Hi how are you lot dealing with fatigue, had my stroke 4 months ago and I’m not dealing to well with my tiredness, on Saturday i had a walk round the local park, then went town to get watch repaired, then went dads for vist, then on evening I went local pub for a few hrs , did nothing Sunday and today I felt awaful , like I’d gone backwards . Surprised me , suppose I need to manage it better.
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Saturday was cleary a hectic day for your brain. Its an awful lot for brain take in and process all in one day, particularly the going into town and the pub. You would have faired better only doing the one of those those two in the one day. There’s an awful lot more activity, thinking, planning and negotiating to be done with those. It drains the brains current level of stamina. 6 months to a year from now it may very well be much easier to pack that much in, so don’t despair, its only been 4mths🙂
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Your so right, I have to get use to managing it better, an hr rest in bed today after work / training and I feel 100 % better
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How are things now you have gone back to delivering training?
When I delivered training I found it very tiring. I know that You said locksmithing gives your students lots to do rather than you but it must still be tough.
If you’ve been caught out by fatigue this weekend it could be that you had a hard week rather than a hard weekend fatigue doesn’t just happen the day after
Ciao
Simon
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ArhhI didn’t know that, I thought that fatigue came on you 24 hrs later ,
Training is coming on ok , it just getting use to doing less then I’m use to, but hopefully I’ll get back some of it eventually
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Obviously it’s easy to spot when it’s do something one day and feel wiped out the same day or the next day but with neuro causes lights thinking driving noises busy environments… It may not be quite so obvious 
Ciao
Simon
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Hopefully I’ll get use to it eventually
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@daveymitch that was a lot of activity in 1 day. That would have wiped me out for a week and I’m 2 years on. At the 4 month point that level.of activity was just a dream.
You need to try & introduce activities gradually & increase them over time. Then when you find your limit try & stick to it even if you feel ok.
It can take a while to work out the balance that is right for you. Keep a diary of what you’re doing & when you get fatigued & that should help you identify a pattern.
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Hi: daveymitch
Like you initially I tried to do too much per day but eventually realised I could not attempt what I did before the stroke - work for 8 to 10 hours in my workshop making or restoring race cars. Brain fatigue set in after 4 to 5 hours which I tried unsuccessfully to resist. I finally accepted change and modified my lifestyle to working either in mornings or afternoons , dependant upon how I feel when up and breakfasted. Sometimes it’s off for 4 to 5 hours and then return for a few hours on the “daybed”. But if after breakfast the brain is still clouded, then its onto the daybed until the brain is clearer and its off for the afternoons work.
Conclusion: Life changes after a stroke so that lifestyle needs a similar change to help the brain recover and to regenerate the missing links. It’s now 2 years since my S and I am still in recovery. It takes a long time and one should realise that life , as we knew it, would/will never return 100% but make the best of what you have got.
Please take it a bit slower
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I try to restrict myself to one appointment/event/trip out per day. Limiting these in my diary helps; along with expecting to be tired afterwards.
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Hello - I’m 53 and two years in and still have to manage fatigue on a daily basis. I try to go swimming most week days - sometimes I get to the pool side but know I don’t have enough energy to get in or out and go back and get dressed! (pre stroke I use to swim every day for an hour - now I only have energy for a maximum of 40 minutes on a good day - perhaps doing that once or twice a week at most). I went to the pub for 3 hours and had two pints before Christmas - it wiped me out for over two weeks, with the wave of fatigue coming in usually 24/36 hours after. Thats my usual pattern. This sunday I saw some friends and a cousin for a coffee and a cuppa - Tuesday I was hanging and dragged myself around all day - that lasted two days. Over the two years I’ve worked out I have Physical Energy and Brain Energy. The Brain Energy depletes fastest and if I have little physical energy (if I’ve been over exerting myself walking for instance) it depletes even faster still. I have to balance both. It’s not easy. But now plan better so if I am going to be using my cognitive brain or socialising in a busy/noisy environment where I’m asked lots of questions I will have a couple of rest days before the event and clear my diary (its never busy these days!!!) 24/36 hours after knowing I will be tired and little use to anyone. I also have to limit my time doing things that will tire me quickly - or not do them at all. Bit frustrating - especially for my wife - but its just how it is right now. It’s all about adapting, anticipating and planning - Its work in progress for me still but I’m getting better. Hope this helps. Rod
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