Going private?

About stroke Physical effects
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Hello, fellow stroke survivors,
I just want to ask for advice as I seem to be stuck.
I live in Bedford. I used to attend NHS group physiotherapy but these are not tailored to my state and I did not see any progress. I am now trying to find a private physiotherapist but I struggle to come across anyone. Is it in general that there aren’t many specialists doing private sessions or do you find them somewhere special?
I would be very grateful for any advice as to how you maintain physiotherapy in the late time after a stroke as it has been 2 years since my stroke and I am still struggling.
Thank you

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Hi @Monika, there are a number of ways to search for this, Neurological Physiotherapy, Sports Injury Physiotherapy and Osteopaths. You will find someone in all three profession who has experience if not specialising in the likes of stroke, MS, Parkinson’s rehabilitation.

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Hi Monika, I found a brilliant private Neuro Physiotherapist after using Google looking for Neuro Physiotherapists in my area (Kent).

We also have a local Neuro Rehab Team available on the NHS and you can refer yourself.

Good luck with your search, I hope you find something useful.

Regards Sue

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May I ask what you need help with, Monika ?
or what are your main difficulties?

Good luck, Roland

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Aren’t we all?
(sorry, I couldn’t resist)

Roland

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Yes, mainly my hand it is almost completely useless and unrecovered
Does this give you an idea?

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Monika, I hear you,

It’s a tough one to solve, for sure. @SimonInEdinburgh was planning a few meetings where stroke survivors put in their support and experience to help each other… would that be something that interests you?

ciao, Roland

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Hi Monika,
I had excellent NHS physio when I left hospital but when it finished I felt I still needed further help. I eventually found an Organisation that employed physios who work for the NHS hospitals but also look for private work. I have now found a great physio who comes to my house usually once a week or once a fortnight. I live in Norfolk but don’t know if this help is available where you live. It’s quite expensive but well worth it - I hope!! Good luck

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I’m in Kent, too, Susan! (West Kent). And thinking about a private Neuro therapist, mostly because I can’t seem to get the answers I need from the NHS. Are you able to share where you found your one, please?

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Hi Trace, sorry it was a long time ago and I can’t remember the name. I just googled Neuro physiotherapist in my area and struck gold.

Good luck with your search.

Regards Sue

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Is this like a peer support group or the goal is different ?

Thanks

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This is different, a self help group,
there’s no goal other than to help each other

Ciao, Roland

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And Monika,

forgive me if it’s not my place to say,
but atrophy sets in after 2 years, so I’d really encourage you to get that arm moving,
don’t wait for a physio or a miracle, take matters into your own hands; time is of the essence.

Again, forgive me for speaking up,
ciao, Roland.

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Have you come across Arni? (Action for recovery from neurological injury)? They have trainers that come to you for exercise. Not free but low cost.

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Hi Simon

I’m a great believer in ARNI. We have two near me, which is great, but with DVD and books I can remind myself of the exercises I need to do/find new ones.

And yes I’m in Carlisle. Hope you enjoyed your visit.

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I’m also two years post and still struggling with most aspects of physical movement. I can only do about 10 minutes with a walking aid. I developed foot drop about a year ago which makes things more difficult. I’m hoping in better I will get out more. Until then my exercise is around my flat. I found one physiotherapist by word of mouth and another by trying a few sessions with them. I now don’t have any but do rely heavily on Utube. Which I find has videos for every ill! Good luck

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Did you not get support from the team at flitwick they supported me when i had a stroke in jan 23and were brilliant

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Hello Monika, this thread has been very informative for me because I also have FND (functional neurological disorder) and had no idea how close it is to stroke, in terms of treatment. I searched for a private neuro physio and have had two sessions at my home. I haven’t been seen by any NHS staff since the end of September. I was carefully assessed for strength and balance and given exercises to do and links to follow up for other activities I might do. I hope you find someone to help you.

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