Hi Dawn, sorry for the belated reply. I have been trying to learn how to navigate the site and it has gone slowly so I am a more of an occasional viewer for now. When I first had my full blown stroke, if you can believe it, was misdiagnosed also. When they did the ct scan and MRI, I had what appeared as a large mass that was involved with 3 different lobes of my brain. They also saw blood. They diagnosed me at that point as having a massive brain tumor. 3 to 4 weeks later after a few TIAs and several more scans. they realized that I had a ischemic stroke that eventually ruptured causing the large hemorrhage they thought was a tumor. So, your frustration at being misdiagnosed I completely understand. As Bear mentioned above, at 48 and a generally healthy non smoker. I also didnât âtick many of the boxesâ although I was overweight at that time. As it is now 10 years since my stroke, I can tell you that given some time, your frustration will likely ease and eventually be no more than a bad memory. As best you can, concentring on moving forward may help you as it did for me. Expressing your feelings is so very important and that will always be true. I have been amazed at how helpful this forum has been since i joined a month ago. I hope you find comfort here and keep posting with any and all your feelings.
If ever you need help with getting to grips with navigating the forum, just lets us know on here. There are a number of us who would be only too happy to help you out. And think @SimonInEdinburgh is also about to offer the same 
I might just add that when I joined the forum there was a basic & more advanced tutorial available to work through. I worked through these & they helped me navigate the site.
I assume they are still available & would, in my opinion, be a good place for people to start.
The other thing I do is just try on the grounds that you need to know a lot about what you are doing to be able to cause any damage. Most things are fixable. Good job really as I often make mistakes 
I currently know how to do the following things:
@msg-bot start {name-of-tutorial}
Starts an interactive tutorial just for you, in a personal message.
{name-of-tutorial}can be one of:tutorial, advanced tutorial.
@msg-bot roll 2d6
3, 6
@msg-bot quote
There is only one happiness in life, to love and be loved. â George Sand
@msg-bot fortune
You may rely on it
And in fact, these âhow toâ replies should really be split off from the post so as not to confuse. Maybe thatâs something @Alex_Moderator could do at some point. It needs to be split from here onwards https://forum.mystrokeguide.com/t/i-feel-so-angry-as-i-was-misdiagnosed/36654/15 and put in a new thread.
Itâs times like this I wish I had the permissions to do it myself 
And Iâm the one who took it off-topic really 
Hi Doug65,
Welcome! If you need help using the site youâll find some videos and other information on this page Jira Service Management you can also click on the question mark icon in the bottom right of the screen and ask a question such as âhow do I post a new topicâ or similar.
If an answer doesnât pop up in the results, fill in the form for one of the team to help you. We will then create a âhow-toâ answer for the next person who asks the same question.
Clement
@SimonInEdinburgh @EmeraldEyes
I have split the topic as requested. Hopefully it has worked ok. Iâve never done it before - 1st time for everything 
Hi Simon,
I did debate about leaving the first post but decided to move it as Emerald Eyes post referred to it.
Iâm probably a bit rusty on some things as my memory is not what it used to be & if I donât do something often I easily forget. 
When I agreed to do the moderator role I did indeed work through / read through some guidance.
The main part of my moderator role is, as I understand it, to approve / reject new users, review flagged posts & a few admin type tasks like splitting posts, editing them if necessary etc.
I donât have the same level of permissions as people like Alex or Clement as I donât work for the Stroke Association. I carry out this role on a voluntary basis around my paid employment. I would add iâm happy to do.so.
In relation to guides, forum changes etc I get the same opportunity to comment as all other forum users.
Enjog your evening.
Ann
