Hi, my name is Ann and I had my stroke December 2023 also, I still get stroke fatigue especially when I have had an active day before or company, just talking can tire you.
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Hi Ann @Annie1 Welcome to the community. Stroke fatigue can be a difficult one to master but it’s mostly about managing it. Makibg sure you take regular rest breaks before you have done too much. You need to find a level of activity that works for you & stick with it even on your better days so you can avoid the boom & bust cycle.
Who knew holding a conversation could be so tiring. I still have to limit that 2 1/2 years on.
Hope you ate getting on ok with your recovery otherwise.
Best wishes from another Ann
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Hi @Annie1 just popped in to welcome you to the forum and look forward to seeing you around the forum 
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Thank you very much for your warm welcome.
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Yes a tough one as you want to do as much as you can to aid your recovery but feel too tired to do so. Then I feel I am letting my Physiotherapist down, who is working hard to get me to walk. Just going to be longer than I thought, determination isn’t the be all and end all
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It will get better, but right now the brain is doing an awful lot of work in repairing and redirecting you brain signalling system which has been damaged/burnt out. So naturally it needs a lot of rest, and you can help some with that just by 5mins or 15mins there to close your and just be for a few minutes.
This can help to better able you to pace your day. Just by shutting the eyes and sitting still, shuts down a few senses, thus freeing up the brain for a few blessed minutes reducing some of the strain on it for a time.
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I think we all expected things to happen quickly following our strokes. I told my boss i’d be back at work after Christmas…inhad my stroke in the December. It was 18 months before I got back 
Lots of patience is needed with stroke recovery but you’ll continue to make improvements. Don’t ever think you are letting your physio down. They will understand how tiring it all is.
Best wishes
Ann
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We’re all different so it’s stands to reason the stroke and subsequent recovery will be too. I’m 4 weeks back after a 6 month absence but it’s all personal to you. Don’t pressure yourself though. Your brain has enough to do without you putting more pressure on yourself. Just take your time and rest when you need to @Annie1
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Indeed, I thought I would be walking at the 6month stage but very baby steps, the weak side still needs building up to get strength back, wall and furniture walking easy, but does not transfer to ditching the stick, although trying to only have two fingers on it.
Thanks for all the input and advice so appreciated.
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Hi, since my CVA end of April I have fatigue. Some days are worse than others. I do find that pre stroke i was very active. Now im trying with my set goals to build that up gradually. I rest when my body tells me then “go again” when i feel like it. I also write a diary of what ive achieved so far post stroke. Little and often works for me. However, i do have “up and down” days. I know it will be for me a “long road” to recovery. I do have great support from my family & friends which have been a great help.
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That sounds like you’re doing all the right things. You will hopefully see steady progress & many improvements over the next few weeks & months.
Good luck x
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Hi, I am so exactly where you are since my stroke in December, thought I would be taking unaided steps by 6 month, brain says no, so I am not setting goals now as the healing takes longer than expected, but good to know we are getting there. Annie1
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I always set goals but made sure they were realistic so that I didn’t get despondent if I didn’t reach them as quick as I’d like. It might be something like walking 5 steps this week, then once achieved up it to 10 but of course your goals will be personal to you. It kept me focussed on my recovery & helped me progress.
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Fatigue is my nemesis! I am coming up to five years post stroke, which I can not believe!
I have managed to return to work part time.
Headaches which increase with fatigue are a constant for me. I try to balance myself but it appears I don’t actually do this very well! I no longer rush to ED thinking my brain is bleeding again, that’s a positive!
I moved area and I no longer know which, if any stroke team I am under! I feel I have been abandoned, as I know other feels as well.
I felt supported when I was in London.
I need to see my GP really to see if anything can be done.
I’m feeling quite sorry for myself at the moment (did it show?!!)
We are all different and I know not everyone suffers, so skip past my moans please if you are one of those fortunate people.
Vent is now closed!
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Sorry you’re still suffering fatigue after 5 years. I’m 2 1/2 years on & I suffer still too. It gets you down at times doesn’t it.
I suspect if you’ve moved areas you’ve probably dropped off the stroke teams radar. I’d definitely make a GP appointment & get them to do some bloods etc. Your fatigue might not be stroke related & could be caused by something else. Might not be worth a check at least.
Best wishes
Ann
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Thanks Simon 
The after stroke service is for six weeks once discharged from the hospital. I did have that. I will give the helpline a call and also see what my GP can come up with. Thanks for taking the time to help!
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Hi Ann
It does get you down. I guess I thought it may get better or I’d get better at managing it so it would appear to be better, if that makes sense.
Some days I feel like I’ve not made much progress at all at times.
Hopefully the GP will sort me out!
Thanks for your support.
Best wishes
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Having a good moan on here can keep both cathartic and inspirational as it allows you to see things from new perspectives.
Now the key to getting your fatigue investigated thoroughly might be to not mention your stroke at all. Just mention this issue of fatigue as an individual symptom, not linked to stroke, and just allow the doc to investigate it. Be sure the doc orders a full blood test, that he’s testing for low nutrients in the body too. And to speed things up just a tad, take a urine sample with you. You can pick up the test kit any time from your GP’s reception. On the morning of your gp appointment, take the test first thing in the morning, at mid stream is usually the best.
Never assume or just accept that your Fatigue is a post stroke symptom. Fatigue can linked to so many ailments such as:
Lacking in a certain nutrients;
Type 2 diabetes, which isn’t just linked to weight and poor diet, it also comes with age.
Menopause
Stress
Sleep disorders
Certain medications.
Or it can also be a warning sign to something more serious. But we don’t need to go there yet as that would just be catastrophising at this point in time.
So its always best for your own health and wellbeing to get these symptoms ruled out before you settle in on it being an after effect of your stroke you just have to contend with 
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That makes perfect sense to me. I often think it should have got better by now & as it hasn’t I guess i just don’t manage it as well as I should. Work plays a part in that vecause to a certain extent you have to plough on regardless.
I hope you get some answers from your GP. It could be something easy to resolve.
Ann
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Thank you. It is easy to blame the stroke for everything and I know I shouldn’t!! I will definitely get a blood test.
Thank you.
Best wishes
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