Brain twitching

Hi everyone, i would love to know if any of you experience this twitching that i get. It happens when i sleep or nap in the afternoon. I wake up feeling twitchy, it seems to start in my head and then works its way down my body. It causes my hands, legs and even stomach muscles to just twitch slightly. When i sit up it seems to disappear. It was much more intense when i first had the stroke and that would even make my eyelids flicker really fast. That bit has stopped now and the twitchy feeling is nowhere near like it was, but Iā€™d really like to know what this is or if any of you experience something like this. Iā€™ve mentioned it to all of the people in my care and nobody seems to be concerned about this. Any advice is greatly appreciated. Thanks :blush:

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Thanks simon, this is a support to me. If something makes me jump or startles me, this sets of the twitching really bad and esoecially if Iā€™m sleeping or resting. Even the noise of the house alarm when someone opens the door to go to the bin sets it off. It leaves ne in a state of panic and i feel like my nerves are shot. Its awful and i wonder if it will ever go away. Iā€™m slowly learning that Iā€™m a bit different now and i have these quirky parts of me now. Some of which makes us all laugh, like when my brain spits out the wrong word. This just seems to be me now, for now anyway. :blush:

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Hey there,

Welcome to the world of the unexplained. Does this twitching happen stroke side?
Hereā€™s my guess ; nerves, synaptic plasticity, as new pathways form, old ones die ( or were damaged). I have twitches, often when I nap, where the whole body receives something akin to an electric shock as new synaptic pathways are formed. CBD oil encourages this activity.

I may be totally wrong ; this is little more than a guess based on what little I know about you,
Anyway, good luck, and I hope you donā€™t worry too much about it,
Ciao, Roland

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in my case, nerves are an interface between brain and muscle. My muscles cannot switch off without brain signals via the nerves to the muscles. I have plenty of repair going on, and welcome twitching as a good sign.

I do get some occasional twitching of my face but not too often & doesnā€™t last very long so iā€™ve generally ignored it. If your medical people arenā€™t concerned I wouldnā€™t worry too much & hopefully in time itā€™ll settle.

@SimonInEdinburgh itā€™s interesting to hear you describe how you jump at loud noises. I too do this & sometimes it doesnā€™t even take a particularly loud noise.

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Hello happy Sunday!!

I really get the noise thing but for me and I guess itā€™s obvious but because I have right hemianopia I constatly get startled by things / people / whatever ā€˜appearingā€™ on my right and very small noises get my heart jumping!!

Get a bit of twitching too but not tooooo badā€¦

Stay cool :polar_bear: :wink:

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Your Poor cat :smile_cat::smile_cat::smile_cat::smile_cat::smile_cat::smile_cat:

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@smeadows1975 I get what Simon gets, especially with that ā€œYawnā€. The twitching and yawn go together, but my twitch is really a spasm. I think there are degrees of spasticity.
It sounds like it is leaving you?
Best Wishes

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I got twitchy eyelids for a while immediately post stroke but it stopped after a while. The little finger on my affected left hand twitches uncontrollably if I lay any object. on it. I just put that down to part of the physical damage I sustained by trapping and banging it when I had no feeling.

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@Elle1 oh I get those electric shock type sensations too - usually travel from left to right side of head & usually happen at night. I tell myself itā€™s my brain trying to repair too :slightly_smiling_face: i did mention them to my stroke consultant but he wasnā€™t interested.

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