If you like me had a tracheostomy fitted (a tube that goes through the neck into the trachea to aid breathing.i want you to know that Decannulation (removal of the tracheostomy) is painless, you may find that it takes a little while to nose breath rather than mouth breath, but please be encouraged that you will get there and won’t need the bit of plastic making you feel less human. I’m doing fine 3 months after it’s removal, and i’m now looking forward to speaking again because it of course cuts off your vocal chords. There is no physiological reason why i can’t speak I just need to learn how like a 14 month old baby. Please insist that you are fitted with a speaking valve and given the necessary SALT. If i had been given the correct support 4 years ago i’d now be talking and wouldn’ need this ipad to communicate that i use as an AAC communication device, text to speech. Best of luck 2% of stroke survivors are fitted with a tracheostomy.
Thanks for sharing your experience. I can’t even begin to imagine how having a tracheostomy must have felt and how relieved you must be to have had it removed. I really hope that you get back to speaking very soon. Best of luck.
Well done Mich ;
Keep chipping away and whole world will open up to you, one day. I sincerely believe so.
Roland
Hi @Mich-mm Thank you for sharing your experience. I’m sure that with you will be chatting away soon.
Keep us posted about your progress.
Regards Sue
Hello sue @Susan_Jane while at the rehab hospital (Rhn) I received a little SALT but no where near enough.now in a nursing home I got 6 hours of NHS community SAlT but they focussed on eating, which I’m grateful for because being PEG fed is dehumanising.but my daughters have engaged a private SALT whom I saw yesterday,she was very encouraging and hopeful that I’d progress.