@emeraldEyes Hi, thanks for that. My wife has the heavy end and there are times when I make it difficult for her. If I’m trying to do something through a sticky brain and she try’s to help I get frustrated as I lose my ‘‘path’’ of thinking to complete a task. She’s signed up today . @Deena .She always depended on me to see to bills but our account is a shambles at the moment as I can’t cope with our finances just now. I used to work for one of the big banks but service now is terrible. You try to speak to someone now to get help but decisions are made by an emotionless computer system. No one is either able to think or make a decision anymore. I’ve given up. I feel sorry for all my fellow sufferers of stroke/TIA. The last thing you need is a fruitless ‘grilling’ and hours of waiting for a reply. I certainly haven’t had a good experience. Maybe someone will point me in the right direction or comment. On the bright side I have a £5 note in my back pocket and they won’t be seeing it.
Hi Everyone.
I had my stroke almost 8 weeks ago and compared to many on this forum I was lucky not to have impairment to my physical movements. I found the whole experience of the stroke terrifying but made a good recovery in hospital and can do all the physical things I used to do. What I have found very difficult is the loss of motivation as previously I could not sit still and was on the go all of the time. I just wanted the old me back again and became very tearful at losing this motivation and energy. The occupational help I received was great and the nurse explained that it would take time for my energy levels to return and that I should rest when my body told me to do so. This I have done and it took me six weeks or so before I could get through the day without an hours sleep to recover from just reading, watching TV or walking. I find walking and being out in the fresh air uplifting but even so from time to time this emotional flood overwhelms me and I just cry for no apparent reason. My wife has been brilliant in supporting me but I worry about the impact this is having on her emotionally also. I have a list of jobs I need to do and I just need a magic pill to give me the drive to attack those jobs in the way I did pre stroke. Nobody can tell me when this feeling will pass and that it will take time but in the meantime I just feel so down about the whole thing. Anyone who has had similar experiences and could share how they managed their way out of this situation would be very helpful. To everyone else I wish you all the very best in your recovery process.
Hi @ColinH
Welcome to the forum although sorry you’ve had to cause the join.
It’s great to hear that you escaped much of the physical impairment that many of us battle.
There may be a small irony.
People are going to say to you “you look well”
Youve yet to learn perhaps what your reply will be “that’s because you can’t see what it’s like on the inside” or some more diplomatic (or more impatient!) phrase?
If you’ve escaped very lightly you may have a full recovery - I’m sure everybody here has their fingers crossed for you that that will be the case. More probably the motivational and emotional will be between permanent and fading over time. If they fade expected to take some months.
Also be aware that while stroke has a dramatic effect in the first few hours it keeps on the life-changing potentials ‘up it’s sleeve’ that come in at various stages - like for example the 4-month possibility of developing central stroke pain, the random aches, med side effects, replacement of recovery fatigue by fatigue for life and other things that we here can point out have been in some of our futures but not whether they will be in yours .
Much of what has been said by the community to previous new joiners is gathered together in the welcome post tap the blue text
Personally I agree with any concern about family & spouses. I think they bear the brunt and have much less support from the system so encourage your wife to seek and to take a support and listen to advice wherever she can find it
I dare say others will be alone to say welcome. I hope you find this forum something you can navigate because when you do it will be a valuable resource during the long road ahead
Caio Simon
Hi @ColinH welcome to the forum, I’m sorry I missed your post but better late than never.
Your brain is still healing and repairing, it neither needs nor wants to be motivate to do much more so it just won’t let you, it’s as simple as that I’ve found.
Your brain is putting all its effort and reserves into recovery right now and it doesn’t care how many menial jobs you have on your to do list. They are of absolutely no importance to your brain as none of them are as life threatening as a stroke! So it’s just disconnected your motivational button for now and will not reconnect until it is sufficiently recovered enough to spin more than one or two mental plates in your head Normal service of said button will resume some time in the next 4mths or so
That’s how I look at it now anyway, when I think back to those first 6mths post stroke And the crying is quite normal too, it’s a combination of shock and relief! You’ve been through a life threatening experience and you’re still here to tell the tale. It too will pass as you get further on in your recovery and get over the shock of it all. Just go with it, it’s part of the healing process
LOL I’ve been confused by most things tech since my stroke !
i put my share story on here, but cant find it, did i do it the right way
Hi @tricia3 I had a look through the forum posts for you as I did read your story . . . and I’m still waiting for the part two of it
And it was actually in Share you story
(Whereas this post is the ‘About the Share your story category’…confusing I know )
Just click on the blue link below to get to it
not very good with technology. do you feel cold today, its 11 on computer , i have to put heating on, still have pressure in head dont know why, is it the bp tabletslaying down, i have arthritus in l;eg
I still get that pressure from time to time from driving. I usual find taking my glasses of for a minute helps…not while I’m still driving of course Try it and see if helps relieve it.
Although, when I think of it, driving probably does raise my blood pressure a tad. Do you have a BP monitor, if so you should maybe start taking your a couple readings a day for week and take them to your doctor.
I’m off to strength & balance class this morning so that should warm me up Its currently 9C here but I’m further north from you I think.
we had an offer on bungalow but was too low she upped to252. its 14 here sunny and warm in somerset, i cant drive. i did yoga on saturday, first time for a while
A post was split to a new topic: Hello everyone, I’m Jonathan
Hello everyone, another Dave here, just joined, had a stroke on 20th oct just gone, i a locksmith trainer and was getting ready to go to big lock show when a had pins and needles down the right hand side, ignored them thinking that theyd go away but they didnt , about 3 hrs later a phoned my partner , she phoned a ambulance and after some tests they kept me in for 4 days. been home about 6 wks and things are coming along ok, very slowly , but ok, can walk , but most of time i drag my foot, can talk ok, and my right hand does what it wants most of the time lol. hardest thangs are the little things, like getting dressed, writing ur name, eating , want to get back to were i was pre strkoe, driving and training people again.
Welcome @daveymitch to the best club in town that nobody ever applies to and takes everybody
Your early in a journey that for most of us no matter how lightly we get away with it is still a long one. Rarely is stroke a detour on the path you were on but is teleportation to a new path not just for you but for all around you.
You should expect that there will be much improvement, but there will be some setbacks along the way - it isn’t generally a smooth path
Some of us put together a combination of the things we normally say to welcome new joiners in Welcome - what we wish we'd heard at the start - Community - Stroke Association Online Community - I recommend you have a read of that .
Very likely others will be alone to say hello and suggest some guidance sources very soon. you’ll find most of your questions have been asked and debated Previously If you master the magnifying glass above you’ll be able to find them but even if you can’t just ask
Ciao
Simon
You can rest assured just about everyone on this forum…both stroke survivors and carers…have been through that particular hell and come out the other side…some are still in it
Hi @Holliebear80 and welcome to the forum.
Now breath! Slow and deep, in through the nose and out through the mouth.
I myself suffered 2 TIA’s (which are mini-strokes) 3 years ago. And I’m pretty sure your mum is going through exactly the same thing as you are right now, so start talking…better out than in
Yes, she’s not out of the woods, there is always the risk of another stroke. That’s something all stroke survivors have to live with. But if we take care of ourselves, healthy diet, regular exercise and keep taking our medications, it all reduces that risk.
Is your mum on any medications yet? The standard ones are usually Ramipril for blood pressure, Atorvastatin for cholesterol and Clopidogrel for thinning the blood. Has she any follow-up appointments with the stroke team yet, there should be something or they will maybe phone in a few days.
You can find support and information from the Stroke Association Helpline on 03033033100. So it might be worth giving them a ring. They can also help you find local support groups for carers if you think that would be of help.
Also check out the Welcome post some us put together. It covers a lot of what can be expected going forward and some useful links.
One thing you can be thankful for, she came out of it pretty well from what you say. But her brain still has to heal; just because there’s no visible wound doesn’t mean there isn’t one…you just can’t see the wound in her head. She may be experiencing things like brain fog, she might get tired frequently or fatigued, headaches, balance might be slightly off. All these are also covered in the welcome post. And it might also help your mum to let her have a look through to see if there’s anything she recognises or can relate to
I’ve found my time on this forum has helped me to both rationalise and desensitise myself somewhat from those fears. I’m calm about it, don’t even get an odd pang of concern, but we’re all different, unique
As it’s a bit late in the day for some on here, I’m sure you will get more responses tomorrow.
Hello @Holliebear80
Welcome
@EmeraldEyes has said just about everything I would say - Perhaps with one or two slight omissions…
Yes you probably are suffering from exactly PTSD
You should seek some help.
You can try Headway or start with your GP.
The other thing to say is that even with a transient attack the stroke damage will take a while to clear up - hence the brain fog, fatigue etc that is likely to follow and will take a considerable amount of energy that you can’t see being spent - don’t worry if your mum is quiet and restful for some months.
Ciao
Simon
Yes, I’d say many have it and it’s just the same as when pregnant mums have it on their baby bumps…only it’s on the neck instead, quick and painless. Youtube is great for showing that sort of thing if you care to take a look.
As far as exercise goes, she can do as much as she can or in other words, as much as her brain and body will allow her to. Do you have the number for the stroke nurse, it might be worth giving them a ring as your mum could probably do with home visits from OT and physio. Although they might be waiting for the results of all her tests as they are not all in yet. Failing that ring your doctor and get his advice.
I’d be loath to give any specific advice on exercise as I’m not a medical expert and your mums medical condition hasn’t been fully investigated yet. But she does need to stay as mobile and active as she can to prevent things like muscle wastage, fluid build up and such.
Hi @Holliebear80
Once again Lorraine (@EmeraldEyes ) has covered most of the things & very well
You might like to look at these: https://mystrokeguide.com/video
Then in the drop-down box select Red Group.
If they proved to be too easy then return to the link and select Amber Group. You have to see how her fatigue levels are 2 days following her exercise before you know whether they were to demanding in terms of energy available
I’m glad you feel better by having posted
I’d also suggest that you don’t view yourself as a passenger. You have a role as carer and that can be extremely demanding especially as it goes on and on. This is a place for survivors and carers. Together we are all #StrokeWarriors or #StrokeThrivers
Most of us who have otherwise unexplained I ischaemic strokes get neck ultrasounds to check the cartiod arteries - are not too clogged. If they are then an operation to scrape them out is sometimes suggested depending on risk.
Salt can be a factor in high blood pressure.
it also makes things taste better for some people and taste is a component of being encouraged to eat - eating is important for healing energy - so lack of salt isn’t necessarily a good thing - being risk factors/ diet where is
Caio
Good evening, all.
Just wanted to introduce myself.
I’ve been a long time reader of the forum, but thought I’d drop in & say hello at last.
33 year old gent, suffered a haemorrhagic stroke in March 2022, caused by an AVM. (Arteriovenous Malformation) which wiped out the whole of my left side. Began taking small steps in rehabilitation back in July 2022 and been trying to build from there every single day, I like to think I’m going from strength to strength in this emotional rollercoaster of stroke recovery.
Hoping I can contribute to this fantastic community
Hi @DanH
A warm welcome to the best club in town with no queue to join
I guess If you’ve been a long time reader that has without registering as a user? Great now you have
& Nice to see you introduce yourself - We become aware of people when they post. Until then while there could easily be a mechanism there isn’t one to help us to welcome people
Have you read the welcome post - Click the blue text - It says the standard stuff that we say to new joiners - please feel free to edit it if you see ways to improve it
Yes it is a roller coaster especially for the emotions of all involved. I hope your daughter hasnt been to affected?.
If you’ve been making steady progress there will be a few here (quite possibly even majority) who are jealous because most of us seem to take two steps forwards and one back or maybe that’s three vs two
Yes this community does really get it in wats those who haven’t had a stroke, whatever their role - really don’t understand
Is that screenshotted bio from Instagram?
Once again welcome
Onwards and upwards
Simon
Hi Dan Ioh my goodness I suffered a hemmoragic stroke too in oct 7th 22 I was getting ready for work and my daughter phoned she never phoned me in the morning whilst on the phone I suddenly lost my hearing in my left side I said I couldn’t hear her she said she was shouting I had a whooshing sound in my ear then my eye sight went my speech I couldn’t walk it was horrific ! I then don’t remember anything my daughter came round called for an ambulance and I also awoke in hospital it since been found out I also have a AVM I’d never heard of one. I’m waiting on a procedure up in London as they cannot operate as too dangerous! ( huge stroke or death they said) to have something called gamma knife habe you got to have that? I am recovering and improving but still can’t drive as siffered two seizures in hospital and can’t work having worked for 44 years of my life as a carer living my job. I’m relieved to hear someone else has had this even tho they said it was very rare I’m also very sorry to hear you’ve had one too tho. I’ve been left with various things I cant-do how about you? You are so young bless you sorry I’ve rambled on I’m nearly 60 kindest regards micky