I think its extremely common. Im getting lazier and lazier. My stroke was in 2016. Actually got back to working p/t from home(took 18 months to get there), but when covid came it became more difficult so medically retired Oct 2020. Im now getting up later every day , around 10.30. Some days I can manage small and limited daily tasks, but Im always ready for an afternoon nap around 2pm. I am definately going backwards and to answer your question, for me, I dont think it will ever end. My life is spiralling in ever decreasing circles, I can see myself becoming a total hermit. Its just easier that way, who wants to know someone that cant do everyday joyful things like walking, shopping, socialising and struggles to get involved in conversations due to fatigue and forgetfulness ?
Hi Billysam I had my stroke in April and am still feeling tired not every day but quite a bit ...I had my first appointment with stroke consultant ,they don't know what caused mine...mine was a poci ,so now the tests just go on and on ...pippy
I had my stroke in 2013 and still get tired out of all proportion to whatever effort I've made. I'm now 81 and I don't know whether the fatigue comes from the stroke, my age, or (probably both) - I've never been 81 before!
Thanks for this. I had a stroke 6 years ago and despite my explaining to my close friends of 50+ years that I get fatigued they dismiss this as tiredness. I was about to give up and crawl into my shell but having read your post it has given me confidence, I will continue trying to see them
Many thanks again
Frankie
Hi
I am absolutely petrified of getting Long Covid as a result I am basically remaining in lockdown until I deem the "stats" say it's safe to continue with a normal life.
Has anyone who suffers from Post Stroke Fatigue also now gets Long Covid on top and is it as life changing as I fear
Many thanks Frankie
Hi.
I had my stroke at the end of 2017 I was 58 at the time and prior to the stroke was active and outgoing.
I suffered some left side weakness drop foot etc. But what hit me the most is the fatigue and memory loss/brain fog.
I thought I could do everything I'm used to doing and tried to push through but would hit a wall and pay the price every time, completely exhausted and unable to motivate myself to do anything.
this led to high anxiety and I'm afraid to say depression.
im now 62 and still unable to work any more than a few hours a week and although I'm trying to manage the fatigue as best I can it even now has a negative effect on my well-being.
I choose to stay as positive as possible but not being able to do the things I love can be a challenge. I like to believe that it will get better but do wonder if/when that will be.
I Had a stroke 3 years ago which left me very weak down my right side. I attended physio session which got me walking and improved my balance. After six weeks this ended and I substituted the phyio with 3 sessions a week in the gym which improved my muscle tone although I always seemed to lack the ability for that explosive use of my muscles and im sure some muscles respond better than others as there are some movements that are still very weak especially in my leg. I experience fatigue to this day and the associated fog, I try to ignore it against all advise and just battle on through it and I find after a while the fatigue is not an issue. Its as if the mind is saying you have no energy just rest but the body tells you its ok I have strength. As to when the fatigue and fog will go I dont think anyone can tell you, I live in hope but with no expectations.
I Had a stroke 3 years ago which left me very weak down my right side. I attended physio session which got me walking and improved my balance. After six weeks this ended and I substituted the phyio with 3 sessions a week in the gym which improved my muscle tone although I always seemed to lack the ability for that explosive use of my muscles and im sure some muscles respond better than others as there are some movements that are still very weak especially in my leg. I experience fatigue to this day and the associated fog, I try to ignore it against all advise and just battle on through it and I find after a while the fatigue is not an issue. Its as if the mind is saying you have no energy just rest but the body tells you its ok I have strength. As to when the fatigue and fog will go I dont think anyone can tell you, I live in hope but with no expectations.
It’s difficult to sort out what’s what! I’ve recently changed my thyroid medication and the endocrinologist asked if I’d had brain fog? I said it was difficult to know whether that was my natural state, getting older or the mini stroke last year. I have to say luckily it seems the meds are giving me a bit of a boost - between rests.
That's beautifully written Sarah. Good advice and accrate.
Thanks,
Ted
Early days yet. Be kind to yourself, take small steps and try not to get too frustrated.
I had my stroke in March 2021 and my left side is affected. Physio in the Stroke Unit helped to get my voice back and help me to start walking again. I still wobble and still struggle with walking even with a stick and get fatigued. I cannot do much and go to bed for a nap most afternoons and most things tire me out, My stroke consultant tells mr that we have to be patient as it will probably take at least 12 months to get things baack and at least 6 months after that to fine tune improvements. It is very hard and frustating, I miss me independence and don't know when I can drive again. Patience, and trying to resist cakes, is a virtue!!!!
I had my stroke in 2018 and was told I would not walk again. Well you don't tell me I can't do something !!! I walk, drive and live as close to as possible to a normal life save for slight balance problems when I get tired but I do still suffer from tiredness so have to rest every afternoon. What helped me more than anything in my recovery was a hyper active adorable spaniel dog? she made me walk every day and not lie in bed feeling sorry for myself!
Il had my stroke 3 years ago we were in Spain on hol thank god we had insurance I had two brain bleeds and aneurysm nd stroke all in a week I get very tired as well that's the worst bit I can cope with the memory loss it's not to bad but I think hubby gets a wee bit fed up with it but that's his prob haha I can't change how I am
I was at hos twice before hubby got doc in to hotel and sent to a diff hos and he was with me when I took the aneurysm and got help immediately and I took the stroke on the op table I couldn't have been more lucky with the way it all happened
I got seen to in min and was put in a coma till the docs got to the hos
I couldn't be more lucky really I'm walking and talking although my speech is a wee bit wonky especially if I'm tired Iv now got my driving licence back which I didn't expect
i tire so easy though I did think it would go away never mind I'm still here and remind myself every day
Fatigue is odd. Today, I did an hour of mowing. I sat with some friends afterwards for another hour, by the end I was incredibly wiped. My symptoms were acute, and I was wobbly and needed to rest urgently. I went upstairs and rested in bed for twenty-minutes, I listened to some classical music. After that, I had enough energy to cook myself some dinner and watch a television show. They don't know exactly what causes fatigue, I suspect it is the brain misfiring old pathways, and it gets confused, or the new pathways are getting a barrage of hits, and can't cope as well. Whatever the case, fatigue is draining, but requires a lifestyle adjustment to suit the limitation of the brain's function. And also, some of us may not have new pathways, and the brain needs to route around to get the message across. I am no medical professional, but I find it fascinating, especially observing how my brain responds but not when I feel rotten or course.
I have had 4 strokes since the age of 27,(now 47) and this is my worst one for side deffectes, ive have gone through heavy limbs about 4 weeks post stroke and now im going through Post Stroke Fatigue as well as insomnia i have been off work since April and thankfully work have furloughed me until my return in august just putting the vaccuum around the home leaves me feeling I have had a full body work out and im knackered. I have not faith or trust in both NHS and in social security. I have worked hard all my life and have lost every penny because of it I dont want to lose my house after all this, but similarly I know I will struggle when i return to work? PIP declared me fit for work when i wasnt a few years ago so im not thinking of them clowns as they are judged by a non professional !!! they will judge you as soon as you stand in front of them like a court marshall.
Had a stroke (SAH) last summer and learning to live with the fatigue. It was described to me like a phone battery with a draining effect. Now allow recovery periods which seem to help.
HI! I had my stroke a few weeks ago; just a small one which affects the 'sleepy' part of my brain. I sleep well at night,but cannot nap in the day. This happens even though I do lay down and rest.I have constant brain fog and cannot recall what I have done or need to do in the day. Will this pass? Do people really get better?
Hi Susie ,it's early days yet and the brain takes some time to re map itself I had my stroke 16 weeks ago I'm still a bit like muddly sometimes during the day but it is getting better and rather than get upset with myself I just laugh at myself it helps ...I know I'm not who I was before the stroke but getting to adjust to the new me ,who is actually ok ?...pippy