Hi everyone, I’m new here!
I was a physio before my cerebellar stroke in Feb 2024, 6 weeks off retirement! I was 66 1/2 and active, good diet etc. Though the bruises has resolved, I’m left with hypertrophic olivary degeneration. I have the following symptoms: tremor and weakness down the right, upper limb shakes with intention. Walking is affected - I can walk a mile with sitting and difficulty. Eyesight affected on right with nystagmus, I feel dizzy a lot. My voice is affected, and apparently I can’t always be heard, esp if there is ambient noise. Singing getting better but hard.
On the left, my “good side” I can’t feel hot or cold, or some types of pain. There are pins and needles if something is too hot/cold ., i cut or burn myself. I have one sided headaches, and feel the sun on the right but not the left.
I have falls x 6 since the stroke and do better on even ground. Things take MUCH longer. I dont drive. sing, or drawer. I found I can do things on the left.
So far the emotional side hasn’t been adressed, but ive just received the Stroke Association’s booklet on behavioral changes after stroke. I need to understand that aspect too. I’m going through a range of emotions.
I’ll be posting about my experience, what is getting better or worse!
I have a husband, who is my main carer, driver, cook, tea maker!