Is there anyone else out there with B12 deficiency / Pernicious anemia. ?
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I do was diagnosed two years ago
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How long did it take to get your diagnosis ?
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Thank you … for your comment, I am still finding my way round the community.
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Drs knew I had a autoimmune disease but didn’t know what it was when I was reffered to rheumatology to be tested for arthritis that she ordered the blood test as b12 isn’t a routine test they usually do I got my results the next day then was started in loading injection every day for 10days then every 12 weeks have my levels checked every 12 months
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There are new Nice Guideline that Doctors are suppose to follow & part of those are that patients that are receiving regular injection ‘‘do not’’ need to be tested … Is your diagnosis Pernicious anemia or ''what they now refere to as Atrophic gastritis. ? If so, that means you are on B12 injections for the rest of your life. Here is a very helpful website if you want to browse around it, it’s created by Tracey Witty an international expert B12info.com
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I run a page on Facebook called B12 Advocates where I post research papers to, you might fins that interesting.
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