Before my stroke

About 15 days before my stroke husband gone to bed I came around on the floor no recollection of how it happened I have no idea how long I was out for but when I tried to get up my body wouldn’t let me so I had to lay on the floor all night but I did sleep most of the time when my husband came down at 7.30 picked me up I have no idea if he sat me on the sofa or chair it took me a while to get rid of the confusion I just wondered if anyone experienced this prior to a stroke. Sorry a bit long just curious. Thanks for reading. :heart::sunflower:

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I didn’t experience the same as you but when I think back I did have a very weird turn about 2 weeks or so before my stroke. It didn’t last a huge amount of time bug left me feeling rubbish for a few days. I didn’t think anything of it at the time.

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No, the only time I have ever fallen out of bed was a long time ago in my yoof, when men were real men, women were real women and small furry creatures from Alpha Centauri were real small furry creatures from Alpha Centauri, I’d been out on the lash, crashed into bed and woke up in the morning on the floor with a cracked rib. Didn’t feel a thing at the time but boy did I feel it for weeks afterwards.

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If you are talking about TIAs or strokes before the major one, then yes, I had three months worth of them. Three months of the GP diagnosing me with BPPV. In reality, I had four strokes over this time and possibly a couple of TIAs to boot. Just spoke to the neurologist today to confirm the number and he said, four strokes, right and left of the cerebellum.

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Looking back i had numerous “turns” which i shrugged off. Looking back I think they were TIAs or at least some of them.
I think you raise an important issue this needs publicising alongside existing FAST actions. How many strokes could be avoided? How many lives saved or mobility saved? I was ignorant about TIA never heard of this I am sure I am not alone….
By the time FAST applies it is likely too late. Thank you for raising this I hope the SA pick up on this.

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@Scotia

I had a TIA around 7 months before my full stroke while at work. My work colleagues thought I had fainted. It was not the last, I had another stroke warning on New Years day 2016 at home. I had my full stroke mid February 2016 unknown to me all the warning signs were there.

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@Baldrick

I was unaware of TIAs also Baldrick I put it down to the amount of pressure I was under having both my parents in hospital coming to end of life. I had an intense day job and every evening visiting my parents, I thought I was just overdoing it.

A very good point well made on TIAs.

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That was an amazing amount of pressure JimBob who knows what the trigger is in all our cases.
The interesting point to my mind is that many of us had warnings which we didn’t know were warnings! I personally was ignorant of these just thought it was tiredness etc . And had I known I would have sought medical help and the stroke possibly avoided.
I’d be interested in others views and more stories. As I said i hope the SA pick up on this and give it publicity in the same way that FAST is advertised. I believe it can potentially save lives and peoples mobility if TIAs are understood. Scotia makes this point well.

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I agree. I had several weird turns in the 18 months leading up to my TIA, mostly visual disturbances accompanied by worryingly high blood pressure. Calls to 111 generally referred me to my GP. I was in a pretty high pressure job at the time, so it got written off as stress, possibly with eye strain from long hours in front of a computer. The one time they sent me to A&E I was given a tablet and sent home with no real explanation of what was happening. Finally, after my confirmed TIA the MRI showed that it wasn’t my first.

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It’s just stress or anxiety, how many times have I heard this prior to people having strokes. I said to my GP, after months of my symptoms being put down to BPPV, that my symptoms could be associated with lack of oxygen or blood to the brain. He said, could be, could be … and sent me off for an x-ray. It was too late however, a month later, boom, my brain was struck.

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Thank you very much for your response

Best regards

Scotia

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Hello all,
Yes three nights before my thalamus stroke I passed out in the bathroom during the night. I woke up with Bill rubbing my back and a sprained ankle. We blamed it on exhaustion from just returning on a flight from a wedding week. Then the big one hit. I wish I had thought about this and seen my doctor.
Best,
Lane

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I had a really bad dizzy bout 3 days before my stroke, it didnt last long and fortunately my daughter was with me and held me up. Didn’t feel to bad after about an hour and putcit down to sitting for hours in the cinema and then standing to quick. Thinking now it was ridiculous to think that could have caused the level of dizziness I experienced and I believe it was a TIA. But who would assume a TIA or stroke warning if they’ve not had one before.

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Hi @Xxxx

Welcome to the community, I hope you’ll find this community helpful for your recovery.

If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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Hello and welcome to the community @Xxxx .

You make a very valid point and indeed I believe this is the problem with TIAs as you can have them and not know you’ve had them even if you knew what you were looking for or as you did - simply disregard them.

I am sure I have also read you can have them whilst sleeping and so would not know you’ve had them.

Glass half-full

Yes, it is possible to have a Transient Ischemic Attack (TIA or “mini-stroke”) and not realize it. Because TIA symptoms are temporary—often lasting only a few minutes or hours—and resolve completely on their own, they are frequently disregarded, mistaken for signs of aging, or forgotten, leaving the underlying cause untreated.

Glass half-empty

A Transient Ischaemic Attack (TIA), or “mini-stroke,” is spotted by sudden, temporary symptoms mirroring a stroke—typically facial drooping, arm weakness, and slurred speech (FAST). Symptoms usually last only a few minutes to an hour and resolve completely, but require immediate emergency medical attention as they are a warning sign of a full stroke

How to Spot a TIA (FAST Test)

  • Face: One side of the face droops, or the person cannot smile.
  • Arms: Sudden numbness or weakness in one arm, or difficulty lifting both arms.
  • Speech: Slurred, garbled speech, or difficulty understanding what others are saying.
  • Time: Call 999 immediately if any of these signs are present, even if they disappear.

In the end, you can never be sure :frowning:

Nice to have you with us.

Namaste|
:pray:

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Hi & welcome to the community @Xxxx hope your recovery is going well. Ask away if you have any questions. We’re all happy to help.

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Well that’s right. I remember mine distinctly, digging in the orchard, starting feeling giddy, ground coming up towards me in a swirl. Drove the tractor back to the house and straight to the couch where I slept for an hour. Thought it was the onset of an acute panic attack at the time but woke up with disjointed visual issues. It would be the first of four strokes and two TIAs.

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Welcome Xxxx!
Thank you for writing of your experience. The more I think about this the more important i believe it to be. I hope the association is picking up on this thread(?) as if only people were more TIA aware how many strokes would be avoided? How many lives saved? How many peoples mobility preserved? (& a massive saving to the NHS! (As we must cost everything these days!)).
Thanks again for adding to everyone’s knowledge :+1:

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My wife, Liz, died of a haemorrhagic strokein Feb 2023. She was 69 and relatively healthy with none of the usual risk factors.

After going back through her diary I believe there were warning signs many months before.

Eight months earlier, she had her first ever migraine, and had 3 more in the following months. I’ve had migraines since I was 14 so it was regarded as ‘one of those things’.

A couple of times she separately noted a stabbing pain behind one eye. A check by her optician could find no reason for it.

Two months before the stroke she had a severe episode of vertigo lasting for over a week which, when checked out, was assigned to BPPV, an inner ear problem.

I have since found that her blood pressure was around the bottom of the hypertension range.

In July/August 2020 her diary records a series of 6 headaches – she never had headaches before.

I have also found out that, way back in May 2019, her optician referred her to the local eye hospital. All I know about that is that her lens prescription was unchanged, but she was advised to “optimise control of her blood pressure, cholesterol and blood sugar”.
A month before the stroke she forgot my date of birth despite knowing me for 50 years and it being used in several passcodes.

Are these symptoms just isolated events or could they be connected and even related to her stroke?

Nothing will bring my wife back but, if such relatively available information can save even one person, this needs further investigation.
I mentioned this several times to the SA and even wrote to a professor doing stroke research but don’t see anything happening in relation to early stroke prediction and, perhaps, prevention.

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Hello @Quarterp - I don’t believe we have met. It’s nice to meet you.

I found your post interesting and it is a little different from others I see on this forum. As I understand it, you have joined post losing your wife to a haemorrhagic stroke with the intention of trying to help others by sharing your experiences as a carer for your wife.

I think what you are trying to do i.e. come up with ways to identify and prevent strokes is great and I wish you success. I think I read in one of your posts just now that you are a scientist and perhaps this explains what you are trying to do.

As things stand the identification and prevention of strokes from the medical profession is lacking hugely and even the post-stroke support and rehab is extremely pore compared to other branches of medicine and there is scope and huge potential if you can come up with something. It’s a shame you are having difficulty getting anyone to engage and I wonder if this is an opportunity for you with your scientific training to start something up and which can then be further developed - maybe for example by you doing a pitch to the Dragon’s Den investors?

I believe if something like this is to happen, its roots will be in something like this. It needs someone with a passion which you clearly have to develop it and push it through. The established medical professionals and the professors you are contacting are focused on doing things their way and will likely not see potential in what you are suggesting.

Whilst not exactly the same, I have had so many occasions when I have had to push back the medical professionals treating my Mum when they kept doing things in a robotic fashion, not looking Mum as an individual whose symptoms must be assessed in the context of her health condition and history. When you have such ignorance or sometimes arrogance it is hard to get buy in.

Signs are always there but it’s how you deal with them once you spot them.

People on this forum will tell you they felt this or saw that but then they just carried on, or worse, they went to the GP or A&E and they found nothing :frowning:

I will think more about this, as it is something that has long interested me and it is one of the reasons why I am here on this forum.

Nice to meet you.

Namaste|
:pray:

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