Hello everyone. 
My name is Gaina, I’m 52 and I had an ACA & MCA stroke in February. I spent 2 months in hospital and I’m particularly interested in chatting to anyone who also has Spina Bifida.
Fatigue is kicking in now, so I’m running out of things to say 
.
I look forward to chatting with everyone in due course.
@Gaina hi & welcome to the community. I hope you are doing ok after your strokes. Fatigue is very common & there are many posts on here relating to it. If you use the search to 
and type in fatigue you will find them all.
Look forward to hearing more from you (when you have the energy).
Best wishes
Ann
Hello @Gaina - This just a welcome message and to thank you joining the community and for sharing with us your story.
I am unable to share anything else that would interest or relate to you and so I wish you all the best. Others will no doubt have things to share which may help you.
Namaste|
Hello Anne, thank you for the warm welcome.
I shall have a mooch around the forum and see what’s what.
Hi Gaina-- Welcome. It’s understandable that fatigue is kicking in–very common after a stroke, as I’m sure anyone who has had a stroke will tell you. The only thing to do for it is the obvious>>rest. When you feel like it, look around this website. There is a lot available. Hope to hear from you again. 
Jeanne
Hello Jeanne,
When I was first told about stroke fatigue, I didn’t think it would affect me as I felt so good in the 10 days or so after my stroke. I was just coping with the physical side of things, which wasn’t so bad as I was already used to living with a disability, and the sense of humour that comes along with it (I used to joke with the nurses that the main up-side of short term memories loss was that I couldn’t remember what I’d ordered for lunch and dinner, so I was always a nice surprise).
All that changed when I was transfered to the rehab unit of my local hospital. The staff were lovely, but I was the youngest person in my bay, and all but three of the other patients had dementia, which meant very little sleep.
The fatigue and psychological impact have sort of crept up on me and been much harder to manage, and nobody warns you how tough coming home can be on the whole family.
I intend to be very engaged with this online community as I know it will help.
Hi @Gaina
Welcome to the community, I’m sorry to hear about your strokes. I hope you’ll find this community helpful for your recovery.
As a few people have already mention fatigue is common after a stroke, we do have some information on our website about fatigue which you may find helpful if you haven’t read it already. I also noted you mentioned about the psychological impact of a stroke, you may find our information on emotions helpful to have a read through, and of course this community will also be a great way to help with the psychological impact - there is a wealth of knowledge here, you can get tips from others who understand what you’re going through to help with this.
If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.
Anna
I used to joke with the nurses that the main up-side of short term memories loss was that I couldn’t remember what I’d ordered for lunch and dinner, so I was always a nice surprise).
This made me chuckle. But I like that you can see an upside to things. That will help you through the recovery process.
My fatigue was pretty instant although I didn’t know what it was at the time. For others it can take a while to show up. Balancing rest & exercise is the best way to deal with it. That may be more rest than exercise initially but hopefully iver time the scales will tip the other way.
Look forward to hearing from you again.
Ann
I’m having a tough time seeing the up side of anything at the moment if I’m honest I think the damage the stroke did to my brain caused almost a euphoria that vanished pretty quickly when I was transferred.
I don’t feel like me anymore and it’s incredibly disorientating.
I had a bit of a mental health crisis when I was in hospital which prompted my incredibly switched-on physio to do a second mood screen which flagged up some issues that saw me referred to a neuro-psychologist. During this consultation I happened to mention that I have long suspected I’m neurodiverse and the traits which gave me this suspicion had gotten stronger since my stroke. As a result of this my current Occupational Therapist has referred me to my GP for an Autism assessment.
Thank you, I’ll have a read through those.
Its a lot to take in having a stroke & your mood / emotions are bound to becall over the place so try not to worry too much about it at this stage.
I hope your neuropsychology appointment comes through soon & you gets lots from it. Other people who have had these appointments report positive things.
Having a stroke does throw up a lot of things that are very similar to autism traits. It may be your stroke cauaing the issues but an assessment will bottom that out I am sure.
Best wishes
Ann
Hello Ann,
Thank you for the reassurance.
I’m going to put my mind to good use and start my search for a P.A. I always feel better when I’m being proactive.
Hope you’re having a good day.
Hope you PA search is a successful one.
My day is going good thanks. Hope yours is too x