I had a stroke in September, which , thankfully was mild, but which has left me with hyperesthesia and intermittent feelings of wooziness. I find it very discombobulating. Is there anybody who has experienced similar symptoms and is now free of them or, if not, how are they coping with them? I have registered with a private neurologist who took me off pregabalin and I am waiting to see him again.
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@musiga24 hi & welcome to the forum. Sorry you’ve had cause to join us but hopefully you’ll find it a useful place to be.
Wooziness seems to be common post stroke & hopefully it will get better for you in time. 3 months is still very early in stroke recovery terms so plenty of time for improvement yet.
When i get woozy I try & carry on but it depends how bad it is. Sometimes i just have to sit & do nothing till it passes.
I hope things improve for you.
Best wishes
Ann x
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Thank you, Simon. I have read the posts on CPSP, which sounds like the same thing. I will see what my neurologist says on Thursday.
Discombobulated is absolutely my favourite word - I only discovered it about 20 years ago!
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Thank you, Ann.
I find the wooziness very disconcerting as there are other things that could be going on in your head which are a lot more serious than the after-effects of a stroke. I will just have to be patient.
musiga24
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Welcome to the forum @musiga24. It’s is rather discombobulating in the beginning. It took me about 2yrs before that wore off, so disorientating and confusing for a long time. So it can and does get better over time, but everyone is unique in their recovery. Only time and a great deal of patience will tell.
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I have some nerves that finish up just above my stroke-side eye which are hyper sensitive… there are a few areas that behave like that, in fact. There’s a wire that barely touches my leg (when I use an iteracare wand). Well, when it brushes up against my stroke-side leg I jump, startled and upset from the slightest contact with this wire. I could go on… very little sensitivity, then something out of proportion. Bizarre.
ciao, Roland
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Hi Simon @SimonInEdinburgh ,
Yep I’m still dropping by semi-regularly but as I’m back at work (from home) full time now I do find that by the end of the day I’ve just had enough of screens TBH.
I’m still doing the sensation re-training that continues to bear fruit (although very very slowly) along with the treadmill for an hour every other day and arm training/general exercises on alternate days.
Whilst I continue to have significant pain issues (600mg pregabalin gets it down low enough to allow me to sleep) and balance/sensation issues I am slowly improving (estimate about 1% improvement a month) so will just “keep on keeping on” as @Bobbi would say 
Best wishes to all for a better position at the end of the year than you are at the start
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Good to hear it can wear off in time, I hope that happens in my case and look forward to it.
Thank you.
musiga24
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Sorry, I was replying to a different post. Haven’t got the hang of replying to the correct one yet!
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I don’t know how to describe the wooziness except that it makes me feel rather unsteady and therefore more cautious when moving around. When it’s really bad I just have to lie down.
I don’t think gruntled and combobulated are nearly as much fun as with dis in front of them.
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Yes, that is my understanding too. The physiotherapists who visited me after my stroke told me to hit my arms to stimulate them.
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Thanks, Simon. It’s snippets like these that help me cope. I’m starting to build an idea of how and what this nerve might be going through.
Incidentally, last night was good and settled (after a disastrously plagued previous night) and I managed to walk 750 metres, my record to date. Bad times cause a reaction, and often spur me on.
Have a good Sunday,
ciao, Roland
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