Cerebreal AVM

[stefanief1111]

Has anyone here ever suffered from a Cerebral AVM?

[IreneFC]

@stefanief1111 No and I do not know anyone who has. I am sure someone on here will help. Good luck

[stefanief1111]

Many thanks for your response Irene.

[stefanief1111]

In October 2024 i had a seizure which led to a stroke - these came through a cerebral AVM (grade 5) which ruptured. I am doing ok now, but was told it will always be there.

[Susan_Jane]

Hi @stefanief1111 sorry to hear of your stroke but I’m pleased that you are doing ok Welcome to our community, I hope you will find this a useful place to be.

I have no personal experience of Cerebreal AVM but I’m sure that someone here will be along shortly.

Regards Sue

I

[Mrs5K]

@stefanief1111 hi and welcome to the community. Sorry you’ve had cause to join us but hopefully you’ll find it a useful place to be. I don’t have any personal experience of a cerebral AVM however I put a couple of links below where this has been discussed before and this may be of some help for you.

Nearly a year after a stroke

Very interesting to read all your stories. I had a bilateral cerebellar stroke in June this year during a cerebral angiogram to check that my AVM had been completely removed. Prior to June I’d made a full recovery from the brain haemorrhage I’d suffered in Feb 2020 followed by craniotomy in Aug 2020. I’ve been making slow progress and can certainly agree with comments about dizziness and giddiness! I have had both - in the first couple of months following the cerebellar stroke I had constant…

Stroke from an AVM

Dear fellow stroke survivors I had a Intra cerebral haemorrhage in 2019, the bleed was in my frontal lobe on the right side. I was extremely lucky to survive it but I did and I’m so grateful. I was left with a weak left side for a while and a sore tongue as I nearly bit it in half as I had a seizure when it happened. I was also left with terrible headaches just at the site of the bleed, I was told it’s very unusual to have this type of stroke and it shouldn’t happen where it did?? So I got on …

AVM Treatment decisions

Hi everyone My husband is 40 years old. He has a large, deep AVM. He has had 2 hemorrhages in his life - one at 21 that they embolised and one at 24 which they said was smaller (though gave him minor paralysis on his left side) and so didn’t treat. They told him at the time that any invasive treatment was too risky as it was deep, large with several weak spots. And so he has just gotten on with his life, living to the fullest. This year I convinced him to go for a check up and he’s had an ang…

Best wishes

Ann

[Anna_Moderator]

Hi @stefanief1111

Welcome to the community, I’m sorry to hear about your stroke and the seizure you had.

I can see @Mrs5K has put a few other conversations that have been had on here about AVM which will hopefully be helpful and I’m sure there will be some members along shortly with experience of this.

I hope you’ll find this community helpful whilst you navigate this journey. If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

[ManjiB]

Hello @stefanief1111 - Welcome to the community which hopefully will help answer questions you may have and offer support based on personal experiences.

I note you have already had an excellent response from our membership and have nothing further to add. Please feel free to ask anything you would like to ask and also share your experiences as they will likely help others.

Wishing you all the best and take care.

Health and Happiness.

Namaste|

[Bigmugoftea]

Hi @stefanief1111

I haven’t had an avm but did have a subarachnoid haemorrhage which I know can often happen after an avm. I had seizures too, provoked by the subarachnoid haemorrhage, so can fully empathise with your experience.

[Sky]

I have! Happy to chat if you want?

[stefanief1111]

I am really sorry to all as I believe I am one of the very few that has a grade 5. Has anyone else got one?

[Mrs5K]

@Sky Just popping by to say hi & welcome to the community. Hope you are doing ok.

Ann

[ManjiB]

Hello Sky - Welcome to the community! Looks like you are in a happy place

Namaste|

[Sky]

No, sorry mine is not a Grade 5 as far as I know

[stefanief1111]

May I ask what grade yours is?

[Anna_Moderator]

Hi @Sky

Just wanted to welcome you to the community, I hope you’re recovery is going well.

I hope you’ll find this community helpful for your recovery. If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna