to tell what is helping, but I’ve started trying not to worry about it, and if I get tired during the day not to fight it, just get some sleep or quiet time, and know there will be good and bad days
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I was a good sleeper pre-stroke and dearly miss the wonderful feeling of waking from heavy slumber. But as you say I try not to worry and just get on with things. I’m wheelchair-bound so counting steps not an option. But cycling in the gym is glorious. Thanks so much for your response, I’m a little comforted to know I’m not the only one❣️
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I. Was out for dinner with some friends last week, all of us in our late 50’s and mentioned my trouble sleeping, and having to get up to pee during the night, and they all said they had the same problem, stroke or not !
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