Early Retirement

I was due to go back to work in January but Occupational Health have said they think I am unfit to do so, I am a carer. They said when I am due to go back I will need a capability to work assessment.

To say I took it badly is an understatement but after long talks with my brother and my husband I have finally admitted that I am no longer fit enough for the job. A heart attack at 45 a stroke at 53 and now being told I am going to need two knee replacements sooner rather than later.

The past two mornings I have woken with vertigo type symptoms like before the stroke and extreme fatigue and headaches I think it’s due to all the decisions I have had to make.

I have informed my work I wish to apply for early retirement due to ill health I just hope I have done the right thing.

Sorry for rattling on this is my go to place when I am struggling and panicking about symptoms

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Hi Simon

I can’t sleep in bed every time I move in bed the room is spinning and feel sick I am now on a livingroom chair.

I take my meds as I am supposed to I haven’t seen my go yet. The hospitals are so bad with waiting times I am trying to avoid going. If it keeps happening I will try see go on Monday. My bp seems fine.

This is how my last stroke (cerebellum brain stem) started so I am very frightened. I had none of the FAST symptoms.

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Hi Simon

I am at A&E at my husband’s insistence my blood pressure is 142/101 my head is very sore but been sitting here 2 and half hours just want spinning to stop so I can go home. Said it probably is another stroke waiting to see a doctor

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Shwmae @aodonnell1743, was it cerebellum and brain stem stroke? All I can say is that three years after a cerebellar stroke I still get giddy, sometimes it gets worse over periods, particularly if I am stressed or my brain has to deal with another bodily symptom like a stomach bug or weakness from not eating. My stroke consultant told me that an unusual after effect of cerebellar stroke can be regression, this is part of what they describe as cerebellar stroke syndrome. Chances are you are not having a TIA or another stroke, the cerebellum fine tunes vestibular-oculomotor reflexes, this a fairly complex system, and requires fairly comprehensive rehabilitation because of the ever changing visual-spatial awareness

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@aodonnell1743 sorry to hear you’re back in a&e and i really hope all turns out ok & you can go home soon.

In relation to work it sounds, especially given the symptoms you describe, that applying for ill health retirement is the right thing to do. It’s really difficult to accept it though isn’t it. Part of that is because it is not a choice we make…it’s more forced on us.

Your health has to come first though & once you’ve had time to digest the news you’ll be able to move forward & seek new opportunities when the time is right.

Wishing you all the very best & hope you get good news from the hospital.

Ann x

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Yes it was a Cerebellar stroke. I have had a lot of stress lately. I have been kept in hospital and probably have a mri tomorrow so the doctor said. I showed the consultant your note she said oh that’s interesting. Will keep you posted how I get on

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I’ve heard a Cerebellum stroke hugely upsets balance, vertigo problems and sickness.
Good luck. Roland

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I am home now the bppv test was negative. I have to go back tomorrow for an mri scan and take it from there. Thank you for all your support x

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Yes I have had a mri before I am glad test negative.

They didn’t seem to take in my concerns re stroke or offer reassurance that’s why I am angry and upset

I will be glad when it’s all over.

Thank you for your support

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Well @aodonnell1743, you might be interested to know that the cerebellum is an integrator for emotions, so if you have been stressed or upset, it could disrupt its other processes. The entire brain (cerebrum, cerebellum, brain stem and stomach) balance or spin plates every day, any disruption to that process can cause a plate to wobble or even smash.

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To be honest my consultant never explained any of this to me.

I feel like a nuisance going back to the hospital but what am I meant to think if I am not given the information

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Noswaith dda @aodonnell1743, oh no, don’t feel like a nuisance. cerebellar stroke is rare, only 2-3% of all stroke are cerebellar stokes. This is stuff they need to know. You’ve had one, you can contribute back to the medical database of knowledge. it’s invaluable. The cerebellum is an under-researched part of the brain, medical scientists are only just revising theories about is function, your help will help others change their lives after stroke.

Just to let you know my MRI was clear they said I suffered from vestibular neuritis. They gave me tablets that weren’t to be taken if you had a stroke had heart problems or epilepsy I have all three said I can take them but may have a seizure so I refused they gave me other tablets that stopped the dizziness after 10 days

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Glad your MRI was clear & that your dizziness has been resolved with meds. Can i ask what meds you were given? I have dizziness and not found any to help yet.

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They tried me with Prochlorperazine but these shouldn’t be given to someone that has heart problems had a stroke or epilepsy I have all three so refused to take them.

They then gave me Betahistine Dihydrochloride these stopped the dizziness and vertigo after a few days.

I hope this helps maybe get you some relief xx

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Thank you. I tried betahistine initially but it didn’t help so no longer take that. Glad they worked for you though.

I currently have Prochlorperazine but don’t take them as they give me awful headaches although do ease the nausea. I’d rather the nausea than the headache.

I’m hoping the ENT consultant will be able to prescribe something that works.

Happy new year.

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Hope you get something that agrees with you.

Happy New Year xx

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