Hi finally got my husband home after the NHS brought on a stroke from a medical procedure they did.
The stroke affect my husbands speech he has aphasia and dyspraxia. His stroke was Oct 2025 after spending 9 weeks in the stroke rehabilitation unit he was desperate to come home. His intelligence is not affected he knows most of what you say to him. He can’t seem to sleep in the day and spends every hour through the night on the toilet peeing. I’ve asked my GP about this and he said it’s the stroke and a combination of his meds. He’s on Apixiban and bisaprolol he was on candersatan 2mg but the doctor has taken him off it. He’s drinking about 2.5 litres of fluid as he had a water inf a bug from the hospital but the fluid seems to have got rid of it. The alternative was back in hospital for a drip for 3 days which would have been over Xmas. Thank goodness that has gone. My worries are the toilet trips thru the night (was still going like this before drinking the extra fluid) and he can sometimes shiver/ shake like a tremor when he’s asleep. He’s been off the candersatan for 4 days now and his stats are all good. The fatigue is wiping him out. His speech is getting better but still way off. Can’t get speech therapy through the NHS a long wait list so I’ve found a private one to do 3 times a week. It’s now 10 weeks since the stroke. Any help would be grateful
Lynne
A stroke can affect your waterworks. I found the opposite to your husband and found that I could go forever without needing the toilet. This did settle in time so hopefully it will for your husband too. 10 weeks is no time at all in stroke recovery terms. Maybe now the bug has gone he could try cutting back on his fluid consumption……But not too much . Or alter the time he drinks it so it isn’t too close to bedtime. Could some of it be in his mind? As in he’s worried about not getting to toilet in time therefore is going “just in case”. Many years ago I had an overactive bladder. I am on meds for it now but I also had to retrain my bladder. This involved increasing the gap between toilet visits. This did mean I had an accident from time to time but I did eventually manage to increase the gap between visit. I also stopped going just in case (e.g. if I was going out somewhere). He could also try some pelvic floor exercises. You can look these up on internet.
Fatigue is likely to be bad at this stage. Especially if he isn’t sleeping and is constantly trekking to the toilet. He will need lots of rest at this stage whilst his brain does some rewiring. You have to learn to manage fatigue. That involves pacing, prioritising, planning and not overdoing things when you’re feeling a little brighter. For the first 6 months I couldn’t stay awake. It does get better in time.
Be patient improvements will happen.
Best wishes
Ann
I was the same with the toilet. And still am at times. And when I need to go I sure need to go. It has got better though and I hope it does for your husband.
Fatigue. I’ve managed to get back to work 3 days a week for 5 hours max each time. But when the tiredness hits me I’m gone for the rest of the day. It has got better and my sleep pattern has improved but I can’t say from one day to another if I’ll get by without the tiredness hitting me.
This site has helped me a lot to understand how each stroke effects people differently. I’m very fortunate to have only been effected by my speech and that’s almost back to normal. But the fatigue part I wasn’t expecting I only lost my speech. But like the nurse said. It’s still a stroke and you will suffer stroke symptoms so remember that and take care of yourself.
Sending you and your husband my best wishes.
I had an exhausting time of toilet visits for the first year, even without drinking excessive liquids. I just couldn’t seem to empty the tank in one go and was up eight or nine times a night before I felt sufficiently done enough to find a patch of sleep. I think this has been mentioned in the forum before, so if you use the magnifying glass to search for a relevant word, you may find some good posts in the archives also.
That’s great news Lynne - try and take things easy and don’t rush into things or worry. The recovery has started and it will take time. The journey will be as per your husbands body to accept the changes and work on the rehab activities.
Do not worry if your husband needs time to stop and rest - plenty of rest is recommended to allow the body and brain to recover. There are many things that can be done - it is a matter of prioritising them and allowing things to progress nicely.
Well done and best wishes.
I don’t know if it is relevant but I take a medicine to stop making me go to the loo at night as I have a rare pituitary problem. The one I am on is also used by people with multiple sclerosis. It is made by Ferring and is called Noquturrna. In a way I hesitate to mention it as your husband may be on several medications
Thank you I will ask the gp about this medication
I looked on the stroke website but it doesn’t say anything about peeing at night. It is a long shot. I also looked at what the medication is for. It just says peeing at night. It is spelt Noqturna. The active ingredient is desmopressin and you take it under your tongue without water an hour before bed and not with food. See if you GP has heard of it.
@Lynne26 This is dreadful news. Sue the NHS. My heart goes out to you both as your life has been turned upside down. If you can obtain proof it was NHS fault you will win. Good luck 
