Dad has had a stroke

Hi everyone,

My dad had Stroke 2 weeks ago, it has caused Cognitive impairment. We found out today is is a multi territory ischaemic stroke secondary to AF.
This is very new to me, my sister’s and my Dad, we don’t know his future.
We have alot of questions

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Hello @Janelh67 - Welcome to the community. I am sorry you have had cause to join the community following your Dad having a stroke.

I understand you have a lot of questions - this is good because it suggests you are coming to terms with the situation and looking for answers to help you.

There are lots of different ways in which you can get the answers you seek including from the team who is looking after your Dad, various organisations such as the Citizen’s Advice Bureau (CAB), The Stroke Association and many others. And of course there is this wonderful community of which you are now a member.

Please feel free to ask any questions you may have and rest assured someone will likely come up with an answer for you.

The more detail you provide with the question, the better targeted the response will be.

Wishing you, your sisters and your Dad all the best.

Namaste|
:pray:

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Thank you @ManjiB yes we have alot of questions and hoping to get some answers today, we have a meeting with the OT.
Dad is very mixed up, he gets our names wrong, he is hallucinating, doesn’t really know what’s happening.
It is very hard for the family, but even harder for Dad as his life has been turned upside down.

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Hi @Janelh67,

Welcome to the community. I’m sorry for the circumstances that led you here, but we’re glad you found us.

It sounds like the past couple of weeks have been incredibly difficult for you, your sisters, and your dad. A stroke, especially one as complex as a multi-territory ischaemic stroke caused by AF, can leave everyone reeling. It’s completely understandable that you have a lot of questions right now. Below I’ve collated a few places where you might find answers. I hope this helps.

  • You might find our Stroke Information Pack helpful right now. It’s free to download and includes information on types of stroke, next steps on supporting your dad in the different stages of recovery, including support for yourselves as a family. There’s also more on what recovery can look like after a stroke here: Understanding recovery | Stroke Association.

  • We also have a dedicated page that might be especially useful to you and your sisters right now: Caring for someone close to you after a stroke | Stroke Association. Even if you’re still figuring out roles or next steps, this page covers:

    • Practical support: including adjustments, planning, and resources
    • Financial support: guidance on what might be available
    • FAQs: common questions from families in similar situations and links to other helpful information and organisations.
  • Our Stroke Support Helpline is also a great option if you’d rather speak to someone directly, our staff are very knowledgeable and also provide emotional support: Do call them at 0303 3033 100 (Monday-Friday, 9am-5pm, Saturday 10am-1pm, Closed on Sundays) or email them at helpline@stroke.org.uk.

When you feel ready, you’re welcome to share more about your dad’s current situation, things like how he’s doing day-to-day or what you’re finding most difficult right now. That helps others in the community share advice, encouragement, or just listen.

I hope the information above helps, and don’t forget to also take care of yourself.

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We had our meeting early with the OT, Dad created again early hours so we had to go to the hospital, we have made the decision to put Dad in a care home short term. There was damaged to his cognition before the stroke but he managed to mask it.
So so hard.

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@Janelh67 Hi & welcome to the community. So sorry to hear of your dad’s stroke & the issues he is now struggling with. A stroke is a major event which affects not just the patient but their loced ones too. It turns lives upside down in an instant.

This is a great place to offload or ask any questions you may have. It is full of stroke survivors and carers all with lots of lived experience.

It’s good that you have made some decisions regarding your dad’s care & as hard as that is it will give you the space you need to come to terms with what has happened.

In many cases people make good improvement after a stroke. 2 weeks is extremely early in stroke recovery terms & in time your dad will hopefully see some improvement in his cognition. It is natural to want all the answers now but be patient it will all start to work itself out. Stroke recovery is definitely a marathon not a sprint.

Best wishes to you all.

Ann

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Sorry to hear what has been going on. Had your Dad agreed for the GP to be asked to refer him for a memory assessment before the stroke? Confusion and memory loss he is experiencing now most likely a consequence of the stroke and its impact.
Is your Dad funding his respite? If he needs financial help, the threshold for local authority assistance is £23250 in disposable assets.
Let me know if I can help. Take care.

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@Janelh67 - how are you getting on with planning your Dad’s care?
Did you find a care home for the short-term?
What about the long term?

Hopefully, you are all beginning to come to terms with the situation you find yourselves in.

Please do reach out - there is plenty of help and support available, you just need to ask :slight_smile:

:pray:

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