Carers pushing back on supporting rehab

Getting active after stroke Rehabilitation
1

I’m having constant issues with my mum’s carers. They’re very good regarding her care and comfort and help her with a bit of light physio. We’re very lucky.

But as a stroke patient living at home with very little physio NHS input I’ve asked the carers to follow recommendations from mum’s private physios who are great.

This includes hoisting her into her wheelchair every other day to build up her strength, and positioning her correctly in bed (to support her lung health).

Mum lives with my step dad who’s introverted and will not direct the carers. I live close by but can’t always supervise.

This happens despite the directions being in the carers’ care plan.

We’re in this situation due to awful NHS and Adult Services provision.

Any advice on making them more proactive? I have a feeling they’re very risk averse so would rather play it extremely safe than support rehab practices. My mum’s currently doing well and is getting stronger.

2 Likes
2

Are you able to speak to the care company and get them to speak with your carers?

They probably are a bit risk averse but if it is in her care plan they surely should follow that.

It is such a shame that everything has to be such a battle.

Good to hear your mum is getting stronger all the time.

Best wishes

Ann

2 Likes
3

@EMG72
Sometimes just speaking out can be a help.

I can’t tell you how to get the help for your mother that she needs but in my treatment it soon became obvious that, as you say, the whole system is risk averse and as a result discourages progress.

It is three years since my stroke and I have discovered that I must take risks, accept the bruises and discomfort from getting things wrong, blame no one and see it all as a learning process to be accepted in good part.

The first time I ended up helpless on the floor I was chided by nurses. Later a doctor, after examining me, told me about progress and bumps. I’ve always remembered that conversation and consider it the most important thing any professional has conveyed to me.

It can be a struggle,
best wishes,
hoping you find a way through.

3 Likes
4

Yes, unfortunately you can’t make an omelette without cracking a few eggs, as the saying goes :blush:

I wasn’t nearly as bad as Bobbi but I still got told off by my family for taking chances. They soon stopped that when seeing the progress that was made. There are risks and there are calculated risks, go for the calculated, accept the possibility bumps along the way. There more she is allowed to do for herself the more she will progress.

2 Likes