A fleeting moment that changed everything

Sunday 30th May 2021 a day I will never forget. I went through a terrifying experience—I had a health scare that I never saw coming. I believe by sharing my story it could help others who might find themselves in a similar situation. As I recount what happened, I hope you’ll think about your own health and the steps you’re taking to protect it. Let me take you back to the day when everything changed…"

It was a beautiful sunny morning . I had just sent a group chat to my family to suggest they all come to mine for a BBQ the time was 10.17am. I jumped in the shower and was excited about the rest of the day. As I stepped out the shower my balance was off, and I had a strange feeling in my head… my brain was trying to process what was going on. It wasn’t long before I realised that I was having a stroke.

I felt a tingling sensation in my fingers and then in my face. I was alone in the house my life honestly FLASHED before me.

The biggest fear was that I was home alone and at the time I felt like this would be how my life ended, which might sound like an overreaction but that was how I felt.

I reached for my mobile which was lying on my bed but couldn’t pick it-my fingers were numb. It took a few seconds, but I eventually managed to call 999. When I tried to speak the words were all jumbled it sounded like I was drunk.

The operator seemed to know what was happening and reassured me that she would stay on the line until I could talk with her. The time was 10.26 am…less than 10 minutes had passed!!

The tingling sensation started to pass, and I was able to enough information for an ambulance to be dispatched.

The paramedics were amazing they calmed me down, first they took my BP, they advised me that they needed to get me to the hospital straight away. My BP was in the region of 260/120. I was in serious need of medical assistance.

My daughter happened to arrive at the same time as the ambulance, she ran upstairs, and we both burst into tears.

Once at the hospital it was all systems go, I was exhausted my head was the sorest it had ever been all I wanted to do was sleep, bloods were taken and I was given a blood thinner but within the hour, I had another episode this time it was milder, I was reassured that the blood thinner was doing its work.

I had some routine tests which included bloods which were difficult to take as my body was in shock then a CT scan which was inconclusive but thanks to the persistence of the nurse, she arranged a doppler test, for those who don’t know what a doppler test is a non-invasive test that uses reflected sound waves to assess blood flow through major arteries and veins. Much the same as pregnant woman would get to monitor their babies.

The right side of my neck was checked first then the left side. I knew it was bad when the nurse told me to sit still and stay calm!!

The main artery was block by around 95% (I was a ticking time bomb) this meant I required surgery. Immediately.

I was sent for an MRI scan which is more detailed, the results showed I had a bleed on my brain and had suffered a stroke.

I had to prepare to go into surgery the next morning. A piece of plaque had become dislodge in my main artery and travelled to my brain causing a bleed.

The next day I had an operation called a carotid endarterectomy. The carotid arteries are the main blood vessels that carry oxygen and blood to the neck face and brain.

I was in surgery for 5 hours under local anesthetic, to allow the surgeon to monitor my brain function and minimise the risks for a further stroke, blood clot or heart attack, which was very scary.

I posted my story on Linked a few months later and 2 people contacted me to say I potentially saved their partners lives. one woman was away for the weekend and when she returned her husband was acting strange, she had read my story, and it triggered something, so she sought medical advice. Turned out and he had had 2 strokes. The other one was a man who said his wife had slurred speech that had passed and if he hadn’t read my story they wouldn’t have gone to the hospital.

I consider myself lucky and try to remain positive that I survived to live another day ( hopefully many more ). A few weeks after my stroke a friend of mine suffered a massive stroke, he was in hospital for 5 months. He is paralysed down one side and has been left with a condition called Aphasia which is a speech impediment. He is 10 years younger than me. He is overweight and has never exercised. I am please to now say that he is doing amazing and now shares his story through various forums. He now does exercise by swimming and has changed his lifestyle.

I wanted to give something back to the amazing staff that saved my life so I signed up to the research team at the Royal Infirmary in Edinburgh.

Research is crucial for prevention as well as recovery.

Looking back

I had noticed minor changes in my body nothing major, I was bit lethargic and had some blurred vision which I put down to needing an eye test. This was around or just after covid so I couldn’t get a face to face with my GP but on a telephone call she advised me that I had nothing to worry about!!!

My advice now would be “Trust your gut”.

In hindsight I was lucky I don’t think anything would have prevented my stroke, but due to a relatively healthy lifestyle I minimised the impact and continue to do so.

Research shows that most people who have these episodes put them down to dizzy spells and ignore them, ultimately this is a warning sign and will eventually show itself in a more sinful way if left untreated.

Life after a stroke

I have made small adjustments -which include resting a bit more, keeping up with exercise and recognising when I need to slow down. I still get a bit lethargic towards the end of the day and on occasion slur my words but all in all life is good.

If I can give one crucial piece of advice it would be to invest in a blood pressure monitor, people with high blood pressure often have no clue they have it. It has the nickname “The Silent Killer “.

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Hi @Weesue13 - Welcome to this community and thank you so much for sharing your story with this forum. I am sure it will be helpful for a few of the members and possibly members to come.

I read your story and was pleased you had a happy outcome and it looks as though you have adapted extremely well.

I like your advice

and I myself like to say something similar which is to “Listen to your body”.

We shall never know how things might have been different if you had trusted you gut instead of your GP who

One thing that I am still trying to get my head around is about the blocked artery. My Mum also had a blocked artery and she was taken to A&E within the requisite period for catching the stroke early (30 minutes or less) and she was given a clot buster, but this did not clear the artery. To their credit the hospital then said there was still time to take her to another specialist in central London (Charing Cross Hospital) where they could try to remove the clot. Again we got there and the surgeon/neuro surgeon did his best to try to remove the clot but again he was unable to do so.

As a result of the above, Mum was effectively untreatable and all that was left was to send her home to be cared for. So she was sent back to the first hospital and due to the severity of the stroke, she was ultimately discharged into care at home. Long story and I have already covered it elsewhere on this Forum so I will not repeat it.

My question to you, or anyone else is what has happened to my Mum?
As I understand it, the clot was not cleared and the brain was damaged, but since the clot was not cleared, how is she now managing? Maybe this is a question I need to ask her “cons- ultant” at the hospital?

As per above, we were told that Mum was unlikely to recover and we should “say our good byes” or similar. Again a long story, but we took Mum home with next to no guidance other than to “make her/keep her comfortable”.

Given Mum was not expected to make it through per the “cons ultants/specialists”, and given the artery is still blocked (or it may not be, I don’t know), how is it she is still with us nearly six years later?

Another point I would like to add, Mum has had reasons to go back to hospital but their baseline is still the one when she was admitted after the stroke whereas she has actually improved quite significantly from that baseline. So it seems to me, she might still not be getting the level of support that might be afforded to others?

Just some thoughts and questions that I am asking as you @Weesue13 wee lassie have posted with a view to helping others - we still seek answers :slight_smile:

Thank you.

Namaste|
:pray:

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Hi @Weesue13

Welcome to the Online Community! Thank you so much for sharing your story with us all, it’s great to hear your recovery has gone well.

Great tip about the blood pressure, it’s always a good idea to keep an eye on this!

If you need anything whilst you’re using the Online Community, please don’t hesitate to tag me using the @ symbol and my username.

Anna

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@Weesue13 just popping by to say hi & welcome to the community. Thank you for sharing your story. There’s some good advice in there especially around keeping an eye on our BP. Many peolle don’t realise theirsvis high until they have a health scare.

I hope your progress continues to be good.

Best wishes

Ann

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Yes a close eye on BP is essential ,also I dont know how you get it done , but if there is a family history of heart related problems try and get GP to check you out for atrial fibrillation. My stroke 5 years ago was caused by my undiagnosed intermittant atrial fibrillation.I had had no symptoms prior to the stroke

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Hi, just jumped on to say a big welcome to our community. Thank you for sharing your story and the great tips about keeping an eye on your blood pressure.

Glad to hear that your recovery is going well and I hope your improvements continue.

Regards Sue

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I am sad to read what has happened to your mum, as you say this might be a question for her medical team. All strokes are different to the individual ,it might be that they cannot treat where the clot is. It does sound like your mum is defying the odds so massive well done to her. I was told that is vital that after any health scare to change some habits like better eating and exercise. Which I agree with but I did all this before my stroke. The biggest change I have made is to walk every day for a minimum of 30 minutes even when I really don’t feel like it. Take care , WeeSue

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@Weesue13 - Please don’t be sad. These things happen and Mum is not sad, and she would not want you to be sad. If you were here, she would take you under her wing and give you all sorts of advice (not obligated to take - just hear it out and do what is right for you).

It’s true - they could not treat it and hence the “we’ve done all we can, it is now time to go home and let nature take its course”, but the question remains, given it was untreated, what has happened to it and why is Mum here alive and kicking?

Here’s the weird thing. All the advice given after any health scare, is everything and more that Mum was doing before she had the stroke.

In her lifetime she:

  • Ate healthy - vegetarian, home cooked and home-grown (until no longer feasible) produce. Fresh milk daily from cows that she kept and looked after extremely well
  • Manual work - physically super fit and strong
  • Walked everywhere (unless huge distances)
  • Took cat naps
  • Did not drink alcohol
  • Did not smoke
  • Remained mentally alert
  • Mindful, considerate never a bad word said against anyone
  • Always helping others - counselling, advising young Mum’s on best practices (her own interpretations of), looking after elderly
  • Cared for her in-laws at the same time as bringing up three children and holding down a full job
  • Astute business woman - made and sold dairy products
  • etc
  • etc
  • etc

On the day of the stroke, she had been working in the garden. She walked every day often carrying shopping bags. She was 89 when she had the stroke!

Despite all that, along came Mr. Stroke and said to her, “I’m gonna getcha” and that he did :frowning:

You take care WeeSue and do continue the walking and do other stuff that may help - don’t forget, give the brain a bit of a work out too. It needs it :slight_smile:

I believe there are few brain workout groups (friendly cliques if such things exist - I just like the word clique) on this forum if you’re at all interested :slight_smile:

Namaste|
:pray:

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