Has anyone used any of the products or advice promoted on the Flint Rehab site? Or perhaps you know someone who has. If my hand and arm can be helped, I would be very appreciative. Thanks, Margaret
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I have been thinking about Flint rehab too. Has anyone used their Physio’s? We live miles away from the nearest instructor which bumps the cost up. Quite happy to pay nearly anything if I knew it would help.
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I’ve looked at their stuff but never taken the plunge. They seem to focus on many repetitions & I felt that i could do other stuff
without the cost. Then i wasn’t as badly affected on my arm as others.
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I am interested too - their advice on exercises seems good, but the Music Glove is expensive. Mostly the people in the adverts report improvement after only using it for a week or so, I would like to know what results from long term use. That would give more idea of whether it is worth it. My hand and arm are pretty useless, but i would hate to spend that much on something that didn’t do very much.
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Hmm, I think i’ll give it a miss for now… you are much further along with your affected hand than I am atm, I can grip my pants to stop them falling down when I’m putting them on, but I can’t hold a spoon in that hand at all. My unaffected right hand is not all that good either with fine movement, so I sometimes end up with dribbles too, though at least I don’t have a beard!
I have found that sometimes trying something new results in a small gain at first, but then nothing more, which was why I was suspicious of these testimonials. Also, I have been doing my leg strengthening exercises religiously for the past 2+ years, with very little improvement in my walking. I can do about 200m with a quad stick, very very slowly! I now no longer hope for quick results, just do the exercise to keep me moving until my brain figures out how to rewire some of the circuits!
Jean
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Thanks Simon, this is actually very helpful and encouraging because it is the sort of thing I was thinking, but wondering if I was just deluding myself a bit. It is difficult, with any progress being so glacially slow, to know whether I’m trying too hard or not hard enough.
My physio recently thought I should back off a bit, and try “less is more”, but I’ve found that after a bit of a relief, actually less is definitely less! I find that with limited energy I really need to use it on the exercises that will give the most results. So I like the idea of trying new ones for a while until diminishing returns sets in, and going back to them later - rather than feeling guilty about abandoning them prematurely!
Jean
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