My name is Bet Ali, and my life changed in ways I never expected.
A few months ago, I suffered a stroke something that shook the ground beneath me. One moment I was living normally, working, thinking about the future. The next moment, I was fighting for basic things: memory, strength, clarity, even the ability to stay calm. Recovery has not been a straight line. My body does not always respond how I want it to, and my mind carries fears I never used to have.
As if the stroke wasn’t enough, I was diagnosed with an autoimmune condition that affects my brain’s blood vessels. It’s invisible from the outside, but inside it feels like a war that never stops. Some days I wake up strong. Other days my head feels cold, my body feels weak, and my heart feels tired. There are moments when I wonder if I will ever return to who I used to be.
Living in Uganda makes this journey even harder. Access to healthcare is limited, specialists are few, and getting accurate tests or medications can feel like climbing a mountain. Every appointment requires sacrifice time, money, energy and sometimes even hope. People tell you to “be strong,” but they don’t see how exhausting it is to fight an illness in a system that is stretched thin.
Jobs slip away. Opportunities disappear. You try to work, but your body is not the same. You try to explain, but people don’t understand what they cannot see. And because life here is tough, everyone is struggling, so your pain often remains silent.
But even in all of this, I wake up each day and try again. I hold onto faith. I pray for healing. I pray for better days. I remind myself that surviving this far is already a victory even when it doesn’t feel like one.
This is my story: one of struggle, weakness, courage, and