A Sad Story About My Stroke, Autoimmune Illness, and Life in Uganda

My name is Bet Ali, and my life changed in ways I never expected.

A few months ago, I suffered a stroke something that shook the ground beneath me. One moment I was living normally, working, thinking about the future. The next moment, I was fighting for basic things: memory, strength, clarity, even the ability to stay calm. Recovery has not been a straight line. My body does not always respond how I want it to, and my mind carries fears I never used to have.

As if the stroke wasn’t enough, I was diagnosed with an autoimmune condition that affects my brain’s blood vessels. It’s invisible from the outside, but inside it feels like a war that never stops. Some days I wake up strong. Other days my head feels cold, my body feels weak, and my heart feels tired. There are moments when I wonder if I will ever return to who I used to be.

Living in Uganda makes this journey even harder. Access to healthcare is limited, specialists are few, and getting accurate tests or medications can feel like climbing a mountain. Every appointment requires sacrifice time, money, energy and sometimes even hope. People tell you to “be strong,” but they don’t see how exhausting it is to fight an illness in a system that is stretched thin.

Jobs slip away. Opportunities disappear. You try to work, but your body is not the same. You try to explain, but people don’t understand what they cannot see. And because life here is tough, everyone is struggling, so your pain often remains silent.

But even in all of this, I wake up each day and try again. I hold onto faith. I pray for healing. I pray for better days. I remind myself that surviving this far is already a victory even when it doesn’t feel like one.

This is my story: one of struggle, weakness, courage, and

7 Likes

Hi & welcome to the community @BET.ALI sorry you’ve had cause to join us but we are a friendly bunch who are happy to offer advuce & support based on our own experiences.

Your story sounds a lot like what many of ua feel like after a stroke. The invisible symptoms can often be the worst too & of course difficult for others to understand as they can’t see them the same as a physical injury.

A stroke journey is often a long one & needs lots of patience and determination. You sound like someone who is up for the challenge.

If you have any questions ask away someone will be along to help.

Best wishes

Ann

3 Likes

This community is a game changer for me like for real

3 Likes

One word to you, if I may; Earthing will appease all your inflammation
Try it ; it’s free. Good luck

2 Likes

@BET.ALI are you from Uganda or did you move there through choice. If through choice, you could always go back to your own country. I am in England but I am not from here. You are dealing with a dreadful time in your life and you will always feel like noone understands, because they don’t. Life has given you a tough knock, but i feel life only knocks the ones who are strong and will fight to survive. I am a stroke survivor and everyday is tough. I have no one to talk to a work, cause people have a saying of, “how are you?” and if you answer truthfully they do not know what to do. Make me giggle inside, so I walk around stating I am ok cause that’s the only answer they understand. I wish you well for the future. I am on year post stroke. I miss my old self, cause she was a nice, happy person, but I got to be strong for my children and grandchildren. I have twins within my grandbabies and they are 2yrs old. I hope I survive long enough to see them grow up. God Bless all of you :heart_eyes:

3 Likes

@IreneFC Uganda is my homeland, and your reply just speaks to me directly. Everyday to me is a blessing because i don’t know how the next one will be.

Am happy that your a mom it’s the biggest gift ever, i pray your kids live with you by their side.

Ameen.

2 Likes

@BET.ALI Take care as being a stroke survivor is such a hard thing to deal with. :revolving_hearts: You are so right, everyday is a blessing :revolving_hearts:

2 Likes

@IreneFC thank you alot. It means alot hope we share more and more interaction

2 Likes

Hello Bet Ali - with nothing to offer in the way of advice, this is just a quick message to say hello and welcome to the community.

Wishing you all the best.

Namaste|
:pray:

2 Likes

Any word or message is never taken for granted :folded_hands:t5::folded_hands:t5: thank you

4 Likes

Hello @BET.ALI welcome to the forum. I hope we can bring you some peace of mind in your recovery. We are all stroke survivors here with a wealth of knowledge between us all based on our own stroke experiences.

Even the doctors don’t fully understand strokes. To do that they would have to fully understand the brain and how it works, neuroscience. They’re not there yet! They still have a very long way go with that. You could liken it to space exploration, what they know could be written on the back of a postage stamp, for comparison.

We, the stroke survivors, are the only true experts, unfortunately our brain’s are too broken to teach the doctors😅

Really, all the doctors can do for strokes is stop any bleeds/blockages and medicate to reduce the risk of another one. The rest is down to ourselves, the true rehabilition is down to us, and we only get out what we’re prepared to put in, and that’s anyone’s guess.

Progresses can and will be made, but it takes year’s of hard work and determination to achieve. What they are and what they are worth to our value of life is a bit of a lottery. We can only wait and see.

It’s all baby steps, it’s like we have been thrown back into our infant year’s and it all needs all those years to regrow and redeveloped, all over again. That’s how I look at it anyway :sweat_smile:

Good luck in your recovery and look forward to seeing you around the forum.

Lorraine

2 Likes

This message is very deep for real

2 Likes