3 years on

Share your story Milestones
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I’ve had quite a few positives recently… been working up to taking down the extra banister rail the nhs installed, fill, repaint the walls and get that space back.

on valentines day I took my first day out (not in a car) we traveled from the coast to Hendon and the RAF museum as my Spouse is an airforce brat, she got to sit in a spitfire which made her day… my day was made by doing it and not having toilet by toilet journey plan.

alongside this I’ve pivoted away from finishing the biography of my own journey into writing fictional stories of stroke survivors not just recovering/surviving but in the role of hero/heroine I deeply struggle sharing my own internal journey and panic when ever I do (I tried here yesterday and deleted the post) as though its wrong to share this struggle but through the medium of fiction I hope I can, i tried with my own website on my journey and the excerises i invented for myself, it felt such a conceit.

I’ve been using my wages to pay a trainer at my local gym, I can now do 70 split squats on each leg, I fell over the first time i tried, the second time was holding onto a solid object, I can hold a plank for 60 seconds and i’ve gone from walking lengths in the pool to swimming between 200-300 meters/yards at a time… when I started, going in circles was the way forward :slight_smile: :grinning:

even joining this forum is a step forward as I’ve not felt I had a right to, I had a carotid disection so was in the younger cohort on the hyper acure wards of Eastbourne DGH, there was no space for someone like me in thier thinking/treatment plan… outside the family people are shocked to learn I have hemiparasis and aphasia, I am to hard on myself when I get things wrong/miss them, as its like i have verbal dylexia too and my brain rather thasn auto correct is now set to an autowrong mode. even expressing that thought outside family is hard… so its a positive i am now (as long as i dont autodelete this post :slight_smile: )

I’m on job 2 since returning to work (not confident to go back to my old life running IT projects) job 1 was a bust job 2 is great but is only a short term contract, so now i have had a year and have to think what i should do now, as pensionable age is decades away… and i just dont know, I’ve thought teacher, health care, therapist, its not as though there is a carreers service for us :wink:

but even thinking what next is great, I’ll leave it there for now :slight_smile:

thanks for reading/listening
Much love to all survivors and their families as it really is possible to not just reclaim life but move forward in ways you never thought possible
NickyW

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@NckWhlr well done on completing you post & not deleting it. It sounds like that is a big thing for you. It sounds like things are moving in the right direction for you which is great to hear.

It is definitely not wrong to share your struggles if that’s what you want to do. You are amongst many people who totally understand here.

I am sure your next adventure is just around the corner & you’ll know it when you see it.

Yes we can reclaim life. Maybe a different one but nit necessarily a bad one. Trying new things can be good for us.

Best wishes to you and your family.

Ann

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Thank you Ann
it is hard as most personal topics send me into a doom loop :slight_smile:

As a survivor of childhood csa every change in life has been about learning to thrive with what I/We have right now :slight_smile:

thats why I like the 4 quarters theory where our lives are split into quarters and we all have to relearn what life means and start again at least once a quarter, knowing everyone is on the same journey is very leveling :slight_smile:

Thank you very much for your considered reply
Nicky

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I like the sound of the quarters theory. I think thats a good way of approaching life. Here’s to the next quarter & may it be full of positive things.

Ann

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it already is… growth wise at times I think I’m further on than I was in the before…
wishing you much happiness
Nicky

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@NckWhlr ,I am a novice to all this and was impressed by your up date. I like the 4 quarters theory as that means I’ll be finishing this quarter when I’m 97. I have a feeling the quarters may not be equal in biological age. ( do I mean biological??)

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thank you and you’re it does feel uneven, I know i have restarted mine a few more times than the prescribed quarters, I first heard the theory at a womens chartered institute of management event as an explainer of a lot of womens lives marriage/kids/becoming carers and how often women are forced to restart life…

I feel that it really does apply to everyone… for various reasons many of which are trauma we have to restart our lives, most have already done it a few times, my first one was black Wednesday as my work/industry collapsed, the first caused the second as my first marriage and mental health collapsed due to money worries, I’m on my thrid and just over 50.

For me this one is trauma based but I’m at the point of relearning how to learn… the stroke taught me I could learn as I had to relearn the basics from not falling off a chair to tying my laces, now i’m wonderimg what now? what next… at times excited but mostly concerned/scared…

wishing you a wonderous day
Nicky

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@NckWhlr

I have been on this forum for over two years and have used this space almost as a blog. What I like about it is that what you write about gets a response which can be stimulating, inspiring, informative, amusing and even challenging,
In fact it is worth posting just for a valuable response which you are most likely to receive.
In return I feel as a member of this forum I should offer response, encouragement and input of my own.
There is much you can share here. It is not a place to feel restricted.

I’m pleased that you chose to join us.

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