I am brand new on this site & lucky to have found it.
I suffered a stroke in October 2022 whilst I was in hospital having surgery for an aneurysm I have in my brain due to medical misadventure.
My surgery was successful but I was meant to be kept stable in the high dependency unit for 72 hours. Unfortunately I was moved far to early up to a neurosurgery ward to a room on my own and when I got up to try walking ,I fell and fractured my arm & suffered a blood clot to my brain & had a right sided CVA which left me completely paralysed on my left side. I spent a month in a rehab walk relearning how to walk ( after I was told I may not walk again )
I am now walking, on my bike, gardening and learning reformer pilates.
I still have a lot of weakness in my left arm but I’m slowly getting stronger.
I have done a lot of work & healing to accept what happened in hospital.
I still have daily fatigue and my eyesight has deteriorated so I try to avoid been on screens as much as I can.
I am coming up to my 3 year stoke anniversary this month so even though I am proud of my recovery it still makes ime feel emotional thinking about all that has happened.
I feel grateful to have found this site with like minded people who can understand each other.
Hi Alice.
I’m sure there will be others soon to say welcome too. Glad you are here and thank you for sharing your story which sounds less than a fun journey. It does highlight how many of us have had poor experiences with hospitals and their care.
But more importantly it captures a story of determination and desire to succeed, this is the true spirit of overcoming the odds. Many of us suffer with both fatigue and emotional regulation but keep on going.
Hope that you enjoy your time here and wishing you well for your continued journey and recovery.
I just passed my 3 year anniversary a couple of weeks ago.
I had a long holiday in Kos Greece where I managed to swim, and, via Sunlight therapy, heal my eye (from MGD) by looking towards the setting Sun. Red Light Panel also helps. I also reduced intraocular pressure from 28 to 20 by Earthing 6 months ago. My eye is mending and I can now go outside without glasses (for the wind) for the first time since my stroke. From 0 second tolerance to the wind to being able to stay out all day.
Hello @AliceP AND welcome. In effect you had two strokes the aneurysm and then the cva. I too had an aneurysm that subsequently burst leading to an haemorragic stroke. Like you i was left side paralysed. I can’t walk because i have EFD. And probably need to have surgery to loosen the muscles and tendons and ligaments, which have shortened due to lack of use. It brings me much joy to know you are back on your feet. Stay strong, Mich
This was a huge problem for me. Contracture, I’m told, sets in after a week and I was 44 days in hospital, in bed 99% of the time. I did (and still do) so many calf stretches to get my foot to dorsiflex more readily. While most would say I have avoided outright foot drop, I come close, and am always catching / snagging my toes end of my shoe of the ground. I will do a YouTube clip about this and how I overcame much (not all) of it.
@AliceP Hi & welcome to the community. Wow, You have been through so much. But good to hear you are getting stronger all the time. I imagine it has taken a long time to come to terms with all that has happened.
Good luck with your continued recovery and look forward to hearing more from you.
It’s a pleasure to have you join us and for you to share your experiences with us. I wish you continued success as your stroke recovery journey continues.
Happy third anniversary - be happy that you where you’re at having achieved so much after some unfortunate events
Hi @AliceP sorry to hear of your stroke and the health issues you have had to deal with. Welcome to our community, I hope you will find this a useful place to be.
Despite everything you have had to deal with you are making an amazing recovery and you should be very pround of everything you have achieved and I’m sure that your story will be very inspirational for new stroke survivors just joining this community.
Thank you for sharing your story. Keep up the good work and I look forward to hearing from you as your road to recovery continues.
Welcome to the group and contratulations on your 3 years. You have achieved an amazing recovery in that time and must have worked really hard to get there, well done.
Its not easy to let go when we feel we have been wronged or let down by the medical profession. I am sure there are many of us on this forum who have experienced less than excellent care, but its good that you are working towards acceptance about what happened. I am also on that journey, its not easy but finding acceptance is about finding peace within ourselves, which also allows us to heal both emotionally and physically. Holding on to anger or resentment towards what we experienced can only hurt us, so choosing to accept and let it go is both brave and putting you and your health first.
I hope you will find many new friends here on the forum, I am fairly new to it myself, they are a great bunch and full of wisdom and encouragement.
Wishing you well and Happy Stroke Recovery Day.
Liz
Thank you for your kind message.
Yes it hasn’t been easy dealing with this medical misadventure that I went through in hospital, especially as i led a life being fit, healthy and active
prior to having the accident that caused me to suffer a massive stroke.
I’ve really had to work so hard accepting what happened & come to peace with it.
I am sorry to hear that you are also on a similar path as I am.
I really feel that it makes us better and stronger people.
It is so nice to have joined a like minded community that can all understand and empathise with each other and share online advice if needed.
I’m looking forward to to speaking with others on here
Hi Bobbi,
Thanks for your reply,
Everyone has been so kind in writing to me & even though I am on the other side of world, I feel so welcomed and supported in on this site.
I am also an early riser, since having my stroke I now wake early and go to bed early at night.
I find the early mornings are when I feel the best mentally in the peace and stillness.
I am going back to hospital this week for an annual MRI brain scan.
They are never fun but so important to have done.
Welcome to the Community, I’m sorry to hear about your aneurysm and stroke, it sounds like you’ve been through an awful lot in the last 3 years.
Well done on your recovery, it’s great to hear of the things you’ve been able to do again and I’m sure this will inspire others too.
I’m pleased that you’re finding this community helpful. If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.
Thank you for welcoming me into your community.
I already feel so welcomed by others on here and it’s just so nice to have found a place to share stories with others who understand and can relate to me. Makes me feel less alone.
Yes I’ve been through so much these last few years but I’ve learnt so much more about myself since having my stroke.
Acceptance, Resilience and the will to keep going.
Recovery is a an ongoing marathon- not a sprint.
Thank you,
Yes like everyone here, I have been through a lot these past few years.
I am just home from hospital after having an MRI brain scan that I have each year to check my aneurysm coils and the stent I have in my brain.
Never fun but so important to get done and have peace of mind.
Appreciate you reaching out to me with such kindness.
What a lovely supportive community to now be a be a part of.
I am so sorry to hear that you are still unable to walk after having your haemorragic stroke. I am very fortunate in that my existing aneurysm that was discovered in 2018 and has been coiled still remains unruptured.
My stroke unfortunately occurred at hospital after having repeat coiling surgery and a stent put in my brain, when I was supposed to be kept monitored in the high dependency unit for 72 hours recovering but I was moved far too soon to a neurosurgery ward, and there I suffered a massive blod clot to my brain and then the CVA leaving my left side paralysed.
I now have to have yearly scans and a MRI on my brain to monitor it, and actually went to hospital yesterday to have one done so fingers crossed for a positive result. I try to keep as healthy as I can and practice daily gratitude knowing that I could have been a lot worse off.
