I had a cerebellum stroke just over 6 weeks ago. I was in hospital 11 nights now recuperating at home.
I’m doing rehab and gradually recovering.
The constant nausea has gone, my mobility is returning, speech improving, but still have numbness in my left hand side especially arm, leg, feet and hands. The left side is working okay and although I can feel rough and smooth, I cannot feel the temperature of anything in my left hand and foot.
Does anyone have the same and is the hot/cold sensitivity likely to return in time?
@Tanner1962 Hi & welcome to the community. Sorry you’ve had cause to join us but hopefully you’ll find it a useful place to be.
Good to hear you’re making steady progress & I am sure that will continue. Many people have temperature issues after a stroke but the good news is it can get better. How long it takes varies from person to person.
Stroke recovery is a marathon not a sprint so be prepared to be in it for the long haul.
I’ve heard of this and a fellow patient when I was in rehabilitation had exactly the same thing, he found it really upsetting understandably so, but I believe he’s getting to feel hot and cold now. It’s worrying as he could scold himself and not feel a thing. The good news is that most regain what they’ve lost so don’t give up hope. Welcome to the forum
Welcome to the community, I’m sorry to hear about your stroke and the difficulties with your left side.
As others have mentioned this sensitivity may get better over time, it’s still relatively early in your recovery. There may be others along to offer their experiences on this too but I hope you’ve found the answers so far helpful.
It sounds like you’re making good progress and I hope this continues.
If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.
Thank you for your kind comments, very helpful.
If anyone else has any experience please let me know, although it’s an individual thing it’s the timescale of any improvements that are so frustrating!
All the best, David
Hello. I’ve had a very similar stroke. I’m 8 weeks post stroke and still suffering with the loss of feeling and temperature. I could feel light touch but not anything sharp like finger nails down my whole left side. My arm has come back to normal feeling and my chest but still no sharp or heavy touch feelings from my waist down.
With regards to the loss of temperature sense. I now feel cold things almost like pain. Especially with cold water on my limbs or walking barefoot on a cold floor. I still feel nothing with hot. Its so strange as i cant tell if I’ve dried fully after getting a shower. Theres no feeling of being wet.
Timescale? Throw that notion to the wind, each recovery is different. I had cerebellar stroke and still have many cognitive problems after five years, whereas, others with the same stroke have resumed regular life within six months. I guess the key is to allow the brain to heal and not put too much pressure on expectations, instead, celebrate your milestones, keep an eye on symptoms and make sure they aren’t associated with progressive ailments relating to other conditions or medication side-effects. Everything else is staying kind to yourself and ebbing back into society.
Hi sorry to hear about your stroke and glad you’re recovering.
I had what they called a large Cerebellum right stroke last October, I had just turned 65, it was a horrible shocking experience as I though I was fit and healthy, I had many issues it affected at first but I was determined to overcome them, no one tells you about the aches and pains as your brain is trying to rewire itself and you have to teach it to do things again… But I just wanted to give you hope that I now feel great and apart from a few niggly things I am strong and almost back to normal.
Keep doing your rehab and as hard as it is stay positive as that really helps as well.
If you want to ask anything at all about my recovery or symptoms please feel free
Julie, thank you so much for that.
I am getting there and am now doing ‘normal’ things, playing guitar and singing, tennis (no where near like before though - yet!), running a 5K.
So good progress…I still get very tired and some days are better than others. I’m still afflicted by lots of numbness, burning tingling, nervey pains all down my left side, these feelings can be quite uncomfortable at times, they also seem to shift around, but my left arm and legs in particular are constantly tingling. I still can’t fell temparature in my left hand and left leg/foot. Also no pain feeling in left foot and body. Weird…it’s either the nerves working to restore themselves or I’m left with this. I don’t know which!!
It’s now 4 months since the strokes, I’m keeping pretty positive most of the time.
Thanks again
Hi @Tanner1962 - It seems to me you are doing really well considering it is relatively speaking a short time since you had your stroke. Both you and @Juls2085 have done really well to recover as you have. I think @Rups is absolutely right about throwing the notion of timescale out of the window, but do wonder if you two have done anything in particular that might have aided your respective recoveries.
Julie - you say you were fit and healthy and so is it the case, this together with your determination to overcome the issues got you where you are today?
I just wonder if there are things we can do that improve our experiences. Again as per Rupert’s comment, we are all different, but at the same time, maybe there are things we can do to swing it in our favour?
Like Rups has said everyone’s experience and recovery is different, but for me it was a lot of determination and mindset.
I think the fact I walked with my dog about 3 miles everyday and looked after my grandchildren, ate well and had a happy life helped me.
I had a lot of those feelings and symptoms you describe ManjiB and I still do get some but now I know what it is so I don’t get as stressed thinking it’s happening again etc. I think a lot that’s helped get my head round it for me is understanding it and the symptoms.
Hi there, I was pretty fit and healthy (!) before the stroke, I’m 62 and it was a complete shock.
I started doing the rehab immediately even though I felt very nauseous for teh first month.
Rehab included all the physical exercises and playing my guitar, and then latterly and slowly getting on the tennis court and short runs and lots of walking.
Mentally I’ve stayed positive and have tried to see the positives out of the situation, I have a very determined character and always look forward not back, but I suffer from fatigue when I push it too far. I’m still learning when to stop!
The last area that has helped is being very open about what happened and get my feelings out, not bottling them up…so I write a weekly blog, latst one here:
And I’ve written and recorded 3 songs about what happened to me (my ‘sickness songs’) which are on Spotify and YouTube, my recording name is Grovesider.
Sharing thoughts with you guys helps too…
I think you’re doing amazing and I think the fatigue will get better as time goes on, mine certainly did and I rarely get really fatigued now.
Keep doing whatever helps is the key thing, talking about it is good I think, I know I woffle on to my loved ones haha.
I have been asked by my senior stroke Nurse who also is a trainer for Doctors, Nurses and Paramedics if I will attend a seminar and speak about my stoke and how I feel it could have been detected. Although it will be quite nerve wrecking I actually enjoy learning and talking about it bizarrely.
Pop-punk or indie-rock for sure…no the three sickness songs are ‘Ballad of the Helpless’, ‘Such Strange Days’ and ‘I’m Dying’ I wrote the lyrics in the days and first few weeks after the strokes, I was determined to leave the lyrics alone when I actually recorded the songs a month or so ago. A document of dark days.
‘Fade Away’ was actually writen by a friend of mine, not me ha ha ha ha
Now that sounds like Keith Richards arguing with Mick Jagger over who wrote what. Ballad of the Helpless, I liked that too. That’s more indie rock. Fade Away sounded like how a stroke survivor might feel with a partner, so maybe still poignant. What does Grovesider mean?
Thanks
Grovesider is my recording name. I’ve done a few gigs under that name as well but these days I’m mostly a songwriter and recording stuff.
I live in a road called Groveside…
I also had loss of hot/cold sensitivity all down one arm including the hand and it worried me that I would burn myself when cooking as if I touched something hot I wouldn’t know. It was a total lack of feeling
I am now 18 months post stroke and after a while - not sure how long but maybe 9 months or so I started to get some feeling back. That has steadily improved and now that arm, while not as sensitive as the other, is sensitive enough that I would detect a hot pan if I picked it up.
That arm and particularly my hand always felt cold and a bit painful at times too. This has also improved over time - still not 100% but a lot better - I spent the first few months wearing a thermal glove and I don’t need to do that any more
Ballad of the Helpless, I liked that too. That’s more indie rock. Fade Away sounded like how a stroke survivor might feel with a partner, so maybe still poignant. What does Grovesider mean?