Mrs5K
13 November 2025 15:53
6
@stefanief1111 hi and welcome to the community. Sorry you’ve had cause to join us but hopefully you’ll find it a useful place to be. I don’t have any personal experience of a cerebral AVM however I put a couple of links below where this has been discussed before and this may be of some help for you.
Very interesting to read all your stories. I had a bilateral cerebellar stroke in June this year during a cerebral angiogram to check that my AVM had been completely removed. Prior to June I’d made a full recovery from the brain haemorrhage I’d suffered in Feb 2020 followed by craniotomy in Aug 2020. I’ve been making slow progress and can certainly agree with comments about dizziness and giddiness! I have had both - in the first couple of months following the cerebellar stroke I had constant…
Dear fellow stroke survivors
I had a Intra cerebral haemorrhage in 2019, the bleed was in my frontal lobe on the right side. I was extremely lucky to survive it but I did and I’m so grateful. I was left with a weak left side for a while and a sore tongue as I nearly bit it in half as I had a seizure when it happened. I was also left with terrible headaches just at the site of the bleed, I was told it’s very unusual to have this type of stroke and it shouldn’t happen where it did??
So I got on …
Hi everyone
My husband is 40 years old. He has a large, deep AVM. He has had 2 hemorrhages in his life - one at 21 that they embolised and one at 24 which they said was smaller (though gave him minor paralysis on his left side) and so didn’t treat.
They told him at the time that any invasive treatment was too risky as it was deep, large with several weak spots. And so he has just gotten on with his life, living to the fullest.
This year I convinced him to go for a check up and he’s had an ang…
Best wishes
Ann