Aphasia – Reading, Writing, Gestures?

In September of 2017, I had a Stroke and now suffer from Aphasia!

Oh dear!

In January 2025, I had an idea. What if there were a:

www.aphasia-aloud.org

Website. Providing: Reading, Writing, Gestures, and more. For people like us, with Aphasia!

So, I created it with others.

If we get Aphasia people to look at it, and let us know what they think?

Of course, it has a long way to go. But I would be interested in what people think.

What do you think?

Bill Noble

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Bill,

My difficulties are different from yours so I have little to say. I realise though how valuable it is to be able to interact with another in a non-challenging setting.

I’m a great believer in the relevance of peer support. We can offer encouragement, share experience and make the world a less lonely experience for one another. That can all amount to something worth having.

Well done for taking up the baton. Realistically there will be ups and downs but we have one another. There are more than a million of us for company.

All the best @Vardas

keep on keepin on

Explore https://jitsi.org/ for a free stable method for face to face online contact.
It is easy to access and use. It works across all operating systems. I recommend it because it has worked well for me and the small group I set up.

2 Likes

I’ve had a look and like what’s been done so far . . . other than the Grammarly promotion you have instead of anything anything more practical and constructive for the Writing section. I certainly wouldn’t recommend an AI supported software for anyone with Aphasia as it’s way too unreliable, it has as many inaccuracies as it does accuracies. And with more severe Aphasia, errors are frequently made in reading and writing and go unrecognised, even on here. Therefore how is a person with severe Aphasia going to spot if the AI app has made a mistake or not. It may good as a general spelling and grammar checker but why clutter up your devices with another one.

I suggest if you want to promote certain apps you think might be helpful, then why not just include them in a list with a brief description. Rather than dedicating an 8 page pdf file on Grammarly with absolutely nothing helpful at all on how to actually regain/improve upon writing ability such as hand exercises, simple penmanship techniques etc, printable handouts including shapes and swirls and tracing and such.

Overall the site looks good, clean, clear, uncluttered, not at all overwhelming in its simplicity, which is what we need.
I’m 4yrs post stroke and only have mild aphasia. I can read…a lot, writing is at least legible now and speech is relatively clear and understandable in short simple sentences but word finding is still a bit of an issue. In the beginning is where I wish I had all the access to information I have now :face_with_diagonal_mouth: Hospitals just don’t give out that kind of really useful information upon discharge and its such a shame :confused:

Lorraine

1 Like

Hello @Vardas - Welcome to the community.

Thank you for sharing your idea with us and well done for developing it.
I can’t speak from experience as I don’t have aphasia but I am sure you will soon get feedback from some of the members of this community that have or have experienced aphasia.

That said, I have looked at your website and it looks good to me.

I note Lorraine, @EmeraldEyes has given a more detailed feedback and she speaks from experience :slight_smile:

Wishing you all the best.
Namaste|
:pray:

1 Like