2nd Hemorage this year advice is welcome

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i had bad hemorage left side before new year, mostly blood on scans and wouldnt stop,seziures and classed as im not guna make it, Another Nurology surgery took me on did miracles and after 6ish weeks i started to get myself consious back of who i was,before that i knew nothing,got my balance walking speech back but there was issues i didnt understand,

i seemed too be on the mend but i had a 2nd Hemorage on right frontal this time which again i was back in, this time there was different problems with speach and listening to conversations,

im still mobile but my memory and having words stuck on the tip of my tongue and seeing things differenty is a difficult for me too explain,
because ive been resuscitated 4 times as well i accept the worst which i dont think i should be thinking this way,
most of my problem i read so i can understand, but ive alot of memory gaps this year, another scan to have few weeks

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Hi @allstars

Welcome to the community, I’m sorry to hear about your strokes. It sounds like you’ve been through a lot. Please keep us updated on how your recovery goes and I hope you’re scan goes well in a few weeks time.

Anna :slight_smile:

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thanks,Motivation is my main issue,i have none now but the plans ideas are all waiting still, i do about 18 hours sleep on and off the brain tiredness hits quickly out of nowere like hitting a wall,im hoping i will get it back somehow, ive tried the React2 apps and i still fail the memory sentence tests,the scans have shown damage brain,left side bad and cause but reasons why not known,
i realise it could happen to anyone for no reason

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the occupational therapist sounds like my problem,they have talked about going for this but theres a waiting list,i talk myself out of everything now, im outdoor physical adventure person, now ive cornered myself into sleep or tv indoors,
the 2nd stroke effected me more im mobile but stuck for no reason,my head tells me not to start anything

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@allstars hi & welcome to the community. You’ve definitely had a difficult year but you’re here to tell the tale & hopefully its upwards from here on.

Lots of sleep in the early stages is required i know I slept more than i was awake initially. It gives your brain valuable time to start its repairing.

In time you should start to see some improvements & the key is to keep practising. It’s a shame there’s a long wait gor an OT but in tge meantime you could try some brain training exercises. There are many apps & reaources available online.

Wishing you all the best.

Ann

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Hi there @allstars, I know I’m late to the party but welcome to the forum. Your stroke certainly put you through the mill, resuscitated 4 times, and 2 brain haemorrhages :flushed:

That’s not something you’re just going to recover from in a matter of months! This is not going to be an easy repair for your brain, it’s got an awful lot of knitting to do :wink:

Emotion was switched off for me after my stroke. Oh, I cried a river that first night in hospital but after a few days, it was like every emotion in me just shut down, laughter, tears, surprise, liking and disliking, the lot, couldn’t even get annoyed let alone angry. I was just numb to everything including motivation.

I soon learnt to fake an awful lot of emotions :sweat_smile: But I took advantage of it too, by basically becoming robotic to the chores of life. Get up, get dressed, have breakfast, go for a walk, rest, do rehab exercises, rest, have a drink, go for a walk, drink, rest, snack, rest, change for bed, do teeth, sleep…or not as was the case most nights for me in the early months.

I found this lack of motivation very useful in the end, it was easier to just slip activities into my day or switch things up, without having to think or even care, you don’t think or feel you just do! Robotic style, unfeeling, uncaring one way or another.

So really you have to actually write those things into your daily planner, so speak, just to remember to do them.

Think of things you know you should be doing for the good of your health and just make them part of your daily routine. You really to walk so you work out your best time of for that and write it in and set how long…½ an hour a day, working up to twice daily maybe. When the time comes you just get your coat, get your keys, get your phone and just go. Don’t think just do!

When I eventually started going alone and building up my time out walking, I’d forget about time. And my hubby or kids would phone to find out where I was :laughing: It was the same when I started going to the gym, I’d forget to come home :laughing: I think that’s why my daughter started going with me, so I didn’t do more than 2hrs and wind up in hospital again :laughing:

That’s pretty much how I got through life in my first year post stroke. I still do to some degree.

And all that is easy for me to say at the other end of a computer, I don’t even know your age. And you’ve certainly had it much harder than me. And your brain does need a lot of rest while it concentrate on the healing and repair work it has to do. So only you know your limits and you have to work to those limits. And maybe after your next scan you’ll have a better idea of just how much you can push those limits.

It’s not about accepting the worst. You are prepared for the worst but there’s always hope for the better :wink:

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Enjoyed that read, thanks i do see similar issues in reading this group,and other groups on Aphasia, its so hard too explain what goes on in my head when important words get stuck on my tounge and so hard too say it,

My latest Mri Scan was today,ive had alot this past year various scans done,
im 53 now and the 2 seperate Hemorage Strokes started xmas 2023 remember nothing until 6 weeks later,memory walking balance reading all started too come back slowly, back home by April then 2nd one hit me and was back in,

ive forced myself too do alot, brain gets tired quickly ive learnt now, apart from that certain test i still cannot do but ok with the rest,
i do read for as many answers and understanding,and it helps alot,
i will know more results at Liverpool Nurology in a couple of weeks

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I’m sure you must have had a hard time reading my post to the end.
I would have too way back in the beginning :sweat_smile: It’s certainly a lot easier now :slightly_smiling_face:

I try to keep my paragraphs short here for ease of reading. When I first joined and found relevant posts that were lengthy, I would save them to read in stages. Frequently I still have to read a sentence several times before my brain manages to fully process what I’ve read. Again, time of day affects that too.

I too have aphasia, though mild now compared to being virtually mute at the start. I do still get words stuck in my head, they just don’t want to trip across my tongue and out of my mouth.

Singing helps with aphasia. I also used to read out loud a lot to get used to speaking again. But it taken a few years that’s for sure. I now try to keep sentences short and simple as much as possible when speaking. And time of day also influences speech, takes time in the morning to wake the vocal cords. I slur more in the evenings the closer I get to bedtime. But I happy with what my brain has given back to me :smile:

I frequently found my brain would just shut me down when it was just done with something. It didn’t matter what I was doing, I’d just have to stop and go sit down and do absolutely nothing. I soon learnt to listen to my brain :sweat_smile:

Keep up the good work, never stop, it will get better but it’s an up hill climb. Anything you need to know here, just ask, and use the search bar too :mag: if you can manage it. There’s lots of useful info on here.

The Welcome - what we wish we’d heard at the start some of us compiled on here might also be worth a read whenever you can, for more tips and insight :slightly_smiling_face: (Just click on the blue text)

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thanks,i will check the other posts, id luv too know more,even though its my head with broken wiring :smiley:

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And that’s what most of us on here are, folk with heads of broken wiring :smile: I’m 3½ years post stroke and for as long as I’ve been on the forum, it’s as much a part of my rehabilitation as anything else, i.e.:
improving my reading ability as well as increasing reading time
regaining use of my stroke hand in typing
improving recall
improving navigation around the forum site
refining hand/eye coordination
I’ve regained a lot of these skills I’d lost after my stroke. And I’ve met a lot of wonder people on here too :blush:

Just take your time, this recovery can’t be rushed, slow and steady wins the race :smile:

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latest visit to neurovascular Hospital for summary so far after more scans earlier,
apart from a large left side dark patch after bad bleed and right frontal slice on brain after another bleed, they said so far that nothings standing out still but there going too check me out again with different experts,

Good thing is i can read alot better with lots of subtitles on pod cast youtube vids and faces are more rememberable now,

the listening conversations and talking still have issues but in queue for the speech nurology people now,also the foggy memories are getting more clearer than i used too remember,
still have about 4 months memory missing this year just very glad for the help

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It sounds like you are making progress & good news that they have found nothing else.

Keep going things will continue to improve.

Best wishes

Ann

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