Harmful experiences of healthcare

Research participation requests are sent to the Stroke Association from external research institutions (e.g. universities and hospitals).

We conduct checks on these before promoting but are not involved in their running. This means we cannot comment on trials and have no affiliation with them.

London School of Hygiene and Tropical Medicine (LSHTM) and the University of Oxford.

What is the study about?

A study about experiences of healthcare-related harm is being carried out by researchers from the London School of Hygiene and Tropical Medicine (LSHTM) and the University of Oxford.

We are carrying out individual interviews to explore their experience(s) of harm. By healthcare-related harm we mean any person who feels they have been either physically or emotionally harmed by NHS treatment or care or the lack of it.

We are also interested to learn about people’s decisions and any actions following these experiences.

The purpose of this study is to:

  • better understand the experiences of those who have been harmed by NHS healthcare
  • to improve the services and support available to people receiving treatment and care
  • to help healthcare providers ensure they can support and meet the needs of someone who has been harmed in the best way possible

The information we get from the study will help our knowledge and understanding of experiences of harm and how people make decisions following these experiences.

What will it Involve?

The research team is carrying out individual interviews with a small number of people to explore their experience(s) of harm.

These will usually last between 60 and 90 minutes, taking place at a convenient time for you using video-conferencing software (such as Zoom, Teams, Skype, or Facetime) or over the telephone.

You will be asked to describe your experience, and any actions you took following these events

You can choose to have a friend or family member with you for support if you wish.

Who can take part?

The team are looking for adults who have experienced psychological or physical harm from any care or treatment they received from the NHS in the last 5 years.

The selection of who to interview is based on the need to hear from a wide range of people with different backgrounds and experiences, particularly disabled people and those from diverse ethnic, religious, sexual and gender groups.

What are the Possible Benefits?

We cannot promise that the study will help you personally. However, we have found that people often appreciate being interviewed, as it’s an opportunity to talk about your experience to an attentive listener.

At the same time, you will be contributing to research of national importance.

We will send £30 shopping vouchers to participants following interview(s) as a thank you for your time.

How Can I Register my Interest?

Researchers, Lavanya Thana and Helen Crocker, can be contacted on 07849 310 428 or healthcare.experiences@lshtm.ac.uk for more information.