Anyone have any thoughts on this?

Hi @pando ,

Your note about the vagus nerve and Qigong is very interesting. I will look it up.
I have stumbled across Qigong by accident (or possibly design by YouTube as it started recommending Qigong videos to me). I am also looking at Yoga, Yogic breathing etc. By the sounds of it you are quite a way down this path and benefitting from it :smiley:

:pray:

2 Likes

Hello Manji,

Yes Iā€™m into TCM (I have a Chinese Dr who visits me weekly - he played a big role in my immediate post stroke recovery, in fact) and Qigong. A good first read is ā€œThe Root of Chinese Qigongā€ by Jwing-Ming, but itā€™s a hefty tome. I study Qigong and Qi through necessity, for my health & ongoing recovery. Our brain runs on 20 watts of electricity, and we are primarily electrical beings ; Qi is bio-electricity, and managing it / taking control of it can help us in many waysā€¦

good luck, Roland

2 Likes

Re the TRICEPS trial.
I had an assessment on WhatsApp today. I wonā€™t qualify for the trial because my arm function is too good. I had a feeling that might be the case but hopefully theyā€™ll keep my details on file for anything else that might come up.
I know Iā€™m really blessed to have a stroke arm that functions very well, even though it feels like c***:woozy_face::grin:

Trace

Oh thatā€™s a shame but hopefully something else will come along that is more suited to your level of capability.

1 Like

Hi @Trace57. I applied to take part in the TRICEPS programme as Iā€™m really struggling with tingling/prickling & numbness in my hand and foot, big toe especially, following a lacunar infarct. I have been prescribed medication but it made no difference whatsoever.
They contacted me the next day, and I know I should feel blessed however, sadly I was turned down as I had ā€œtoo much movement in my arm/handā€.
Good luck with your application, I hope it is successful.
@pando please can you point me in the right direction to learn more about how to access the vagus nerve? I truly believe in itā€™s power and want to fully explore, but my yoga teacher canā€™t explain how to, Google just wants to sell me expensive machines and my doctor has referred me to a pain management clinic who have given me an appointment date in 12 months time!

2 Likes

Sure Badger,

Thereā€™s no quickie way to get in touch but here goes :

  1. watch youtube videos on vagus nerve
  2. learn Qigong
  3. search for all posts here about vagus ; several will be my posts
  4. read books about it
  5. do you know what you need ? guidance is hard to find !

Do you know my list of therapies ? How familiar are you with these ?

Good luck, and hope you make progress, ciao, Roland

Hello @Badger18.
I was told today that I donā€™t qualify as, like you, my hand function is too good. Iā€™m ok about it and wasnā€™t really expecting to be recruited but felt it was worth a try.

You have my sympathy where altered sensations are concerned. Iā€™ve tried Amitriptyline and medical cannabis for tingling, fizzing and numbness to no avail. I canā€™t describe the sensations as painful, although they are uncomfortable but Iā€™ve come to the conclusion that pain medications do not work for sensation ( not for me, at any ratešŸ˜). My Neuro therapist says my muscles are tight and possibly compressing nerves which might explain why the sensations in the hand have increased. So weā€™re working on loosening up the muscles with stretching exercises. It does seem that there will often be improvement in sensation once the muscles are working properly, so exercise is a great way to go forward. A 12 month wait for the pain clinic is too long so I hope you can find some strategies to help in the meantime. Focusing on being distracted can be helpful but itā€™s never enough to become unaware, unfortunately.

Trace

Thank you so much Roland for all the information. I shall have to add a reading hour to my day. I wish Iā€™d asked ages ago. Iā€™ve wasted so much time googling.

2 Likes

Thank you Trace . Iā€™m sorry you too did not make the program. Thank you for the advice which is very helpful as Iā€™m seeing a neuro physio this week so fingers crossed

1 Like

@Badger18 Hope it goes well for you. Keep us all posted!

Trace

1 Like

Hi Badger

Chat GPT is good online, but only standard answers
Reddit has many r/subreddits you can browse / ask
I think vagus is a question of breathing technique, and meditation, and gradual awareness.

There are many good YTube triggers, like yawning or looking into the cornersā€¦ when you stimulate the vagus you gain some more control. it work 2 ways ā€¦ messages from brain and messages to brain

indeed a fascinating adventure to take control !! good luck, R

2 Likes